Laparoscopic small bowel resection - 14 weeks ago

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

clonehead
Veteran Member


Date Joined Jan 2011
Total Posts : 610
   Posted 9/12/2011 2:32 PM (GMT -6)   
I had my (first and hopefully only) small bowel resection 14 weeks ago, today.  It included my terminal ileum, a few inches on both sides, my appendix, and separately 24" of my jejunum.  Every week I have pleasant findings in my recovery progress. 
 
This week - hanging from the monkey bars.
 
This past weekend was a beautiful weekend weather-wise, and we took our kids to a couple of playgrounds, like we have many times this summer.  I have been testing how much weight, if any, I can allow to hang from the monkey bars.  These are in the little kids area, so I can reach the bars standing up, and slowly shift my weight from being supported fully by my legs to fully by my arms.  This is the first weekend that I've been able to pick my legs up off the ground and put full weight in my arms.  In previous attempts, I'd feel a little pull in my abdomen (scar tissue or not, I wasn't going to risk a hernia or some other sort of internal injury) so I would always stop short of allowing my full weight to hang from the bars. 
 
Last week - watermelon for the first time all summer. 
 
I've been taking it pretty slow with re-introducing food to my diet.  I've been allowed to start introducing more roughage into my diet in early July (one month after the procedure) so long as I limited it, and chewed my food very well.  Increasely, I've been adding lettuce, pickles, tomatoes to my sandwiches, ocassionally indulge in a small salad, and getting back into the delicious world of fresh fruits.  I can tell when my crohn's is acting up the worst because a simple thing like watermelon would make me sick to my stomach, or even vomit.  Then, I know I've got it bad.  This watermelon was ripe, delicious, and non-aggravating to my digestive process. 

Crohn's Disease for 22 years
Diagnosed in Feb 1989 at age 14

1 Resection: 4" at TI + 24" of jejunum - June 2011
Current meds: Humira
Also take: monthly B12 injection, Calcium, Multivitamin

sudsmom
Regular Member


Date Joined Nov 2010
Total Posts : 167
   Posted 9/12/2011 3:21 PM (GMT -6)   
So happy to hear your recovery is going well! I recently had a small bowel resection/fistulaectomy/adhesion removal. Can you tell this was not my first surgery - haha! It was my 6th so no hope of the tiny incision. But my recovery is going well also. I haven't had fresh fruit during the summer for 2 years so it was a real treat to slowly be adding it back in.

Wishing you continued success! I know I am determined to enjoy this remission, however long it lasts!

Sudsmom
53YO married female with 2 children (19YO and 22YO).
CD since 1981, numerous surgeries including fistulaectomy, resections, adhesion removal.
Current medications: asacol, nexium, ferrous forte 150, pain medication.
Successful fistula, adhesion, stricture removal (2 ft small bowel) on April 12th!

Bruinsfan
Regular Member


Date Joined Sep 2011
Total Posts : 82
   Posted 9/12/2011 7:15 PM (GMT -6)   
Hi you guys...I wish you both alot of love and hugs!!! I had a small bowel resection for narrowing in my intestine...but it was only 3 inches...so I can't imagine going through what you both have...I hope things get easier each day!!!
42 year old female diagnosed with Crohn's disease 12 years ago, progression in disease in past couple years, only taking amitriptyline currently, in past have taken prednisone and pentasa, lots of kidney stones recently...by the way...GO BOSTON BRUINS!!!!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 9/12/2011 7:42 PM (GMT -6)   
I am so happy your recovery is going so well. Good for you!!

