Diarrhea-How many times/day?

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WantRelief
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Date Joined Feb 2006
Total Posts : 261
   Posted 10/26/2010 3:31 PM (GMT -6)   
Just wondering what is an average number of bowel movements that you experience on a typical day?

kazbern
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Date Joined May 2010
Total Posts : 7463
   Posted 10/26/2010 3:44 PM (GMT -6)   
I've been keeping track recently. I don't have D, but here is my record going back 5 days. Counting backwards from today ==> 1,0,0,4,3.
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

Aces High
Regular Member


Date Joined Aug 2010
Total Posts : 95
   Posted 10/26/2010 4:37 PM (GMT -6)   
Anywhere from 4-6 times a day (not all D, but sometimes). On bad days 7 or 8. Does the majority of it happen in the morning for you guys? I have mine down to a routine basically....wake up, go. Eat breakfast, go. An hour later, another one. Etc. Im Waiting for 6MP to kick in and start working so I can get some relief. I'm seeing my GI doc friday, and might ask to put on steroids so I can get some relief...

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/26/2010 4:48 PM (GMT -6)   
Normally about 4, on bad days like right now upwards of 12 or more.... Having said that, Im so used to having
diarrhea, that I wouldn't like it if I couldn't go!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

GDen
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Date Joined May 2009
Total Posts : 703
   Posted 10/26/2010 4:52 PM (GMT -6)   
I had to keep a log for the first part of my Cimzia study and it usually ranged from 6-12 per day. Sometimes it seemed like every 30 to 60 minutes. Nothing but D.
Cimzia, Asacol

grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 10/26/2010 5:13 PM (GMT -6)   
This sounds really bad to put in writing but I average 10-12 per day. Yesterday was a bad day and I went over 20 times. I take 1-2 immodium a day, but all it's been doing for me lately is turning it from water to more of a pudding consistency.

I think I'm trying to flare, but so far the Humira is keeping it to a manageable level. No gut pain and joint pain hasn't gotten any worse. Also haven't lost any weight and that is usually my first sign.
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, Glucosamine, D3, calcium, potassium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 10/26/2010 5:21 PM (GMT -6)   
on good days about 5... on bad days about 10...usually all in the morning to mid afternoon...when it gets bad and I take imodium it backs me up for a day or two and than I pay for it.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Remicade infusions Prednisone, Colestipol, Nexium, Propranolol, Vivelle patch.
Tried Imuran & MTX

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/26/2010 5:36 PM (GMT -6)   
I think 35-50 when I was at my worst. Maybe more. There would be a few hours each morning where I wouldn't even have time to wash my hands before I was running back to the toilet, and that, as I said, could last hours :-(.

Better now - the worst I've been in the last year or two has been 16, and usually, now, I'd go somewhere between 3-8 times daily. Rarely liquid now, either.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10339
   Posted 10/26/2010 5:52 PM (GMT -6)   
I've been doing well lately but when things were bad, I could go 15 or more times a day. I wouldn't say I would have D 15x a day because half the time I would run to the toilet and sit there with nothing coming out but I had to go to the toilet to relieve the feeling that I had to go. Sometimes it would be a bit of blood or bits of who-knows-what but not D. Bathroom trips on a bad day, I could have 20. D, I probably only have a few times out of the 20. I find when something comes out it's a relief because at least I've accomplished something other than passing a little blood and skin.
March 2007: Diagnosed with Mild Proctitis - Canasa as needed.
August 2008 - December 2008: FLARE & Anemic - Started Asacol!!
January 2009 - December 2009: REMISSION!! Asacol (9) + Canasa 2x Daily
December 2009 - January 2010: FLARE!! Asacol + Prednisone + Canasa
February 2010 - April 2010: Colazal + Prednisone + Canasa
May 2010 - June 2010: Lialda + Cort Enema + Prednisone : Colonoscopy: Mild / Moderate Active Pancolitis
CURRENT: DOING OK! Prednisone, 6mp, klonopin, Canasa + Vitamin D

Becktoria
Regular Member


Date Joined Oct 2010
Total Posts : 321
   Posted 10/26/2010 6:12 PM (GMT -6)   
I usually suffer C and so it is anywhere from 0 to 2 a day. During this last flare up I had D 15 times a day for a couple weeks. Neither is fun. Anxiety seems to increase my urgency... whether I am C or D...

