Hair falling out again

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/8/2011 12:43 AM (GMT -6)   
Hello everyone,
 
My guts are in a bind and I am so ready to thrown in the towel and say screw eatting solid food altogether even soups etc are not giving me an easy time.  I am as a previous post states thinking it may be the switch to generic entocort.  I know many of our meds can cause our hair to fall out but itseemed as though my body adjusted to that...either that or might it be the flares that cause the issue??
 
I noticed since my gut syptoms have began again so has my hair issue.  when I shower and shampoo then condition my hair I spend more time getting at least 10-15 strands just falling into my hands with each time I rinse my hair out.  I try to ensure all of the products I use (the shampoo and conditioner) are all out and I typically stop rising and squezzing extra water out when I finally get down to a few strands of hair falling into my hand at a time.  I must do that 4-6 times before it stops.  this doesnt incluse what just falls out when the water comes down on me.  Any vitamin suggestions for this I know it has been mentioend before but I forget which it is to help that
 
thanks

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 2863
   Posted 9/8/2011 6:27 AM (GMT -6)   
Folic Acid!  It worked wonders for me and I know several others on here also.  I would also say that the increased hair loss may also be due to your diet dwindling down in a flare.  I know that fats in the diet are extremely cut back, hair loss occurs in greater amounts.  I know a woman who went on a very strcit diet with a very low fat gram count....her hair came out in handfuls and she was not on meds or had any disease.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/8/2011 7:11 AM (GMT -6)   
I have to agree with Habs. I haven't made any drug changes, but my hair has been falling out in alarming clumps since I started to have trouble this spring. I am pretty sure it is my lack of nutrition that is the cause. I started to take Folic Acid and Biotin. After about a month the shedding slowed down considerably. I am now about 2 months in and haven't really noticed a huge difference in gaining hair back yet, but I will continue to take the supplements and hope that my pony tails get thicker again.

I also try to be very gentle with my hair. I only wash it every other day and if I am not going any place I don't dry it. Trying to put the least amount of stress on it as possible. If I have to I use dry shampoo on the off days to give it some extra bounce and to freshen it up.

noories
Regular Member


Date Joined Aug 2011
Total Posts : 154
   Posted 9/8/2011 8:00 AM (GMT -6)   
i too had the same problem and about last summer i started using castor oil in my hair. i mix 1 part of castor oil to 1 part of almond oil and massage it in my hair especially the roots and i tie my hair up in a towel for a couple of hours then i wash as per usual. i did it 3 times a week and it made such a huge difference for me! even my friends could tell that the crown of my head was getting fuller. so my hair today is nice and thick plus its grown so much all the way to the middle of my back!!

maybe give it a try? its such a cheap option! :D
30 years old
Diagnosed with Crohn's in 2003 and IBS in 2009
Resection in 2005
Tried Humira, Prednisone and Pentasa
med-free for 1.5 years now following Naturopathic medicine :)

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 1702
   Posted 9/8/2011 8:33 AM (GMT -6)   
Do you take any of Pentasa, Imuran or Methotrexate? These drugs make hair thin and of course, malnutrition plays a great role in hair loss. I noticed that a lot of hair used to fall out when I was on Imuran. Now, I'm on MTX and things did not change. I take a mutivitamin, and I think that's why, not a lot of hair falls out. I think that you should give it a try as HabsHockeyFan, Zanne and Noories have mentioned. Take care!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 9/8/2011 8:47 AM (GMT -6)   
Folic Acid works well. It will take about 3-4 weeks to notice the difference, but slowly but surely it will slow down. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/8/2011 12:19 PM (GMT -6)   
Thanks I use to be on the script folic acid back when iw as on imuran and remi combined with my old GI but my levels even when flaring were ok post op so they never placed me back on it. Just another question for my GI wednesday I guess. thanks
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Blue Velvyt
Regular Member


Date Joined Sep 2006
Total Posts : 194
   Posted 9/8/2011 12:26 PM (GMT -6)   

Heya,

 

Funny I went with the "Walter White' in the last few years. If ya dont know, he is a character on a show called "Breaking Bad" played by Bryan Cranston, he was forced to shave his head for chemotherapy and he just liked the look and stuck with it.

My hair loss got so bad, it was either combover time or the shave. Guess I could have looked into other ways to save my hair, but truth is, I spend so much time in bed, I used to get terrible "just got out of bed hair look", hair sticking out all over, hair missing, blah blah.

No energy for showers, gottta get to the docs, I look like a freak show, so went "Walter White".

The look is ok on me, or perhaps I am the only one who thinks so :)

 

Jon


champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 9/10/2011 4:46 PM (GMT -6)   
I know, it sucks! Any change in Meds, esp Imuran causes my hair to fall out. I have long hair and a lot of it so that helps, except when it starts to grow in! I wash every three days ... and get into some creative parting. I like the vitamine supplement ideas ... but I find my body adjusts in a few months and then it all evens out. Be patient and don't be too alarmed!
Recently married 45-year old, mother to 3 sons and 3 step children - my recent online dating venture worked! Love is the best tonic! Diagnosed with Crohn's in 2004 via pill camera. 2010 ileitus and hospitalization - now on 100 mg Imuran. Suffer from Crohn's of esophogus and mouth. Eating wheat free and almost symptom free.

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 9/10/2011 6:33 PM (GMT -6)   
My GI also suggested zinc (in addition to the other supplements already suggested)...also had to get hair done so the bald spots didn't show...and I used the hair products (Nioxin, but I think there are more on the market now)...I thought about a wig at one point...anyways, I'm hoping that you can find help soon, and it grows back thick and full...

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 9/11/2011 9:47 AM (GMT -6)   
No reason to ask your doctor about the folic acid. My GI told me that its one of the easiest supplements to digest. I would go to the store and pick up a bottle right away, the sooner the better to stop the hair shedding.
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/11/2011 11:34 AM (GMT -6)   
Thanks nanners I was always on prescription strength in the past (1mg) and I may talk to him anyway about it since my insurance covers meds (after about feb or march) 100% does not cover otc and with financial struggles lately I cannot even afford my mult vitamin I am lucky to be getting half my calcium I need.
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