One warning, stay away from Broccoli. I ate it about 14 weeks out after my first resection and got the worst gas pains ever. I guess this is too cruciferous for us. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 9/12/2011 8:33 PM (GMT -6)   
hi all- i hope you don't mind if i hang onto you all for future reference...i'm heading in to talk to the surgeon after we get the results of my mri wed. meds have stopped working and my GI is constantly bringing up the knife now. i know it's time, but i'm scared to life. it's great to hear that you are all doing well after your surgeries!
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

Bruinsfan
Regular Member


Date Joined Sep 2011
Total Posts : 82
   Posted 9/13/2011 5:54 AM (GMT -6)   
Hey mtgman...I wish you good luck with your surgery...hang in there...remember Bruins fans will get through anything!!! Keep us udated with how you are doing!!!
42 year old female diagnosed with Crohn's disease 12 years ago, progression in disease in past couple years, only taking amitriptyline currently, in past have taken prednisone and pentasa, lots of kidney stones recently...by the way...GO BOSTON BRUINS!!!!

clonehead
Veteran Member


Date Joined Jan 2011
Total Posts : 610
   Posted 9/13/2011 2:10 PM (GMT -6)   
Thanks for all your support & advice!

mtgman - definitely - we've exchanged comments in several threads in the past and seem to have pretty similar histories. I was diagnosed 1 month before my 15th birthday, and I am currently 37 years old. I've gone this whole time w/o surgery, too.

I hope your MRI goes well, and can at least give you and your doctor a definitive treatment plan.

I won't go as far as others have in the past and say "I'm glad I had the surgery. I don't know why I waited so long." I am glad that everything worked out so well. I waited so long because there wasn't a NEED to be cut prior to when I was cut, and there was hope, and some success, with medical therapies.

I do feel the best that I have felt in two years. October 2009 was when my last flare started, and was mostly under control in the month prior to my surgery.

There are risks with surgeries, and there is good reason to go into it with concerns and fears. With today's surgical advances, the odds of a successful surgery and recovery are definitely in the patients favor.
Crohn's Disease for 22 years
Diagnosed in Feb 1989 at age 14

1 Resection: 4" at TI + 24" of jejunum - June 2011
Current meds: Humira
Also take: monthly B12 injection, Calcium, Multivitamin

BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 9/13/2011 3:34 PM (GMT -6)   
So great to read about your quick recovery, I guess you're more than glad to know that you can eat what has been forbidden for years.

I am heading the same type of resection, I am still doing quite well, thanks to LDN, which I have been using for 4 years. I was heading the resection four years ago, started using LDn, and I am still sitting here,

I get obstructions though, but only once a year now, - 5 years ago I got them twice a month.

And yes, Nanners, you're so right, brocolli has almost killed my quite a few times. After 10 obstructions we found out that broccoli was the reason, I can only eat the tops, never more than that. And it has to be cooked to death.

Have you clonehead had a lot of obstructions as well?
My Crohn's disease is located in jejunum/ileum, which is called jejunoileitis. We're just a few with this type.
Diagnosed 07. Started june/07 with prednisone, continued in sept/07 with LDN, Low Dose Naltrexone.
Combines LDN with a Low Dose Prednisone (from 10 mg and down), just for some weeks if flaring.

1/4 of what you eat keeps you alive, 3/4 of what you eat keeps your doctors alive!! ;-)

sult and pepper
Regular Member


Date Joined Jul 2011
Total Posts : 28
   Posted 9/13/2011 6:27 PM (GMT -6)   
turn  Hi there! Good luck to you for a speedy recovery nice to hear your doing well.
 Was your opperation really big ? just asking, cause on 12th april i had an opper... too removed 47cms large and small, cut straight down 8".
I have'nt been able to do much it gives me a sharp pain on my stomache and i stay in pain for a while. Well best wishes to you.
 