B
DX with Crohns in 1998 at age 20
Experienced severe weight loss, anemia, stroke, clotting, seizures, internal bleeding, fissures & an abcess requiring surgery in 1998
Started 75mg Imuran shortly after DX (+ vits) & still on it today(now 150mg), then I was in remission for almost 12 years!

NOW: ....in a flare-up, tapering pred. (at 35mg now) and began Humira October 18/10

Post Edited (Becktoria) : 10/26/2010 5:23:26 PM (GMT-6)


WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 10/26/2010 7:56 PM (GMT -6)   
Ok...another questions, so for those of you who go >4 times per day, would you say you are flaring or is this just normal for you?
34 year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Malignant Melanoma in 2000.
Illeocolonic Resection 1/08 (18 inches of terminal illeum, illeocecal valve, right colon and appendix)
Current Meds: Pentasa, Vitamin b12 injections, Vicodin as needed.
November'09 colonoscopy shows reoccurance at anastamosis and active disease in sigmoid and rectum

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/26/2010 8:09 PM (GMT -6)   
Normal for me, though the amount of x per day rises with tummy discomfort so I suspect I'm still symptomatic, no matter what positive noises the docs make about my Crohn's just now.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 10/26/2010 8:21 PM (GMT -6)   
Normal 4-6+, no diarrhea, quick and usually small amount at a time. Had colonoscopy today which showed no inflammation or active Crohn's so this is my normal. I think my Doctors think optimal is one but for me it is a non issue. If I have no abdominal pain or urgency that is more important. Think it is more of a habit as if I am away from home where the bathroom facilities are limited I have gone once per day without any discomfort.

58 yr. old F dx. CD 07/07
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 10/26/2010 8:26 PM (GMT -6)   
I go usually 4-6 it is usually loose like a goose then 1-2 of those then it is pure bile and mucus, I don't think it is normalto go like that, evan if it's the cd talking it still isn't normal to go like that, it's not healthy, but I also agree if I didn't go I would be in so much pain, I have to get rid of that night after bile, if I go somewhere if I haven't  gotten rid of when i have to go I have to go right now, can't hold it but for a minute of two

Becktoria
Regular Member


Date Joined Oct 2010
Total Posts : 321
   Posted 10/26/2010 8:30 PM (GMT -6)   
@ artist guy- can u expand on your bile comment? i had a lot of episodes of green mucous during the summer when my flare was starting... i get white/yellow mucous when flaring usually but the green mucous scared me... when i asked my gi she had no idea what it was or what it meant.... any more info on this? thx

B
DX with Crohns in 1998 at age 20
Experienced severe weight loss, anemia, stroke, clotting, seizures, internal bleeding, fissures & an abcess requiring surgery in 1998
Started 75mg Imuran shortly after DX (+ vits) & still on it today(now 150mg), then I was in remission for almost 12 years!

NOW: coming out of a flare, tapering pred. (at 30mg), on Imuran & Humira(Oct 18/10)

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 10/27/2010 8:25 AM (GMT -6)   
I do not suffer with d but more with c. I still go at least once a day, but the average is about twice a day. If I eat the wrong thing or have too much stress that can go up to 6-8 times a day. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/27/2010 9:15 AM (GMT -6)   
I think the docs and I have agreed 4-5 is my normal and I sometimes think thats down to them removing
the ileo-cecal valve during my first resection. So when that number starts to increase, it's a fair indication
of disease activity. That's why I'm scheduled for a colonoscopy next week... Lucky me!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 10/27/2010 12:04 PM (GMT -6)   
5-10 times a day.  Totally liquid, and normal for me.  I also take up to 16 imodium a day.

