Bee Propolis - SCD

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dfdavedf
Veteran Member


Date Joined Jan 2010
Total Posts : 994
   Posted 6/10/2011 11:04 PM (GMT -6)   
You thought I forgot about you..but noooo
 
 
Letter # 1 from BTVC yahoo group
 
Esther,

I have no experience with either of these. What I do know is that Elaine strongly recommended AGAINST having the pollen in the honey, because, although it may be good for people without gut issues, it can trigger immune issues in people with those gut issues.

I can say that when I was initially on SCD, I had been using a local honey to help with allergies, and it seemed to work. After I started SCD, I had to quit using the local honey and go to filtered honey, as recommended, because my system was hyper-reacting to the local honey.

I am pleased to report that I now have fewer allergy issues than I once did (go SCD!). I have been able to resume using a local honey (I like supporting local beekeepers!). 

I would therefore treat any of these, if you decide to try it, with extreme caution, and be prepared to yank them at once.


 
 
Letter # 2 from same source
 
 
1. Is bee propolis legal? I know the pollen is not, but I didn't see anything about bee propolis.

"The properties of the propolis depend on the exact sources used by each individual hive; therefore any potential medicinal properties that may be present in one hive's propolis may be absent from another's, and the distributors of propolis products cannot control such factors. This may account for the many and varied claims regarding medicinal properties, and the difficulty in replicating previous scientific studies investigating these claims. Even propolis samples taken from within a single colony can vary, making controlled clinical tests difficult, and the results of any given study cannot be reliably extrapolated to propolis samples from other areas. "

I think I'd avoid it. I think you can get antioxidents from a less-varied source.
 
 
Bottom line, is it sure appears to be illegal and for sure I would not be taking it unless I was in full remmission and highly stable
 
Take Care and let me know whazz up
 
 
Pentasa (1,500 per day for the last 6 months), Vit D and B complex, fish oil and SCD vit. Entocort (6 mg and hoping to get to 3 next doc visit). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17837
   Posted 6/11/2011 1:21 AM (GMT -6)   
Well I'm sure glad that I don't do the SCD because my experiances with bee propolis has been great considering I was such a severe CDer...and my GI thinks it's a great idea too since it helps me as much as it does and he told me to take it indefinitely, also that it's 100% non-toxic (it doesn't build up in your system).

But besides the bee propolis and the other things listed in my sig that I take, I eat a completly healthy diet, no preservatives, regined sugar *use stevia*, fast-foods, processed foods and my diet along with the combination of what's listed in my sib (which also includes vitamin D for the last 2 yrs now) I am doing better than I ever have...still not complete remission (main issues are still some frequency and sudden urges) but much better than ever.

One more thing, I was very very severe when I started on bee propolis, so it's obvious that it is what helps me since I noticed improvements within 2 days.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

dfdavedf
Veteran Member


Date Joined Jan 2010
Total Posts : 994
   Posted 6/11/2011 7:37 AM (GMT -6)   
Of course the only thing that is important is finding something that works for you. It is great that you found bee propolis. And it is great that you tell people here about it. In fact if I was not doing SCD based on your input i would give it a go.
 
As we have all said, we need to figure out what works for each of us and there is no "one size fits all. "
 
SCD is working for me, so I will play by all of the SCD rules. But that is just me.
 
Thank you for sharing your great experience
 
Dave
Pentasa (1,500 per day for the last 6 months), Vit D and B complex, fish oil and SCD vit. Entocort (6 mg and hoping to get to 3 next doc visit). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17837
   Posted 6/11/2011 9:13 AM (GMT -6)   
I totally agree with you...key is to find what works and stick with it in the hopes that it will lead to remission (or at least a somewhat more managable life)....I think all we really have is eachother to guide us through this horrid disease. Doctors (unless they have the disease as well) really have not clue so for us it's pretty much all tiral and error.

The time and money we spend trying to feel human goes un-noticed I'm sure by docs and such but it's worth the sacrifieces we all have to make on many levels to try and get our lives back from IBD.


I'm so glad the SCD works for you, and of course I encourage people to keep trying until they find what works for them since it is such an individual disease...even my GI said that if banging your head against the wall 3 times makes your CD better then go for it, so in essence it really doesn't matter what it is (cuz there are some interesting things out there that people do to feel better) so long as you're able to find something.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

pmedic
Veteran Member


Date Joined Nov 2009
Total Posts : 1420
   Posted 6/11/2011 4:51 PM (GMT -6)   
dfdavedf- You are awesome! I never doubted you for a second! Thanks for that information! I am trying to find a happy medium as Pb4 suggests. The bee propolis help me with my bleeding issues and the SCD also helps so I am trying to do both as long as possible. Thanks for going to the trouble to find out!
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008

No surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions.
Been through MANY medications with mixed results
Currently on Cimzia, Lialda, Ambien (prn), xanax(prn) Bee Propolis 500mg twice per day.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 6/11/2011 5:08 PM (GMT -6)   
I am a happy medium person too. I go through stages though; when I'm really really sick, I take drastic measures and stick to a particular diet; when I feel a little better, I can try other foods and aspects of other diets.

