Tired of sinus infections

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sickofitall
Regular Member


Date Joined May 2009
Total Posts : 226
   Posted 2/18/2011 11:03 PM (GMT -7)   
THis crap is getting old yall!  Going on 3 months of sinus infections off and on.  I'm immune to antibiotics at this point.   I'm still doing the netti pot like you guys suggested and it helps but is not really preventing new infections.  Problem is I'm on Cimzia and all of my coworkers have small children that get sick all the time.  Everytime even one kid gets sick, within 2 days I have it.  Even if the mom didn't have symptoms.  I work in a small cubicle area with 10 people in a tight work space.   I'm trying really hard not to get infected.  I don't touch my mouth or face all day, have sanitizer at the desk and constantly wash my hands.  I'm not sure what else to do? 
Current meds: Cimzia since 09/03/2010
Tried: Remicade, prednisone, sulfasalzine, lialda, antibiotics, imuran

29 yr old female w/ crohn's colitis and SEVERE leg pain

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/18/2011 11:08 PM (GMT -7)   
i know EXACTLY how you feel...i had horrible sinus problems for a long time...neti pot is awesome. doc gave me some other nose sprays, steroid sprays, inhalers and singulair- i didn't really use any of it. they shoved a camera up my nose and want me to go get an mri still...i've been feeling a lot better though...mostly seems to have resolved itself on its own...
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 2/18/2011 11:09 PM (GMT -7)   
Do you eat dairy? I've read from several people that once they eliminate all dairy from their diet, their sinus problems resolve. Feel better!

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 226
   Posted 2/18/2011 11:17 PM (GMT -7)   
Hmm yes I do eat dairy. Thats interesting. I'm probably going to call the ENT on Monday. Probably need to postpone my next injection too. I do use the steroidal nasal sprays too. Vitamins, green teas, echinacea, etc.
Current meds: Cimzia since 09/03/2010
Tried: Remicade, prednisone, sulfasalzine, lialda, antibiotics, imuran

29 yr old female w/ crohn's colitis and SEVERE leg pain

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 255
   Posted 2/19/2011 1:16 AM (GMT -7)   
Have you tried those drink mixes that are supposed to help you fight off colds? Is it called Airborne maybe? I'm on prednisone and my sinuses are constantly dripping because of it...I always have a Benadryl handy and it takes care of it. Makes me drowsy sometimes though and it wouldn't be very conducive at work :(

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 2/19/2011 1:24 AM (GMT -7)   
i dont know if this will help you But when I was around coworkers who were always getting colds I would use neosporin (bacitracin or your local store brand) in the ointment (NOT cream) and smear it inside my nose. I think maybe the triple antibiotic in the stuff would kill anything I might have breathed in. Since I am on Humira now I find I get sick much less often as compared to Remi..again I am no longer working now either so that could be part of it
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987



www.myspace.com/dragonfly137927

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/19/2011 7:12 AM (GMT -7)   
I'm on Humira and I have noticed that I get sinus headaches more frequently now, at least 1 every other week. I take tons of vitamins and also I take a Zinc vitamin. Knock on wood, I have not been sick (cold) all year.
Could it be the Zinc? I don't know but I'm going to keep doing what I'm doing. I just need to figure out how to get rid of thses darn headaches. I should try the Netti pot and see if that helps.
Good luck to you and I hope you find an answer.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

pmedic
Veteran Member


Date Joined Nov 2009
Total Posts : 1482
   Posted 2/19/2011 8:31 AM (GMT -7)   
I take the zinc lozenges and never get sick. If I am around someone with a cold, I wash my hands frequently and take a zinc drop a couple times that day and several times during the week. I think the stuff is awesome because before I started the zinc, I used to get sick alot!
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008

No surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions.
Been through MANY medications with mixed results
Currently on Cimzia, Lialda, Ambien (prn), xanax(prn) Bee Propolis 500mg twice per day.

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 720
   Posted 2/19/2011 11:15 AM (GMT -7)   
A few things......I agree with Dragonfly the Neosporin trick works good for me. I read it once as a tip of how not to get sick while traveling/flying. I always put some on a qtip and put it on the inside of my nose.

I know you said you are taking Vitamins but are you taking D3? That can really help fight of colds and flu. My mom is a kindergarten teacher and even as a healthy person would get sick every fall and winter multiple times because of being around sick kids all day. This fall she started taking D3 and she hasn't had a single cold.