Amz
Regular Member


Date Joined Oct 2010
Total Posts : 155
   Posted 10/27/2010 12:30 PM (GMT -6)   
hi, i have not been diagnosed with crohns as yet, but my average day is 5-7 times a day, other days not at all. i never go just once or twice a day

take care
amy
“The more serious the illness, the more important it is for you to fight back, mobilizing all your resources-spiritual, emotional, intellectual, physical.”

Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 10/27/2010 3:31 PM (GMT -6)   
When it was really bad it would be 8-10 times a day with constant cramping even with 2500grams of pentasa a day, rediculous amounts of fiber, omega 3, etc. It wasn't diarrhea though it was just not all be removed. Now 1-2 times a day, 750-1250mg of pentasa at night and minor cramping.
Medication (fiber and probiotics too)
Pentasa 1250mg: for Crohns disease
Fluoxitine 40mg: for crohns and anxiety
Ativan 0.5mg: PRN for insomnia related to anxiety
Focalin XR 20mg: for focus issues related to insomnia
A mess on paper but know one knows anything :)

mirowpl
Regular Member


Date Joined Nov 2009
Total Posts : 335
   Posted 10/27/2010 11:13 PM (GMT -6)   
when not flaring I am a once a day guy. when flaring I am a 4 or more times a day. But rarely is it D. Also, when flaring, i suffere from constipation for a few days which is miserable for me. I have had C for the past 4 weeks....

DanaGrantham
New Member


Date Joined Nov 2010
Total Posts : 2
   Posted 11/7/2010 1:50 AM (GMT -6)   

I have not been diagnosed with Crohn's but HAVE been diagnosed with lymphocytic colitis (which the doctor's cannot seem to get under control for me) and have upwards of 35 to 65 BMs per day on most days.  Very rarely I have only 15 to 20 BMs per day.  It is always the dreaded D!!!  This disease also causes fecal incontinence and major leakage which is a major problem when you have loose watery stools.  There just is no way to hold it back when it is coming!!!  This has been going on for over 3 years now.  I have had the disease for approximately 8 years but not this bad in the earlier years.  It went undiagnosed until a few years ago because they did not do biopsies during colonoscopies previously so I ended up changing doctors and my new doctor did the biopsies and found my problem.  I have tried every medication known to man it seems with no relief.  I also have constant abdominal pain which never seems to subside along with other pain from RA and fibromyalgia among others.  It is a miserable life cry !  Last year I had to have my gallbladder removed which only worsened the problem!!  Had to seek disability this year as I am pretty much unable to leave my home except to go to the doctor's office.  Was denied disability on the first attempt and then approved on appeal.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/7/2010 2:39 AM (GMT -6)   
Oh, Dana. That sounds completely miserable, especially as it has gone on for so long.

I can't believe they denied you disability the first time! How were you supposed to work?! I remember going that frequently- you can't even get your hands washed before you're back again, so how were you suppoed to earn a living?! I'm upset for you, but glad it has been resolved now.

It's great to meet you. I don't know much about lymphocytic colitis: is surgery an option for you? Or a stoma?

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

DanaGrantham
New Member


Date Joined Nov 2010
Total Posts : 2
   Posted 11/7/2010 4:23 AM (GMT -6)   

Hello Ivy.