On Azithioprine 100mg.
Suffered with many problems for 11 yrs but was diagnosed in April after intest...perforated
I am a 38 yr male.
Married for 19 yrs with 5 children.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 9/13/2011 7:41 PM (GMT -6)   
thanks guys- i'll keep you posted! mri is tomorrow and with the conveyor belt structure at Mayo I'll probably get a call back form my doc in Feb. haha...hopefully a bit sooner than that. great doctors but i HATE the setup at that place!
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

clonehead
Veteran Member


Date Joined Jan 2011
Total Posts : 610
   Posted 9/13/2011 9:15 PM (GMT -6)   
BeeSting - never had an obstruction. Had to take miralax most evenings to keep things moving along, but never had an obstruction.

sult and pepper - I'm not sure what is really big. They were able to do it with a small incision (less than two inches) but they did take a lot out (see my signature). So, my projected recovery period post-op was shorter than folks who have open surgery. I was able to stop taking prescription painkillers after 2 weeks after surgery. I still had dull pain/soreness.

I would be concerned about sharp pains after 5 months laparo or open...does your doctor know you are still having sharp pains?
Crohn's Disease for 22 years
Diagnosed in Feb 1989 at age 14

1 Resection: 4" at TI + 24" of jejunum - June 2011
Current meds: Humira
Also take: monthly B12 injection, Calcium, Multivitamin

BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 9/15/2011 12:39 PM (GMT -6)   
Hope you'll read this post again, clonehead, I want to ask you some more questions: You have Crohns in the same area as me, I suppose, due to the jejunal resection. I have Crohns in my jejunum mostly, and a little part of the ileum is also inflamed.
Having jejuno ileitis means your jejunum can get a lot of narrowed areas and then strictures, which often leads to, if complications, obstructions. Those who don't get these complications are lucky. I guess you're one of them :-)

I want to ask you, what other kind of symptoms did you have prior to your resection? Did you have to run to the bathroom just a few times a day, or did you go more than ten times a day? Did you get cramps, abscesses or fistulas? Did you loose blood while having bms?

Could you please describe your symptoms, I would so like to find out what other symptoms you had, why did you get Humira? // Thanks a lot, from Bee


FYI Bee, this exact post was in here twice, so I deleted the first one. :-)

Post Edited By Moderator (Roni) : 9/16/2011 8:06:52 PM (GMT-6)


clonehead
Veteran Member


Date Joined Jan 2011
Total Posts : 610
   Posted 9/16/2011 3:19 PM (GMT -6)   
Well, I had complications with strictures, but just never had a complete obstruction. I didn't know it was in my jejunem until after surgery. The plan was to go after the ileocecal valve only - that was the only location that had been diagnosed in the past, but the surgeon said the jejunum was just as bad.

I will come back later with more details of my pre-op symptoms.

Thanks
Crohn's Disease for 22 years
Diagnosed in Feb 1989 at age 14

1 Resection: 4" at terminal ileum + 24" of jejunum - June 2011
Current meds: Humira (since March 2011)
Also take: monthly B12 injection, Calcium, Multivitamin

sult and pepper
Regular Member


Date Joined Jul 2011
Total Posts : 28
   Posted 9/16/2011 6:43 PM (GMT -6)   
Clonehead, Hi! i dont know why they opened me up so much i had 34 staples, I didnt know they can take out so much from a 2". I've got a big scar. When i pick up things or do somethings more than usual i get the pain It's mostly my belly button part it was cut through there too. yes the Dr knows. take care
On Azithioprine 100mg.
Suffered with many problems for 11 yrs but was diagnosed in April after intest...perforated
I am a 38 yr male.
Married for 19 yrs with 5 children.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/16/2011 9:08 PM (GMT -6)   
CH, I'm glad your recovery is going well. Hope you have a long, preferably lifelong, remission!
Co-Moderator for Crohn's Disease and Epilepsy forums.
Crohn's Disease since the 1990s.
Close family member has had epilepsy for more than 45 years.

clonehead
Veteran Member


Date Joined Jan 2011
Total Posts : 610
   Posted 10/12/2011 12:02 PM (GMT -6)   
BeeSting said...
I want to ask you, what other kind of symptoms did you have prior to your resection? Did you have to run to the bathroom just a few times a day, or did you go more than ten times a day? Did you get cramps, abscesses or fistulas? Did you loose blood while having bms?

