DOES REMISSION EVER HAPPEN FOREVER?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

prayhimwell
New Member


Date Joined Sep 2010
Total Posts : 11
   Posted 9/14/2010 8:00 PM (GMT -7)   
When I read all of your stories I want to hug all of you! Is anybody in forever remission? The more I read the more I wonder if my son will ever find a medication that will put him in remission.After eights month's on Humira I am scared.  He is working and has cobra for now.  How do you pay
for everything the test, rx, Dr. appts.  We are average people who always had inusrance and took it for granted.
He bought  a house in 2007 (no equity in his house) and I hate to see him ruin his credit at a young age.  So I quess we will just put
the rx, hospital etc on our credit cards sell our house untill everything runs dry and let him try to keep his credit??????????
How do people do it?  If you have no money to buy medicine do people just do without? What if you need an operation or colonoscopy
will the hospital take you with no insurance?  He is employed and cannot qualify for assistance when the cobra runs out. sad

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 9/15/2010 3:21 AM (GMT -7)   
Simply put - NO it doesn't. He may have long runs of remission if he's lucky but this darn disease always seems to rear its ugly head again. I was in remission for over 20 years, then I had a very very bad flare because I wasn't on any meds that whole time.

I'm sorry I can't address the no insurance issue, my DH has really good insurance through his union so I don't pay alot out of pocket. I'm sure someone will be along to answer your concerns.

tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 9/15/2010 4:21 AM (GMT -7)   
If you asked me 6 months ago, I'd have said yes and I'd have been dead wrong. But the answer is definately not. I got 7.5 - 8 nice, solid symptom-free years. Definately still on meds the whole time. Had a flare-up and found out my Crohn's has been active, but not giving me any problems. Right now, it's symptomatic, but still under control with my meds.

As far as insurance, any way that he can get it through his job? He might be able to apply for coverage as an individual and they may cover his Crohn's with a 1 year waiting period and higher fees (sucks, i know). I'd recommend calling some agents for those "free quotes" and seeing what their advice is. Look into the high risk pool, insurance. It will take a LOT of work, but you should be able to get it...see if he qualifies for insurance through the company you guys have it with now. Some places offer you insurance that might not be as comparable coverage, but it's something and will cover thing big things. I was on an awesome PPO in grad school and when I finished, I was offered to stay on their personal HMO plan (at a higher fee) and I don't think the prescription plan was great. But it covered something.

What insurance is he on?

For me, I've had to follow insurance wherever it's offered...grad school very far away because the one close to home had crummy insurance, taken a residency based on the insurance as well as the program. Every decision I make in life is governed by insurance...Getting married soon, so hopefully it won't be a problem anymore.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/15/2010 6:25 AM (GMT -7)   
Unfortunately he might need to sell the house. Do not put things on credit cards, and do not distroy your own credit and finicial wellbeing for him. Because since he is the one that is ill, there is credit relief or least a better chance of repair for him.
Do you mind sharing what he does?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/15/2010 6:36 AM (GMT -7)   
I have to agree with all the above, and sadly tell you "no" there is no remission for life. I like one of the others enjoyed a nearly 20 year remission at one time, but unfortunately I was dumb and did it without meds. My remission ended with an emergency surgery and another only 3 years later.

I agree with Navy, do not go into debt for his medical expenses. There are assistance programs with many of our med providers that could help him get his meds at a discounted rate. You also need to remember that many of the members here are really sick. The ones that have reached remission usually are not on here as they are out living their lives. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

T-Missouri
Regular Member


Date Joined Jun 2010
Total Posts : 27
   Posted 9/15/2010 7:49 AM (GMT -7)   
Have you ever head of Humira Protection Plan? That is what I have. It is on top of my regular insurance. I only pay $5 for my humira every month, other wise it would be $50. It is a great option, I would check it out if. Oh and it is FREE!!

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 9/15/2010 10:16 AM (GMT -7)   
Well, my dad was diagnosed with proctitis (in the rectal area and 6" up). He suffered on and off for years. about 15 years ago his symptoms just stopped. He's only had tiny bouts say after his heart surgery or something traumatic. This has cleared up with a *week* of steroids.

Also my neighbor down the street had UC all his life. Sometime in his older years is just stopped flaring and he's been well for years and years and years.

So, it does happen for some, maybe not "lifetime" but I think 15 - 20 years is pretty amazing. (I'd love just ONE year of remission right now! ;-) ). It also seems like it happens in older years, say 70ish. I think that the people on here posting are the ones who are the worst off, which is why we seek the support. I believe there are a bunch of diagnosed people that live relatively normal lives without a bunch of medical care.

