Wellbutrin for Crohn's

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Margie63
Regular Member


Date Joined Feb 2011
Total Posts : 95
   Posted 2/7/2011 5:01 PM (GMT -6)   
Just wondering if anyone has actually tried Wellbutrin Immediate Release alone for Crohn's and what your results were. My 18 year old has been diagnosed in September and we have been on a rollercoaster, kidney stones, kidney infections, now taking 6mp. I hate giving her the immunosuppresants. Her hair is beginning to fall out and she has literally no appetite at all due to the 6mp. If it does not begin to improve her they will want to try Remicade. While I know people have had so much luck with it and that's great, these immunosuppresants scare me a little and I am willing to try a few other routes first if I could get feedback.

Thank you all in advance for your support.


Margie

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1650
   Posted 2/7/2011 6:21 PM (GMT -6)   
I've taken the slow release and it didn't help me at all, don't know about the immediate stuff.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, IBS, Colon resection Nov. 2010, now in remission
inflammator arthritis, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, pexeva (paxil), synthroid, cozar, advair, plaquenil, prednisone sometimes
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern

Margie63
Regular Member


Date Joined Feb 2011
Total Posts : 95
   Posted 2/7/2011 6:21 PM (GMT -6)   
Thanks for replying.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1650
   Posted 2/7/2011 6:28 PM (GMT -6)   
You are most welcome. Good luck-:)
d 1/09 with colitis sigmoid colon with some diverticular disease as well, IBS, Colon resection Nov. 2010, now in remission
inflammator arthritis, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, pexeva (paxil), synthroid, cozar, advair, plaquenil, prednisone sometimes
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern

cupcakespinkgal
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Date Joined Jun 2010
Total Posts : 720
   Posted 2/7/2011 6:35 PM (GMT -6)   
There was a thread on here a couple weeks ago about a few people that have had success with it. One person, I think their daughter has been on it for several years, in remission. I know on that thread they specifically said the Sustained Release and Extended release do not work for Crohn's it has to be the immediate release taken 3 times a day.
Diagnosed with Crohn's in 1998, father has UC we were both diagnosed at 20 yrs old.
Previously on Remicade, Humira - No surgeries so far

Meds ~ Sulfasalazine 2/2xday, 1.5 mg LDN, increasing at 2 week intervals
Supps ~ Culturellle, psylium seed, magnesium, D3, K2, Calcium/Boron, multi-mineral. Modified Fodmap/low fructose/no sugar - Greens & seeds everyday for sterols

jeanneac
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Date Joined Feb 2009
Total Posts : 1650
   Posted 2/7/2011 6:40 PM (GMT -6)   
I am not trying to encourage or discourage but you do have to be careful with antidepressants in younger people, many have black box warnings. Just FYI. I forgot to mention that in my earlier post.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, IBS, Colon resection Nov. 2010, now in remission
inflammator arthritis, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, pexeva (paxil), synthroid, cozar, advair, plaquenil, prednisone sometimes
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern

Margie63
Regular Member


Date Joined Feb 2011
Total Posts : 95
   Posted 2/7/2011 7:16 PM (GMT -6)   
Thanks so much everyone for your advice and support. I really appreciate it.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/7/2011 7:20 PM (GMT -6)   
Good point re the black box warning.
 
Wellbutrin may cause a decrease in appeite so wondering if that would be a good choice?  I have been on Effexor since last May and it makes you crave food..............I am going off of this med as I do not need to gain weight. smhair
I have a hubby with Crohn's and having a terrible time keeping weight on him.  It is a merry-go-round ride for him. 
 
I wish you luck with your daughter.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
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"If you can't change the world, change your world"

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 2/8/2011 11:28 AM (GMT -6)   
Ubob was using this on his daughter and having some success with it. For your daughters hairshedding she should add some Folic Acid into her med mix, that will help with the hairshedding. If the 6mp is making her nauseous, have her take it at bedtime. It was making me sick too and I switched to bedtime and the nausea went away. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10378
   Posted 2/8/2011 12:07 PM (GMT -6)   
I would love to try Wellbutrin, I read a post here a few weeks ago that sounded very promising. I am pretty stable right now with 6mp so I don't know if changing things would be a good idea but I will keep it in mind for the future.

