Does the inflamation ever go away

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dusty1234
New Member


Date Joined May 2011
Total Posts : 6
   Posted 6/13/2011 10:02 AM (GMT -7)   
 I am confused with this whole disease and I have been diagnosed since 1999.  I have been on Pentasa 500 mg, 2 in the morning, 2 in the evening for years.  At my last colonscopy I still showed inflamation and the dr said that never goes away??  Is that true?  Do the meds just control new inflamation from starting but doesn't heal the old areas?  I have always done well with my Crohn's until now.  I need to have a repeat colonoscopy but have been in a mild flare, so they did a ct scan and it showed inflamation in the small bowel but I don't know if it is the same areas or different areas.
 
Has any certain diets helped....

LtlMissT
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 6/13/2011 10:26 AM (GMT -7)   
I think everybody is different. In my situation, the inflamation has not gone away. It just gets better or worse, but never gone.

The doctors should be able to tell you if it was in the same area of your small intestines or not. Every Colonoscopy I have had, they have been able to pinpoint and show me exactly where the disease is attacking me.

Diets have never seemed to make a difference with me but there are so many people who it does make a difference with, so I cant help you there. You should be able to find several diets online that you can test out. I know a huge one these days is to try and eliminate gluten. This has helped a few people I know with Crohns.
26 year old Female
Diagnosed w/Crohn's Disease 1995 @ age 10
Flare ups & hospital says: Yearly
Prednisones the only drug my body hasn't rejected yet.
3 Seperate PICC lines - several mos each
Prev Meds: Remicade (anaphylactic shock), Cimzia, 6mp, pentasa, asacol, humira + many more. I've been told I have no other options than surgery, "all or nothing" they say.

dusty1234
New Member


Date Joined May 2011
Total Posts : 6
   Posted 6/13/2011 10:36 AM (GMT -7)   
I was actually going to try a gluten free diet to see if that would help. Thanks for the info.

realchange
New Member


Date Joined Jun 2011
Total Posts : 1
   Posted 6/14/2011 2:47 PM (GMT -7)   
i have recently joined and not had time to put my background in my signature. I was diagnosed with chrons at age 11 and was in the hospital once a year until about 2004-2005 when i switched to remicade treatments. Remicade has worked the best for me but i still have never felt like the inflammation goes completely away but it does get better.

I think the way they medically measure your inflammation is your sed-rate (amount of blood in your stool?), so keep track of that. Mine when normal is around 5, when completely sick around 89.

Lifestyles changes like diet, exercise, higher self-esteem to fight off depression (just recently for me), big or small can all make a difference and all worth trying if you have not already.

As far as drugs go, only remicade works for me, and i have tried everything. It took years of treatment to return to what i felt was normal. Normal for me being 6'0" and the most i've ever weighed is 130 lbs. When i was diagnosed i weighed 76 lbs. suffered from diarrhea, cramps, constant puking, anemia, bloody stools, and basically all-around inflammation. It was too severe for any kind of surgery because i have it in upper and lower intestines and stomach.

The most I've ever gone is a few weeks without symptoms. Normal for me is fighting the inflammation, and just feeling like I'm returning to normal.

So i would say the best thing you could do is not wonder if the inflammation will go away completely because it can get better. Do everything you can to fight it. Hold on to your best days to get you through your worst and it will help you keep up the fight.

And remember I did not pour out my Chron's story as an example of what your's will be. It is different for everyone. But rather to show you that it can be fought, and can get better. It never has to stay worse.

Sry if tmi lol.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1883
   Posted 6/14/2011 2:50 PM (GMT -7)   
If the meds or diet are effective enough then yes, it goes away.
 
You are on a fairly weak medication, which doesn't have much of an effect, if any, for most patients, so a change in diet might help boost the power of the med.
 
But in my opinion you have inflammation right now because the med isn't strong enough.

SeriouslyRelaxed
Regular Member


Date Joined Mar 2011
Total Posts : 137
   Posted 6/15/2011 1:33 AM (GMT -7)   
Pentasa and prednisone are not enough for me....so we added methotrexate and remicade. I am currently trying to taper the prednisone, again. It seems like I just can't get below 15. *sigh*
Even with all the meds I take I still have inflammation.
Today my gut isn't too bad but my joints, no make that my whole body, aches.
55 yr F Dx 2/11 w/ crohns, and crohns related arthritis. ~pentasa, prednisone trying to taper. Again .,methotrexate injections weekly, folic acid, remicade every 6 weeks, fish oil, vitamin D, Biotin, probiotics, the occasional Xanax, hydrocodone PRN ~ levothyroxine, requip, wellbutrin

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 6/15/2011 7:34 AM (GMT -7)   
my inflammation never goes away, I've had cd for 40 years, it gets milder and it gets worse but the inflammtion in my sm. bow. never ever goes away, my cd has spread to esoph. and mouth area, throat. pred is the only thing that knock it down in mt throat, right now I'm trying immuran and pred. am slowly tapering from 40 to 30 now, but it will be another 4 months to taper down to 5mg. and I may never be off pred. in order for me to swallow and have a decent quality of life, I also have to take pain meds, I was in car accident on5/15. rear ended at 65mph, so that brought on current throat flare. today I go to acupuncturist and she puts needle in my knees, forearms and ears, and that gets rid of acid reflex, plus I use slippery elm in my oatmeal, or mis it in 3oz of warm water with 1 tsp and drink it down, results are amazing for me.

AG
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