Could you please describe your symptoms, I would so like to find out what other symptoms you had, why did you get Humira? // Thanks a lot, from Bee

Hi BeeSting, I'm sorry it has taken me so long to respond to this message.  I will also start a new thread specific to the jejunum to see if anyone here has any input/experience.
 
One caveat about my symptoms: I had extreme narrowing in two different areas - one in the jejunum and another at the ileocecal valve.  
 
Historically, my crohn's gave me loose bm's.  But within the past year, I was having C more often than D.  Especially the 6 months leading up to surgery, I had to take miralax often, and eventually daily.  With the C, I typically had to go at some point in the morning, usually after breakfast, and I would go anywhere from 3-6 times within a 1-4 hour window, and then usually be done for the day.  Even though it was C, often the urgency was still there.  Sometimes I would go more than 6 times, but 3-6 was most common.
 
I did not have any abdominal fistulas.  I have had perianal fistulas for a while.
 
I did see blood ocassionally.  Not all the time.  But when I did see it, it would usually be towards the end of my final BM of the day.
 
In the past, I'd always felt my pain & cramps in the lower right of my abdomen.  This time around, I felt it there AND higher up....upper left, maybe upper center, just below my ribs.  More than pain, I felt bloaty, crampy there.  I could hear the food and liquids passing with loud uncontrollable gurgling sounds.  I received comments like "you must be hungry" from folks at work because you could hear it at meetings.  Doctor thought it was a SIBO and gave me antibiotics, which cleared up the noises, and other SIBO symptoms I was having, but some of the pain and cramping in that area remained. 
 
I have vomitted in the past from flares, typically from eating a food that was too acidic or disagreeable...my vomiting this time seemed to be from food backing up in the intestinal track.  I was unable to ride amusement park rides or eat large (or even regular sized) meals without needing to vomit.  In my opinion, I think this was made worse by the crohn's in the jejunum. 
 
Why did I get Humira?
I didn't have much of an appetite.  I was tired a lot.  I started needing to go to bed when I got home from work.  I was taking naps in my car at lunch.  Anything to conserve energy to get through the day.
 
I started with a dose of prednisone (starting at 40mg) around mid-October last year for 8 weeks.  I was 10 pounds lighter than I had been 1 year earlier.  That usually helped me out.  It did help at first.  I felt better and gained a little weight.  But weaning to the lower doses brought back the symptoms.  By a week or two after weaning, I was a lot worse off.  Doctor bumped me back up to 30mg for 2 weeks, then to 20mg.  The 30mg helped for a week or two, but the 20mg was only mildly helpful. 
 
That leads into why I started the Humira.  3 months after the 10 pound weight loss was noted, I had lost another 10 pounds...while on prednisone.  Surgery was an option at that time.  Actually, surgery was inevitable at that time.  But I had an option with Humira to see if my body would get some response from that.  There was some hope that medicinal remedy could put me in a little healthier state, which in theory would make the surgery and my recovery go much better.
 
So, first step was a huge pred bump to 60 mg.  I was on 60 for two weeks, and then 50mg for two weeks.  When I dropped to 40mg, I had a loading dose of Humira (4 shots.)
 
I dropped to 30mg on the 2nd dose of Humira (2 shots), then to 20mg with the regular dose of Humira.  Eventually, I weaned off prednisone, and was holding "fine" on Humira.  "Fine" meaning a lot of the flare symptoms/issues, pain, and a lot of the fatigue were gone, but I was still on a very low residue diet due to the strictures. 

I gained back 13 of the 20 pounds and had surgery in a bit healthier state.  I skipped my planned dose immediately preceeding surgery.  2.5 weeks after surgery, I started Humira again.
 
I hope you find some of this helpful?  Are any of your symptoms similar?