Margie: Do a search, you may find the older topic, it had a lot of good info.
Co-moderator: Ulcerative Colitis
03/07: Diagnosis: Mild Proctitis | 08/08: Diagnosis: Pancolitis - FLARE & Anemic! Asacol (3600mg) + Canasa (1000mg morning/night) | 01/10: FLARE! Prednisone + Cortifoam + Asacol + Canasa + Rowasa | Currently: stable - Asacol (3200mg) + Canasa (nightly) + 6mp + Allopurinol + Prednisone + Ponstel + Klonopin + Ambien

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1650
   Posted 2/8/2011 3:55 PM (GMT -6)   
I loved the way I felt emotionally on Wellbutrin and I slept well on it too. It wasn't helping much with some of my pain or IBS situation and I switched antidepressants. Sometimes it's hard to know what is coincidence and what is a culprit when we aren't feeling well.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, IBS, Colon resection Nov. 2010, now in remission
inflammator arthritis, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, pexeva (paxil), synthroid, cozar, advair, plaquenil, prednisone sometimes
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern

Gumart1
Regular Member


Date Joined Jan 2010
Total Posts : 56
   Posted 2/8/2011 9:52 PM (GMT -6)   
Jeanneac, did you take your Wellbutrin in the a.m? From what I read, most people have insomnia as a side effect because it is a stimulant.
The recent post was sure an encouraging argument for trying Wellbutrin for Crohn's, but the possibility of weight loss would negate the drug as would the insomnia. I tried LDN but could not stand the sleeplessness, which resulted in a terrible flair for me. My doctor wants to do a top-down approach with Remicade, yet I've been holding out with no meds, though no major symptoms, for over a year. Need to find something soon...

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1650
   Posted 2/9/2011 9:19 PM (GMT -6)   
Yea, go figure for me to react differently from most. I slept well on Wellbutrin. Lots of other antidepressants give me insomnia. I think I took my Wellbutrin at lunch or in the a.m.

I hope you can find a good maintenance med. Most people on the forum recommend taking meds even when you are feeling good. The damage can be silent for a while until you get into a huge flare or have problems with strictures and such.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, IBS, Colon resection Nov. 2010, now in remission
inflammator arthritis, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, pexeva (paxil), synthroid, cozar, advair, plaquenil, prednisone sometimes
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern

JMB1
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/22/2011 10:15 AM (GMT -6)   
I am a 35 year old female and was diagnosed with Crohn's in 2009. Until this November had a very manageable case- was able to stay relatively symptom free by taking a daily dose of Tumeric and one Canasa suppository per week. This November I had my worst flare start and had me lose 18lbs (I am 5'7 and usually around 127 so REALLY was thin). A month in it was discovered I had salmonella poisoning which possibly is what kicked off the flare (but was missed for a month as the symptoms are so similar to Crohns). In January after a colonoscopy I was put on 40mg of Prednisone and 400mg of Asacol. This put me in remission for about 1.5 months but as I got tapered off the Prednisone the symptoms (mostly bloody stools and gas) started coming back (at 25mg). My doctor now wants to put me on both 6MP and Remicade and I am very nervous for both. I am especially interested in alternative medication options and especially these posts about Wellbutrin. I have never had any depression/anxiety issues so I would be looking to it solely to treat Crohn's. My doctor has never mentioned it. I want to do everything I can to avoid the more intense drugs (especially the Remicade) as I know once I start them I will be on them relatively indefinitely, so want to know I have explored all other options. I am also really needle phobic so the idea of having to have monthly IVs is NOT appealing, and I have heard the Remicade is really expensive. This whole flare and my doctor's desire to move to these more intense drugs for an indefinite time is especially discouraging for me as I had such a manageable case prior to this Nov and want to believe I can get back to that baseline. Maybe this is naive and unrealistic but I have always been super healthy, am very active, and want to believe my body can sort this out. If I do need to be on long term meds anything sounds better than the scary side effects and administration process of Remicade. I also hope to get pregnant in the next few years so have concerns about that and medications as well.

I would greatly appreciate any advice/thoughts on Wellbutrin. Are people on it taking it alone as the only med to treat their Crohn's or in conjuntion with other drugs? How long did it take to work on symptoms?

Thanks so much!

Jess :)

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 3/22/2011 10:35 AM (GMT -6)   
Actually very few people are on Remicade indefinitely. In fact, most people are forced off it becuase they develop antibodies to it and it's no longer effective - so most people WISH they could take it longer becuase it works so well. If you are really opposed to being on it for any length of time you could try it for a year and then once you are in remission request to come off and see if the tumeric and Canasa keeps you in remission.
34 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Reduced gluten and dairy.


Go Saskatchewan Roughriders!
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