I'm the same, all levels are good, but my feet are like 2 ice blocks, evan in summer. I really feel it's combo, of dehy. and absorbtion, and just having cd. My right hand at night in bed falls asleep, or goes numb, I'm not sure, not every nite, 4 nights aweek.
mine started before I started any med's, I was med free. Thank god Ides put a name on it for me, I've never addressed this to gi. But I did to my gp and she never said a thing about pn. It seems there is nothing you can do for it, except wear wool socks( I do). We can go to mars without a problem. cure pn, no way, thats too much, too expensive.
I also have peripheral neuropathy. I started developing it last March while I was on Flagyl. Stopped taking it after 3 months of 500 mg 3x a day. Started with finger tips then feet. I take a B-12 shot once a month, plus 1000 mg B-12 orally, and just started taking a B Complex vitamin and 50 mg of nortiptyline HCL with a tylenol at bedtime. My fingers are just starting to feel better, but not the feet. I was diagnosed with Crohn's in November, 2009. It was a hard 2010, but am just now feeling like my old self. Except for my feet. I also am on Remicade, for 10 months now, and it has helped with my rectum issues which was the start of my problems(abcess), also 500 mg of Pentasa, prenatal vitamin and 50 mg of Imuran. The neurologist isn't sure if the neuropathy is permnant or not, and that we can go higher on the Nortipyline dose. It is very frustrating.