I would also be really careful with things like Airborne and Echinacea, they are immune boosters and I have been told not to take them because they boost the immune system in the wrong way for some with autoimmune disease and taking the medicines we do. I have been told by my GI not to take those things and read an article once about how to boost your immune system to fight colds and flu and then it had a note at the bottom saying if you had an autoimmune illness to consult your doctor because you may not want to boost your immune system.
Diagnosed with Crohn's in 1998, father has UC we were both diagnosed at 20 yrs old.
Previously on Remicade, Humira - No surgeries so far

Meds ~ Sulfasalazine 2/2xday, 1.5 mg LDN, increasing at 2 week intervals
Supps ~ Culturellle, psylium seed, olive leaf extract, magnesium, D3, K2, Calcium/Boron, multi-mineral. Modified Fodmap/low fructose/no sugar

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 2/19/2011 2:20 PM (GMT -7)   
Here's an article written by someone who found that dairy worsened their sinus problems: http://ezinearticles.com/?Dairy-Products-and-Sinus-Infections---Is-the-Connection-a-Myth?&id=3540810
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, CoQ10, Betaine HCl
SCD since 12/01/08

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1008
   Posted 2/19/2011 2:39 PM (GMT -7)   
One of the side effects of Humira is sinus pain, I only had first set on injections 10 days ago and had bad sinus headaches for first 5 days. Then they went but today have come back but not as bad. Hopefully as I reduce down dose this week the side effects will be less, fingers crossed, and that it will start to make a positive difference.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 2/20/2011 4:18 AM (GMT -7)   
YEP!  I am with you on this.  I had to take 20 days of antibiotics for last infection.  When I started Remi last year I got a full blown sinus infection, took 10 days of Amox and felt better.  Made it all the way to January and just wasn't feeling right and couldn't figure out what was going on.  Turns out only the maxillary sinuses (lower ones over upper teeth behind the cheeks)  and 1 ear were infected.  I think I did not get the crap all out the first time.  Well as I finished the first 10 day run I was not feeling better, in fact some things felt worse, like my ear.  Did another 10 days and when it was all finally clear I then realized how bad I was.
 
I saw you try try the netty pot, I have tried to use the squeeze bottle version.  I could suggest taking a sinus or allergy pill as my docs have given me to help keep things a little drier to try and keep the infection risk down.  I also use flonase daily, for the same reason.  I think the infection got itself in deep before I realized it.  I am still learning about how soon to get to a doc when starting to feel rough.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Osteopenia DX July 2010
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
Caltrate-D 1000mg/day

wannaretire
Regular Member


Date Joined Sep 2010
Total Posts : 31
   Posted 2/20/2011 4:29 PM (GMT -7)   
sickofitall.............I have used Nature's Sunshine Sinus Support to get away from the antibiotics and yeast infections.  I guess with my immune system being on overdrive most of the time, I can get rid of the infection without the antibiotics.  I start with 3-4 tabs about 3x a day then work it back down.  It increases my d a little but sure helps the sinuses feel better.  Good luck with this.
 
sue
hashimoto's
fibromyalgia
glaucoma
and now CD
but otherwise a very healthy person!!

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 2/21/2011 8:51 AM (GMT -7)   
I am on remicade and I had horrible sinus issues constantly until my gi suggested that I take a zrytec every night.  I can't believe the difference!  I will still get the occassional sinus problem, but if I take a Mucinex-D it will knock it out.  Also if I feel a cold coming on, I take Zicam Rapid-Melts which has the zinc in it, and it never gets full blown.  I have 2 school age children and I teach in 4 different elementary schools, so I am exposed to EVERY germ out there and I have not had a full blown cold in years. 
 
Could you wear a mask over your mouth and nose at work?  That is the only other precaution that I could think of. 

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/21/2011 7:48 PM (GMT -7)   
i think airborne's a joke- they had to pay $20,000,000 or something for false advertising...
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 226
   Posted 2/23/2011 1:22 PM (GMT -7)   
I went to the ENT who ordered 10 days of Cipro to be followed by an Xray of the sinuses. He said Z pack's are ineffective for my sinus infection. It probably did not clear it thoroughly so the infection kept coming back. Strange thing though, I asked him why my ears were always popping or ringing. He looked at my ear canal and said it was inflamed and swollen to the point of closing. But no fluid, odd. Then I asked why I had developed large lumps in my throat making it difficult to swallow, he felt my throat and said that my larynx was swollen and what I was probably feeling was my thyroid. I've always had goiters but this change in my throat is recent since the sinus infections started. He said it was not swollen lymphnodes, which is what I thought it was. Just thought those comments were strange. THen I asked about how to best support my immune system since I am prone to these infections, he said I should not take any immune system boosting drugs, that they would be conterintuitive to the Cimzia. He also was happy I was using a netti pot and told me to continue using that. Yesterday I got a steroid and antibiotic shot and I already feel so much better. Also was told to continue Nasacort and mucinex D with the Cipro. Just hope the Cipro doesn't cause any flare up. Anyway thought I'd share! Thx for the support!
Current meds: Cimzia since 09/03/2010
Tried: Remicade, prednisone, sulfasalzine, lialda, antibiotics, imuran

29 yr old female w/ crohn's colitis and SEVERE leg pain
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