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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/11/2010 3:24 PM (GMT -7)   
Tired and sleepy.

Going to start out by doing some paperwork & shredding & filing in front of a movie until I wake up, and then I may come back and post something more sensible. Why is this tlc? It's better than faffing around online.

I also need to try to tackle the big mess in the kitchen today.

And, of course, spiritual stuff.

Glad you're starting to feel better, Choc.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/12/2010 3:55 AM (GMT -7)   
thanks ivy. No real tlc's for me just slob around and rest up. My appetite is going downhill fast so must try to keep something on my stomach. Although it would be nice to loose my pred weight, i dont want to be dipping below the 9stone mark again. I just look horrible then.

The kittens are doing really well. They've gained loads of weight, and seem really settled. They've been charging round the garden this morning, so are now curled up fast asleep on the sofa next to me. How totally cute they are!

Mum's going away on holidays next week. So i'll be on my own, any ideas on how to keep myself entertained? I will have some cash, but no transport and limited energy!

xx
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
BOOKED FOR open SUGERY ON 9TH NOVEMBER

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 9/12/2010 5:13 AM (GMT -7)   
Well, my feeling better lasted a grand total of one day. (Did nobody see my Saturday TLC post?) The thing is, I rarely feel miles better, just as I rarely feel miles worse. So it did feel a more substantial improvement than it actually turned out to be.

No TLCs. What's the point?

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 9/12/2010 7:24 AM (GMT -7)   
Oh dear, one day of feeling better isn't much good,is it!! Especially when you come crashing back to earth with a bang. It must be so frustrating at times and I wish i could wave a magic wand and make it all go away for you(unfortunately I am no good at magic!!)
Did you manage to get anything fun/good done yesterday or was it just nice to enjoy a relatively pain free day. One good day usually leads to to much being done and paying or it over the next few days :( I spent yesterday cutting grass and steaming carpets/floors and just haven't got any motivation to do much today barring the ironing(school uniforms) and walking the hound. Can also feel stress levels rising as I have to take daughter back to uni this week with all her stuff which will entail about 8 hours of driving, unloading her stuff into her rented accom and taking her shopping once there to stock up on the heavier items that she needs(canned foods etc) Can't wait for that day to be over (there is always a huge sigh of relief when I make it back safely) I cannot believe how much I have turned into a wuss since having my two children(well they are just about adults now) things that just wouldn't bother me before feel me with dread now. If needs must though........

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/12/2010 8:13 AM (GMT -7)   
I managed to do absolutely nothing this weekend. Today, however, I must shower and venture to Walmart. Forgot to get syringes for B12 shot and must give myself shot in the next couple days.

I really don't even feel like doing that. I want to go lay down and sleep away the day. Oh well, must be adult, do what needs to be done, as it won't get done without me!

NCOT ((((hugs)))). My magic wand seems to have broken as well. I wave it and it only makes the sound of *POO* not *POOF* ;)
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/12/2010 8:41 AM (GMT -7)   
I have retired back to the safety of my bed. I havent eaten too much, and i just had two spoonfuls of bolognese and have promptly thrown it all back up. joyous! I havent been dressed since friday and i waqs only dressed long enough to walk to the parmacy and back. oi, i hate sleeping my life away!

NCOT, i'm well rubbish at magic too, but i will have a go just for you

*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~

GIVE NCOT HER LIFE BACK

************************************************************************
sprinkles of fairy dust ~~~~~~sprinkle sprinkle sprinkle~~~~~~~~~~~~~~~~~~

does wierd magic dance that only slightly resembles the hokey cokey

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

ok, NCOT you'll have to let me know how it goes......i just hope i havent turned anything into a frog.....it took me ages to turn it back..................

xx

Post Edited By Moderator (Nanners) : 9/12/2010 10:00:38 AM (GMT-6)


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/12/2010 8:49 AM (GMT -7)   
Sounds like it's a bad weekend for a lot of us. Maybe Monday will be better...I hope.