However, if he's not lucky enough to go into remission, it is possible for him to get insurance NOW. I have insurance through the state's high risk insurance pool. If you check healthcare.gov that will show you your options. As far as the lifetime maximums, I'm about a $30k a year patient... So far I've been ok. I am 42 though, so older than him by a lot. I am just hoping that as time goes on the lifetime maximum will be taken away. It's not fair... That's the point of insurance! I know, they've got to make $$ as companies, but then healthcare needs major help ...

Oh, but I completely agree with others, don't use credit cards! Most of the hospitals and doctors offices will set up payment plans and that's much less than the credit cards will cost.

Post Edited (sr5599) : 9/15/2010 11:19:38 AM (GMT-6)


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8552
   Posted 9/15/2010 12:12 PM (GMT -7)   
I have to agree with all the above, and sadly tell you "no" there is no remission for life. I like one of the others enjoyed a nearly 20 year remission at one time, but unfortunately I was dumb and did it without meds.

But maybe if you'd been on meds the same thing would have happened anyway?

20 years of remission is a hell of a good run. I'm sorry that it ended as traumatically as it did. But I just can't really buy the fact that if you'd been on meds you'd have been Crohn's free for the rest of your life.

Which basically is my answer to the TC: No, there's no such thing as a lifelong remission. Or maybe there is, but I have never heard of anybody who has had such a thing. Btw, I do hope you sort your son's insurance issues. Not being from the US, I don't know enough about it to give advice, but hope that others' advice has helped you.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/15/2010 2:54 PM (GMT -7)   
I have heard a doctor say it is possible to never get sick again after a resection.
In this forum, we might not hear as much from such lucky people because they don't have as much a need for our forum.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/15/2010 4:09 PM (GMT -7)   
NCOT I think I would still have eventually flared, but I do think if I would of stayed on the meds maybe things wouldn't have been SO severe. I was in a dangerous state with the obstruction I had. Also, was told afterwards that since I had had surgery I no longer needed meds. Well what do you know, I ended up with another resection only 3 years later. So now I am always on meds.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

yohimbe
Regular Member


Date Joined Aug 2010
Total Posts : 109
   Posted 9/15/2010 10:51 PM (GMT -7)   
You increase your chances by not eating any forbidden foods, alcohol, avoiding stress filled life.

But more important: monitor yourself for the beginning of a flare (diarreah, distension, pain) and immediately, and I mean immediately start a hyper aggressive program to stop it. Made the mistake of letting it go with an unagressive GI and now, after two hospitalizations for blockages will be going into surgery next week.

Was in remission 1995 to 2004, 2005 was bad but recovered, and remission 2006 until 2009. And now it hit me good.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8552
   Posted 9/16/2010 5:21 AM (GMT -7)   
@Nanners - That's always possible, of course. The meds might have tempered the severity...

Funnily enough, I did come across an article recently which mentioned silent disease progression, and how obstructions, fistulas, etc. can come out of nowhere. I got the impression it's a bit of a medical mystery why it happens, but happen it definitely does. I personally find it a bit spooky, but it would encourage me to stay on a maintenance med even in total remission, "just in case". If you're interested, I can dig it out although it's only a small part of the overall article.

and I mean immediately start a hyper aggressive program to stop it

I agree with that in theory, but in practice it's not always doable. Especially on the conservative, cost-cutting NHS. They'll be doling out the 5-ASAs and refusing Remicade for many more years yet.

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 9/16/2010 12:09 PM (GMT -7)   
just because you're on meds doesn't mean you won't flare. in my experience with my own disease, being on meds gave me the false sense of security to eat things I shouldn't have. this probably caused the disease to become more and more severe before it flared up bigtime. i think if you do the meds plus mad conservative diet, you will have the absolute best results. i also think it's possible to be med free for some people.
Crohn's diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Low-dose naltrexone since 7/5/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 9/16/2010 3:38 PM (GMT -7)   
PRAYHIMWELL, doesn't the new health care legislation forbid companies rejecting patients for pre-existing conditions? Does that mean that your son might be eligible for insurance, but can't afford what is offered?
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (6g/day), Sulfazine (1.5 g/day), Prevacid, vit. D (20K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

Iram
Regular Member


Date Joined Jul 2003
Total Posts : 145
   Posted 9/16/2010 7:54 PM (GMT -7)   
Nope, sorry No, happily lived after (resection). Once you get it never goes away, it is a life time thing.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/17/2010 10:24 AM (GMT -7)   
kazbern, that is not in existance yet, and unforunately not all jobs offer insurance.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 7:16 AM (GMT -7)
There are a total of 2,733,449 posts in 301,122 threads.
View Active Threads


Who's Online
This forum has 151259 registered members. Please welcome our newest member, dolly23.
323 Guest(s), 5 Registered Member(s) are currently online.  Details
tickbite666, Jean123!, bdavis, straydog, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer