New Kid on the Block / 1st Cimzia Injection

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HOF Crohnie
New Member


Date Joined Jan 2011
Total Posts : 5
   Posted 1/27/2011 12:51 AM (GMT -6)   

Hello Everyone,

This is my first time posting anything on a computer besides an email.  I was diagnosed with Crohns at age 19, and have suffered for almost 30 years. Just like many of you, I have tried many different medications with success on a few till my body builds up a tolerance, starting with Azulfidine, Imuran & Prednisone to the very recent change of Cimzia from Remicade (which worked well for almost 4 years). I have also had several bowel obstructions (too many to count) and 6 surgeries.

 

My question is what are the side effects of Cimzia (I didn't have many on the Remicade, just minor joint pain later in the day on infusion day), how long does it take before the Cimzia starts to take effect?  Right now I am so tired and my joints hurt so bad I can hardly get out of bed most days.

 

Thanks in advance for your help.

 

HOF Crohnie


krispy88
New Member


Date Joined Jan 2011
Total Posts : 13
   Posted 1/27/2011 2:00 AM (GMT -6)   
Ive only had small doses of cimzia in a local area with remaining inflammation while still on humira. Didnt notice any side affects thought.
Im 23, diagnosed with CD in 03/05
Loop Ileostomy surgery in 12/06
Diagnosed with Rectal-Labial fistula in 10/2006
Currently on Humira - 40mg, every 2 wks (syringe shot)
Have taken 6mp, Asacol (Mesalamine), prednisone(HATE!!!), Remicade, pentesa, Flagyl, Methotrexate, Imuran, Percoset, Sulfasalazine (created allergy reaction to sulfa)
Take daily dose of Align, Calc + Vit D, and Biotin
On SCD

HOF Crohnie
New Member


Date Joined Jan 2011
Total Posts : 5
   Posted 1/27/2011 2:39 AM (GMT -6)   
Thanks, that makes me feel better. I'll keep an eye on this and hope and pray I get as long of a stay as I did from the Remicade.
__________________________________________________________

I'm 49, diagnosed in fall of 1981 (Wow!!! so long ago)
6 Bowel Resections
Currently on Cimzia - 40mg, every 2 weeks (syringe injection) Oxycodone for Pain, Prescription Vitamin D,
Omeprazole for Acid Reflux, Acidophilus, Calcium & Multi-vitamin
Previously taken; Azulfidine, Imuran, Prednisone, Pentasa, Vicodin, Endocort, and many others.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/27/2011 9:30 AM (GMT -6)   
Hi HOF Crohnie and welcome to Healingwell! I don't have any info on Cimzia, but just wanted to welcome you to our little family. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

pmedic
Veteran Member


Date Joined Nov 2009
Total Posts : 1437
   Posted 1/27/2011 9:36 AM (GMT -6)   
Hello and Welcome! I have been on Cimzia for a couple years and for me, it took the full loading doses before I felt better. After about a year it started losing its effectiveness so we added Lialda and I have been doing well since! Here is to a long remission!!

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 1/27/2011 11:57 AM (GMT -6)   
I've also been on Cimzia for a couple of years. I don't have any side effects at all from Cimzia. The only thing I notice is a raised white area around the injection site for a day or so after the injection. That's normal - just the med taking its time to seep into the system. Good luck!
1 fistula with two tracts, crohn's colitis, limited to large intestine
Compounded budesonide suppositories 3mg/daily, Cimzia
Dx Osteoporosis 10/08 almost done with my 2 years of Forteo 1/27/09 - 1/27/11!! :-)

chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 1/27/2011 12:39 PM (GMT -6)   
I'm starting cimzia any day now. Just waiting on the homehealth nurse to schedule a visit to teach me.
Stephanie
dx April 2003, in remission 2004-December 2010
Apriso, dicyclomine, Entocort, Cipro, Flagyl, Percocet, Zofran
Severe Crohn's throughout the colon
Starting Cimzia soon

MaggieLou
Regular Member


Date Joined Apr 2008
Total Posts : 31
   Posted 1/27/2011 3:37 PM (GMT -6)   
I stared Cimzia at the end of June, 2010.  By July I had a terrible sinus/upper respiratory infection that lasted until I stopped Cimzia in October (I had take 6 rounds of antibiotics, but nothing helped).  I am currently is a terrible flare and am scheduled to have a colonoscopy on 2/08.  Have been through most meds, including Remicaide, Humira, Cimzia.  Don't know what the next step will be.  I have had Crohn's for over 37 years and I am sooooo done with this disease. 

Aces High
Regular Member


Date Joined Aug 2010
Total Posts : 95
   Posted 1/27/2011 4:02 PM (GMT -6)   
I just started Cimzia 3 days ago. I ended up just going to my GI's office and having one of the nurses there show me how to do the injections, I didn't feel like waiting around for the Cimzia people to schedule the nurse. It was super easy to do and little to no pain at all. Hoping it kicks in soon and I get some energy back
21 years old, Diagnosed w/ IBD 8/9/10. Dx w/ Crohn's 8/23/10. Mildly anemic 10/27/10.
Cimzia, Asacol 4800mg, 6-MP 75mg, Prednisone 10mg
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