Choc, that was a lovely try at magic. Hopefully there aren't *ribbits* (or however you spell it) on NCOT's next post! Oh, and I pictured you waving your arms while typing out that magic.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/12/2010 9:02 AM (GMT -7)   
I plan on taking it easy today too. Had my grandson over for the weekend, and he goes home in a few hours. Good boy, but too much energy for me:) Also finally starting feeling a little better, now having spasms in my low back. Gawd I hate this dd, if its not one thing its another. Hope you get feeling better NCOT!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 9/12/2010 9:15 AM (GMT -7)   
Ack, I feel a bit guilty now! :-/

I do really appreciate your kind thoughts, though, folks. *hugs to you all* I felt great yesterday morning and afternoon. No discomfort, pain, bloating, anything. Then in the evening the pain returned - and settled in for the night. And then I got woken up with a bad stomach. And today I've gone back to feeling uncomfortable - it's not actual pain yet. That tends to come on gradually through the day, as it's doing now.

I feel fairly sure that I'm whinging and that most other folks on here are worse off than me. (Having been through patches of being very ill, I know I don't feel like that these days.) But it still doesn't stop me from wanting to tear out my hair - or my intestines - out on a daily basis :-/

@vixen - I didn't get anything productive done (a week day would've been better for that), but I enjoyed the day and fitted in a nice walk with some lovely views. The walk was actually more rigorous than I intended it to be, because I underestimated the sheer hilliness of the place. Probably overdid it, tbh. But that's as nothing compared to taking your daughter back to uni. I don't blame you for feeling stressed; that would massively stress me out too! I hope it's one of those days where the dreading is worse than the actual doing (I'm a terror for dreading things beforehand). I also hope your daughter has a great time at uni. Is it her first year?

(Wait, scrap that question. "Back to uni" makes it sound like it isn't.)

@Becky - Heh @the magic wand going "poo" instead of "poof". Instead of going to the ball, you shall run to the toilet :p

@Choc - I'm sorry about the throwing up. Don't feel guilty about sleeping while you are ill/flaring. Your body needs rest at those times :/

And as far as I can tell, I'm still human. Ribbit <_<

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 9/12/2010 9:17 AM (GMT -7)   
Oops, Nanners' post wasn't there before I posted.

Had my grandson over for the weekend, and he goes home in a few hours. Good boy, but too much energy for me:)

So can relate to that :p (With nephews rather than grandsons, though)

Hope your back gets better soon. And thank you!

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 9/12/2010 9:29 AM (GMT -7)   
Lol becky you had me in stitches with your broken magic wand :D Not much makes me lol but that certainly did!
NCOfTea, everyone has that point when enough is enough, yes we all have different levels of what we can cope with but each and everyone has a limit and it is apparent that you are at yours. Are you due to see consultant soon??
A walk for pleasure is a lovely thing to do(even if you did do too much of it) I am guilty of not 'seeing' things, or rather not appreciating them for what they are, like when I take the dog out-the mission is to give her a walk and I don't take in the surroundings :( You are right. the dreading is usually worse than actually doing it, although last time I got to within 20 miles of where I live, stopped to fill up with petrol and got a massive headache come on, just like that-think it was cause close to home and all the stress/relief hit me at once(aren't I pathetic) No, 2nd year for her which is another big step cause she will be out of halls and into private rented accomodation(one step closer to adulthood ;) )
Hope you get some relief soon

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 9/12/2010 10:21 AM (GMT -7)   
Vixen - In a month's time to the day; 12th October. I look forward to it, if only because it gives me a chance to bring up enteral nutrition and LDN. The way I see it is if conventional meds don't work or aren't a viable option, they owe it to me to let me try less conventional methods. Not sure they will see it like that, however...

It's very easy to walk along in a world of your own, not 'seeing' a thing. Think most people are guilty of that, including me. I'm not always busy looking at things, but sometimes I do; helps if there's something pretty or interesting to look at, obviously! For example, a few months ago I must have spent about 10 minutes looking at an old wooden bench, just teeming with different types of insects. I know that wouldn't be everyone's cup of tea, but I found it interesting... <__<

Nah, you're not pathetic. It sounds natural. Driving can be pretty stressful; immensely more so if it's a long journey or you get badly lost. I've lost count of the number of times I've been almost overcome with relief at getting to my destination safely.