 

It is nice to meet you too.  I too couldn’t believe that I was denied disability the first time.  My doctor was furious but he said he was not at all surprised either.  He referred me to an attorney that was very compassionate and she worked very quickly to get my appeal approved.  I originally filed my first claim for disability on November 27, 2009 and was denied by the end of February, 2010.  A week later I had my appointment with my GI doctor and he referred me to the attorney which I called the same day and she seen me a few days later.  She handled everything for me and I didn’t have to focus on anything other than my doctor appointments.  It was a huge stress reliever.  My attorney and I emailed each other every month to keep each other informed on what was going on.  I told her everything that was going on with the doctors and she told me what she was working on with my case.  On August 16, 2010, she sent me an email telling me that my claim had been approved.  I was so shocked that I just sat and cried for hours.  I couldn’t believe that I had been denied to begin with.  It made me feel as if they didn’t believe I was sick.  I spend so many years trying to find out what was wrong with me, and having doctors tell me that I was fine and it was probably just IBS or something. I had started to believe it was all in my head.   I was thrilled just to have a diagnosis even though there is no cure.  Then to have them deny my claim so quickly, it was like a slap in the face.  I just couldn’t understand it.  I know that there are people out there milking the system and getting disability when they are fully capable of working but I am certainly NOT one of those people.  I would not wish this disease on ANYONE…not even my WORST enemy!!!  I even put off filing for disability hoping it would get better.  The doctor tried to get me to file in July 2009 but I refused and tried to keep working.  I told him that I could make WAY more money on the job than I could on disability!!!  I had been working for the past 14 years as the firm bookkeeper at a large CPA firm and had a very good salary.  However, it was a very stressful job and my doctor felt as if the stress was too much and was playing a negative role in my medical conditions.  My job was 60 miles from home and I was unable to make the trip so I was even trying to work from home instead of filing for disability.  But by the end of November, I came to realize that it just wasn’t going to work out and I gave in and filed the claim.  I would give anything in the world to be able to get better and go back to work.  It is really hard to adjust to living on a disability wage and even harder to just be at home all the time and not being a productive member of society.  My husband’s job has cut his hours back and we are just barely getting by.  It is really hard but we will manage.  I cannot think of any job that I could possibly hold down at this point unless maybe it was a job testing toilets!!! LOL

 

As far as surgery goes, because this is a fairly rare disease there hasn’t been much research done.  Surgery is not recommended at this time.  My doctor said that he doesn’t even have literature in the office about the disease because it is so rare.  Most people that have the disease do well on Entocort but as my luck would have it; the Entocort did not help me at all.  I have been taking it for over a year now ($953 per month) and we have finally stopped it because of the long-term effects and to see if it was making any difference at all.  Since I have stopped, there has been absolutely no change in my condition, so it was doing nothing for me at all.  I have also been on multiple other medications which also did not help.  My doctor has now started attending conferences concerning lymphocytic colitis and is discussing my case with other doctors all over the country to come up with other options to try.  Surgery will be a last resort.  On top of all that, I am newly diagnosed with seronegative rheumatoid arthritis and I am 4-weeks into Methotrexate and taking prednisone and Percocet for pain.  My mother has severe RA and takes Methotrexate and Remicade.

 

My 29 year old daughter suffers from Crohn’s and is in remission and doing really good right now.  So at least I have that to be thankful for.  She was unable to work for three years before getting it under control, was put on too many medications for all her medical conditions (she has many also), which caused her platelets to drop to 4 and she almost died and was hospitalized for a month, but is now working and doing great.  She has since switched doctors from the one that over medicated her to the same GI doctor that I see.

 

I am really sorry about posting such a long message but it really feels great to vent and get some of this off my chest.  Thanks so much for listening.

 

Dana


misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 11/9/2010 9:54 AM (GMT -6)   
AcesHigh: I am the exact same way!!!! D first thing in the morning, eat breakfast, go again. Then get to work about an hour later, go again (sometimes D, sometimes not).


I go at LEAST 4 times a day, on average about 4-10 times. I don't necessarily have D every time, but I can tell you I have not had a fully solid bowel movement since being diagnosed in 2008.
28y/o F, diagnosed with Crohn's Disease at 25 y/o , 2000 units of Vitamin D , 1500 Units of Calcium
60mg of 6-MP once daily since Feb. 2010
 
 
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