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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/13/2010 1:16 AM (GMT -7)   
A late post, sorry.

I had a really early appointment today, and the day seemed to be full of non-stop busyness from then on.

* shower and dress before appointment - yes
* get house presentable before appointment - yes
* do appointment - yes
* eat lunch - yes
* sort out insurance - YES!!!!! yeah another big job
* tlc for body - yes
* something fun - yes

I'm mentally exhausted and physically fatigued so don't feel capable of posting much today, sorry, but huge hugs to all the people who were having such a hard time over the weekend. Just keep taking it fifteen minutes at a time...

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/13/2010 2:30 AM (GMT -7)   
good idea, take it 15 minutes at a time. I didnt sleep well, kept waking up. Went to watch TV at 3am and ended up watching 'the private life of cows'. It was really interesting, but would prefer to have watched it during the day!

Mum has left me a few jobs to do, so i'll have a bash at doing them. Not too sure i'll get them done though.

* dishes
* empty one case of clothes in the hall and take them upstairs into the bedrooms
* empty cat litter
* call or text my friend to try to confirm she coming to visit when mum is away
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
BOOKED FOR open SUGERY ON 9TH NOVEMBER

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8584
   Posted 9/13/2010 5:24 AM (GMT -7)   
*hugs*, Ivy. Don't worry at all about not posting; as long as you continue to make the threads, we shall post :p

I had a dreadful night, but it was probably my own fault. Ate things like spicy nuts, a bag of dried mango, etc. I got a lot of gas in the evening, but it wasn't until after I'd gone to bed that my stomach rebelled on me big time.

I'll try to eat more carefully now on. I'm gonna try an experiment for two weeks where I don't eat normal dinner, but make my own, smaller, meals such as eggs on toast, soup and a roll - that kind of thing. (Any additional ideas appreciated! :-/)

In the meantime, it's been a productive morning for me today, amazingly enough. Saw my GP. Also managed to reply to somebody I should've replied to earlier. (Have a dreadful habit of putting off replies that I know instinctively will be time-consuming :-/)

I mostly talked about the psychologist appointment with my GP. Won't go into everything, but long story short he was more pessimistic about my chances of qualifying for DLA (Disability Living Allowance). I told him I was scared about getting sucked deeper into the welfare state if I moved out (DLA, housing benefit, council tax benefit, etc.) and he understood that. He thinks I'd probably be better off staying at home and seeking to get back into voluntary/part time work, as preparation for eventual full time work. I would love to have my own place, but there are drawbacks: claiming more benefits at a time when politicians are spouting even more rhetoric than usual about cutting the welfare state and targeting the long-term sick; not being able to afford to keep and run a car, etc.

Anyway, TLCs...

*accompany parents for weekly food shop; try to choose suitable foods for the week ahead
*feed fish; clean tank if I have the energy, which isn't very likely
*look at Vale Volunteers; see what volunteer jobs they have on offer

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/13/2010 6:47 AM (GMT -7)   
Well I am due to go back to work this Thursday, so I have an appt to get my nails done, then afterwards an appt to get my haircut. Today should be a pretty easy girly day, so actually looking forward to it.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/13/2010 6:29 PM (GMT -7)   
Yay Nanners for girly days! Not working means my nails grow out, and they're really pretty now...if only I had money to go get them painted...

NCOT, mine usually bothers me at night. Doesn't matter when I eat, but in the middle of the night, or right before I go to bed is the worst time for me. Do you eat hash browns? I make them with eggs and a little cheese...yum!

Choc-are you excited about mom being away for a while? Having a friend over sounds like a fabulous idea!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8584
   Posted 9/14/2010 5:42 AM (GMT -7)   
Becky, same here. Evenings/nights = the worst time of the day for me, no matter how I eat throughout the day. Between 8pm - 12pm tends to be the height of feeling awful, but if there's a delayed reaction - as there sometimes is - then I will have a really bad night.

I've eaten hash browns in the past, but not had any for a long time. You have made me want to have hash browns again, though - love things like that <_<. Maybe I will make myself some hash browns and eggs for dinner soon.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/14/2010 5:52 AM (GMT -7)   
Ugh, now that I've thought about it, I'm nervous about the dentist. I haven't gone since I had the blood clots and have been on blood thinners. I still take aspirin daily, so I bleed more than normal, and I'm worried they'll hit my gums and make me bleed. I really need to stop thinking about it...

I made hash browns last night after telling you that...hehehe. I'm bad and put onions in them, which I shouldn't, but I can't have them without onions! They (onions) make food race through me...hopefully that'll calm down before I have to sit in the dentist chair
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/14/2010 3:56 PM (GMT -7)   
Good luck at the dentist, Becky. Thinking of you.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~
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