Hope your daughter enjoys her 2nd year :p

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 9/12/2010 12:31 PM (GMT -7)   
It's a shame that they will not see you sooner. Maybe an idea to print off some info on enteral nutrition/LDN etc and present it to him/her. I think they have less opportunity to dismiss your suggestions then.
I have a Sat Nav and at the same point each time it tells me to turn right, I get in the appropriate lane and then realise(again) that it is the following turning where I turn right and by the time it has 're-calculated' I have made yet another wrong turn!! I end up going out of the city, right the way around, back over a bridge and round the outskirts! So frustrating(added 20 mins to my journey last time) Surely I should have learnt by now.

Believe it or not I think I have found a positive to Crohns although I do not know if it is worth the pain and suffering and that is from my observations people age extremely well with this disease. Seriously:) I knew son looked young for his age but I put that down to lack of height but I have been meeting people that are in there late thirties that do not look a day over 19 and others in late forties who could easily pass for their early thirties. Would have thought that aging would increase with this disease, dd has come up with the theory that maybe the body doesn't absorb pollutants like non crohns sufferers. Hows that for a bonus ;)

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 9/12/2010 12:53 PM (GMT -7)   
Sorry Ivy, have only just seen your post from Wednesday. Have picked myself up from the doom and gloom or should I say have had it enforced from my mind as I concentrate on things DD needs to do before she departs. How did your paperwork shedding/filing go? I sometimes am a little bit too keen to dispose of paperwork(only to find that I need it a few weeks later :( ) I watched a movie today(but I was doing the ironing at the same time-shows how much there was cause I got to watch all of it!

Chocholic-if In were you and my mum was away I would do exactly what I wanted(with no-one to tell me otherwise)-read a few books,magazines, watch loads of films and if you have a spare bit of cash-a massage/facial/manicure. I have never had any of those sort of treatments but I am told they are all wonderfull(did have hoppi(sp) ear candling once and that certainly was relaxing)

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 9/12/2010 5:48 PM (GMT -7)   
That's the NHS: always a long wait :-/ I actually had an appointment due about a week ago, but they cancelled that one and put it back by a month. I won't bore you with lengthy details, but more than one thing really annoyed me about that particular cancellation. But meh. In the long run it won't make any difference anyway - not likely anything hugely significant is going to change between now and in the next four weeks.

Printing off info is a good idea. I feel a bit too shy to walk in there with research studies and the like, however. Considering that I used to be like a stone in front of doctors - only not as lively - I am more communicative than I used to be, but it doesn't sit easily with me. In front of anybody 'above' me, a pathological secrecy/reserve comes into play, which I hate, but cannot stop from kicking in.

Keep trying with the turning. Eventually it'll click!

I approve of your bonus :p ... Funnily enough, don't want to boast but that does apply to me >_>. I'm 35 but don't look it. I dunno if I look as young as 19 (doubt that, tbh), but I could pass for 10 years younger without too many raised eyebrows. And as late as my early 30s I've been asked for ID to buy alcohol. I can't comment about the youthful appearance of Crohn's sufferers in general, as the only ones I've known in real life have been my brother and cousin. My brother looks his age IMO, but then again his Crohn's isn't like mine and seems more to resemble UC to me, in terms of meds and symptoms. But my brother calls it Crohn's, so I presume Crohn's is what it is. (You can see how much we talk to each other about our disease.)

To add to your suggestions for choc, I would play music in any room I felt like, put a TV in the breakfast room, and just generally chill out in any room of the house I felt like. Also, if I had nearby friends, I would invite them over.

And now, I'd better go to bed. Got an early GP appointment tomorrow. *sees time* Oh yeah. I had really better go, for real :-/

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/13/2010 2:22 AM (GMT -7)   
Yeah i'll have to agree. i do look young for my age. I'm 24 but an consistantly I.D'd. a few years ago, i even got ID'd buying filter tips for my mum when the legal age to buy them was 16! i think i was 21 at the time!! i was not impressed! When i was at uni, i was always being pegged for a first year, was dead annoying actually!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
BOOKED FOR open SUGERY ON 9TH NOVEMBER
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