Anyone else have problems with Carrageenan?

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janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 1/1/2011 4:47 AM (GMT -6)   
By sheer luck I discovered recently that Carrageenan causes me major problems. A quick googling gave me very little information except the SCD diet seems to be carrageenan free.

I'd been eating ice cream to keep up my weight, and all of a sudden the brand I bought started making me uncomfortable. I re-looked at the ingredients and observed that the small company I favored had recently added it to the product.

Upon looking through other ice creams, then looking hard at other products I've realied it's pretty much in everything processed. I don't eat much processed foods, but I'm now finding I have to be super careful.

Anyone else? There are some pretty good studies showing it can cause UC, along with a lot of propoganda from the carrageenan industrying saying it doesn't. Apparently it sits at the FDA filed under "generally recognized as safe". It ain't safe for me and I find it very disturbing it's in practically everything.

I find this both interesting and depressing!! But I'm happy I found a culprit in my diet.

There is very little information about it and how people react to it on the web. Is it just me?
happy new year!

mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 721
   Posted 1/1/2011 6:00 AM (GMT -6)   
I've never done the research to see if I have an issue with it, however someone I work with recently had his son diagnosed with Crohn's. They did discover that his son has a real problem with carrageenan. Once they removed it from his diet, the flare quickly subsided. I guess I should start looking closer at what I'm eating again.
Matthew McKenna,
Joey's dad.
Crohn's Disease and Guillian-Barre' Syndrome.
6MP and a few of their friends.

"I'm just along for the ride."

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 1/1/2011 6:24 AM (GMT -6)   
It was luck for me. My diet is pretty regimented, and I was feeling good and then all of a sudden WHUMP. I'd noticed a few months ago that I could not get over Candida, without taking the Carrageenan out of my diet. Within a week or so it was finally gone.

Totally forgot about the issue (although I continued only eating the things which were carrageenan free), never looked up Carrageenan after I noticed the relationship between it and candida, just cut it out.

Then the sudden onset of symptoms and I thought to look at my ice cream, which was no longer carrageenan-free. Whoa.

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 720
   Posted 1/1/2011 9:31 AM (GMT -6)   
I have a problem with it. I figured it out because I used to eat a lot of ice cream and Coffee Mate. After drinking a lot of coffee and thinking it was the coffee mate but not specifically carrageenan, I also found it in my ice cream and then a light bulb went off.

I can only find one brand of ice cream where I am that doesn't have it in it. I think it is creepy stuff!
Diagnosed with Crohn's in 1998, father has UC we were both diagnosed at 20 yrs old.

Meds ~ Sulfasalazine 2/2xday
Supps ~ Jigsaw Essential Blend Probiotics, psylium seed, SRT magnesium, D3, K2, Calcium/Boron and multi-mineral. Following modified Fodmap diet.

Previously on Remicade, stopped Humira after 9 months, wasn't working. No surgeries so far.

IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 2222
   Posted 1/1/2011 5:16 PM (GMT -6)   
This refers to ulcerative colitis but IBD is IBD and perhaps close enough for government work:

Encyclopedia of Natural Medicine by Michael Murray and Joseph Pizzorno, page 593:
"Researchers investigating ulcerative colitis often use carrageenan (a compound extracted from red seaweeds) to experimentally induce the disease in animals. In the initial experiments reported by Marcus and Watt in 1969, one-percent and five-percent carrageenan solutions were provided as the exclusive source of oral fluids for guinea pigs. Over a period of several days, the animals lost weight, developed anemia, had bloody diarrhea, and developed ulcerative colitis. These results have since been confirmed by numerous investigators and in studies involving diverse animal species, including primates."

The only major brand of ice cream that I know of which does not contain carrageenan is Haagen dasz
Male/59 DX ulcerative colitis Feb08, possible Crohn's colitis DX Mar10.
No Meds, allergic to Mesalamine. Psyllium seed + VSL3 especially helpful. Food journal instead of SCD.