Experts say we should eat according to symptoms and how we feel, so that is what I do. Unfortunately for pretty much all of my life with CD, I've had a modified diet, but I want freedom to eat with no more fear.

For me, this fear of certain foods is getting old.

dfdavedf
Veteran Member


Date Joined Jan 2010
Total Posts : 994
   Posted 6/12/2011 9:48 AM (GMT -6)   
Hey Roni
I think I have a different perspective, that has helped me.
 
When I quite smoking I used many tricks and techniques but one of the big ones was I never let myself think about having "just one". When I was really wanting a smoke I would force myself to ask "do i want to start smoking full time again". The truth is one is likly to lead to full time for me, so it is all or nothing.
I approach food choice the same way now. I never say to mayself "i bet I could have just one", I say "do I want to feel sick again". I am sure for some they can find the balance and can have a bit of the trigger foods without getting sick. For me it is easier to just never have any, just like smoking.
At this point in my life I am so sick of being sick, that no food even comes close to being worth it and therefore it is not a burden as there really is no decsion for me,
Dave
Pentasa (1,500 per day for the last 6 months), Vit D and B complex, fish oil and SCD vit. Entocort (6 mg and hoping to get to 3 next doc visit). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 340
   Posted 6/14/2011 4:24 PM (GMT -6)   
Hey, question for pb4 or whomever else has found propolis to work for them,

Do you take your propolis on an empty stomach or with meals? Does it matter?

Have you noticed a difference in the brands you use?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17837
   Posted 6/14/2011 8:00 PM (GMT -6)   
Hi Octobergirl,

When I first started out taking BP I used the liquid form from my local health food store, it tasted nasty but was worth it cuz I was in quite a severe flare with 30+ BM's daily and lots of blood...I noticed benefit by the next day (bleeding stopped all together and BM's started cutting down to about 1/2 what I was going. After about 3 months I switched from the liquid form the the 500mg caps they sell online at puritans pride and continue to have sucesse with it...just make sure you're not pregnant or allergic to bees/bee products. Good luck!
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 6/14/2011 8:08 PM (GMT -6)   
That's funny Dave, cause when I quit smoking about 10 years ago, I let myself have the odd ciggy for a few weeks, until I was comfortable giving them up completely.

I find it hard to give something up 100%; I prefer 95%—just for a little while. lol

dfdavedf
Veteran Member


Date Joined Jan 2010
Total Posts : 994
   Posted 6/14/2011 8:26 PM (GMT -6)   
Hey  Roni
As usual you da man!
 
If I had the strength of personality I might have had a ciggy every once in a long time, or a piece of chocolate once a year, but for some of us weak folks, it's easier to do this all or nothing thing.
 
Cheers
dave
 
 
Pentasa (1,500 per day for the last 6 months), Vit D and B complex, fish oil and SCD vit. Entocort (6 mg and hoping to get to 3 next doc visit). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 340
   Posted 6/15/2011 9:48 AM (GMT -6)   
Hi pb4,

Thanks for the tips. I started the bee propolis almost a month ago. I think it is helping a bit, but I'm also on prednisone so I don't think I'll really be able to tell until I'm off.

Do you take yours with meals or on an empty stomach?

I'm not pregnant, but hope to be some day. I did a little reading up on it, and there didn't seem to be any studies on bee proplis and pregnancy. Do you know of any that suggest that you really shouldn't be on it while pregnant?

Thanks!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17837
   Posted 6/15/2011 11:56 AM (GMT -6)   
Sorry Octobergirl, I forgot to address your Q about with meals or not. I take one with/after I have supper and the other one before bed so it doesn't seem to make any difference with me if I take it with meals or not.

Yeah, if you're on pred when you started it then it may be harder to know if it's helping or not (hoping it is though).

I don't know why on the label it says to avoid if pregnant, maybe just a precaution due to the fact that they don't have enough research done on preggos OR maybe because of the fact that with babies in general you're suppose to avoid giving them honey (and because BP is a bee product) the warning is to ensure that pregnant women should avoid any and all bee products due to the sensitivities that babies have and are vulnerable to bee products (so just a precaution).

Good luck and I hope you find full remission for a very long time.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 340
   Posted 6/15/2011 1:29 PM (GMT -6)   
Thanks, pb4, you've been very helpful. I read about your taking bee propolis when I first got sick, but I've just started taking it. I'm glad it's helped you out so much, and I hope it does the same for me. I appreciate your help! :)
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