Boswellia, E. Coli Nissle (Mutaflor), turmeric, fish oil, S. Boulardii, OLE, resveratrol, multivitamin, extra D3, K2, C, high gamma E, magnesium, DGL, phos choline, glutamine. Lots of vegetables & fruit (but no plums), no soda, no HFCS, no trans fat, no shellfish, tea instead of coffee, watch gluten, few processed foods, no carrageenan.
Nature created all of the locks, therefore Nature has all of the keys

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 720
   Posted 1/1/2011 9:07 PM (GMT -6)   
Breyer's Ice Cream does not have it either, at least the full fat natural versions. I think some of the lower fat or specialty flavors might have it.

That info above is scary and frightening that it is in so much food these days. It makes sense though because I can trace 2 flares back to times when I was on major coffee consumption and I always used a couple servings of Coffee Mate in every cup! I wonder what percentage solution 3 - 4 cups of coffee with 2 servings each of Coffee Mate in them equals!
Diagnosed with Crohn's in 1998, father has UC we were both diagnosed at 20 yrs old.

Meds ~ Sulfasalazine 2/2xday
Supps ~ Jigsaw Essential Blend Probiotics, psylium seed, SRT magnesium, D3, K2, Calcium/Boron and multi-mineral. Following modified Fodmap diet.

Previously on Remicade, stopped Humira after 9 months, wasn't working. No surgeries so far.

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 1/1/2011 10:50 PM (GMT -6)   
I wonder how much of the success of SCD is due to elimination of carageenan. Certainly some of it.

It's a hard one to diagnose, i found this by chance.

i did a little more reading it also increases the amount of interlukin-8, which is something that aggravates pyoderma gangrenosum, which I deal with - so I'm interested to see if totally eliminating it from my diet helos my healing --It's also stated to cause dyshidrotic eczema, according to the literature.

every single person on this board except the SCD'ers are consuming it I'd guess. Pretty scarey. I spent time at the grocery store trying to work around my dietary restrictions plus eliminating Carrageenan - it was hard.

Alot of posts on the internet referred to having problems with creamers being the way they figured it out!
strictures from adhesions from endo. Pyoderma Gangrenosum.
LDN 4.5mg since 5/09 - crohn's in remission.

IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 2222
   Posted 1/1/2011 11:15 PM (GMT -6)   
Besides eliminating carrageenan I believe much of the SCD diet success is because it is gluten free.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/2/2011 11:00 AM (GMT -6)   
I eat a little ice cream cup everynight. I looked at it and way down the ingredient list it has a little carrageenan in it. Doesn't cause problems for me at least. I am sure if I ate more it would, but I have been eating this little ice cream cup for years without problems. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 1/2/2011 11:31 PM (GMT -6)   
I'm also gluten free -- I really think just after a few days that really being militant with the anti-carrageenan diet is helping. I'm sure others like Nanners can eat it no problem, but for me it seems to be the difference between having internal swelling and not, which with my strictures is the difference between things getting stuck -- and not! I'm happy. I'll update this in a month.

still hoping to have some others weigh in.
strictures from adhesions from endo. Pyoderma Gangrenosum.
LDN 4.5mg since 5/09 - crohn's in remission.

notoseaweed
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/22/2012 11:17 AM (GMT -6)   
Yes!  Carrageenan affects me like a poison.  It makes me horribly sick with horrible lower abdominal pain, diarrhea, nausea, vomiting and near shock.  After I finally eliminated it totally from my diet along with all dairy, I'm fine.  But, the carrageenan affects me much worse than the dairy.  On a scale of 1 to 10 for really bad pain, the dairy is a 4 and the carrageenan is a 10. 
 
The really BAD thing about food labels is that carrageenan isn't always on the label when it IS included the food.  If it's in pie filling, for instance, from manufacturer A - - and manufacturer B buys it from A and uses that filling in his pie, he isn't required to list it on his final ingredient label.  The FDA should require that the A list is carried over to the B list.   Some prople out there who can't handle the carrageenan suffer needlessly when they unknowingly ingest it!  Not to mention the confusion that goes along with thinking that you can trust the labels when you really can't!
 
Here's an article about it - -
 
Also - google Dr Joanne Tobacman and read about her research on the subject.
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