Crohn's Disease for 22 years
Diagnosed in Feb 1989 at age 14

1 Resection: 4" at terminal ileum + 24" of jejunum - June 2011
Current meds: Humira (since March 2011)
Also take: monthly B12 injection, Calcium, Multivitamin

clonehead
Veteran Member


Date Joined Jan 2011
Total Posts : 610
   Posted 10/12/2011 12:05 PM (GMT -6)   
sult and pepper said...
Clonehead, Hi! i dont know why they opened me up so much i had 34 staples, I didnt know they can take out so much from a 2". I've got a big scar. When i pick up things or do somethings more than usual i get the pain It's mostly my belly button part it was cut through there too. yes the Dr knows. take care
Perhaps because the colon was involved also?  Did you have abcesses, fistulas, or other complications?
 
My doctor said he would try lap but I might wake up and find out I was opened up.  My understanding was that if I would have had much more than needed to be removed, if I would have need resection plus strictureoplasty, or if I would have had fistulas, then he would have had to do an open procedure. 
Crohn's Disease for 22 years
Diagnosed in Feb 1989 at age 14

1 Resection: 4" at terminal ileum + 24" of jejunum - June 2011
Current meds: Humira (since March 2011)
Also take: monthly B12 injection, Calcium, Multivitamin

BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 10/12/2011 2:04 PM (GMT -6)   
Hi clonehead, thanx a lot for your post. I have to say, some of the symptoms are quite the same, some are so different.
I know I have either inflamed spots in jejunum in a few places, all placed in what is named distal jejunum, which is the last part of the small intestines before they go over to the ileum. In the ileum part I also have a few inflamed spots, I am not sure if any of them are strictures. 5 - 7 spots in all, and some of them could be strictures, the last taken MRi says.

It's funny that LDN keeps my inflammation on bay, I have now - 2 - 3 bathroom visits each day at most, and I have just a little pain if I have been taken some kind of sour / acid containing food.
I still have to avoid raw vegetables and unpeeled fresh fruits. If I have this kind of food, I will get this gurgling all over my stomach, followed by severe, stabbing pain. At the moment this won't develope to a partial obstruction which it always did 4 years ago, if I had fruits or veggies.

I have been using LDN as the only treatment for 4 years now, I will not recommend it, because imho, most Crohnies may have to use a mild maintanance medicine and LDN together. I strongly thinks that a good combination with some 5 - ASA or other mild medicine is better than LDN alone, such combinations could be the best solution out there. Without taking any risks as is the case when using harder guns. If I can find a suitable Crohns medicine that is not supressing my endorphin levels or my immune system I would take it. I am trying to find one out there, that I can use in combination with LDN.

Anyway, I have never developed any fistulas or abscesses, and I may thank LDN for that. Because having CD in the jejunum often leads to fistulas and abscesses.


clonehead, I think you was a bit lucky, because you had Crohns for 22 years before your first resection. I have read that in average it takes 10 years, when having CD before the first surgery. Well, at least 60% have had a surgery after 10 years. Let's hope you'll have a long and fantastic remission now!! :-)) thanks a lot for your answers. //BEE
My Crohn's disease is located in jejunum/ileum, which is called jejunoileitis. We're just a few with this type.
Diagnosed 07. Started june/07 with prednisone, continued in sept/07 with LDN, Low Dose Naltrexone.
Combines LDN with a Low Dose Prednisone (from 10 mg and down), just for some weeks if flaring.

1/4 of what you eat keeps you alive, 3/4 of what you eat keeps your doctors alive!! ;-)
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, July 24, 2014 9:37 AM (GMT -6)
There are a total of 2,178,535 posts in 242,238 threads.
View Active Threads


Who's Online
This forum has 153530 registered members. Please welcome our newest member, maryjane Eva.
481 Guest(s), 21 Registered Member(s) are currently online.  Details
LeftyW, achievinggrace, rowingmom, notsosicklygirl, pictureofhealth, BnotAfraid, spicyt, MS in PA, Calibren, malaika, Gizzy'n me, deborahscinder, ED Recovery, bblbt, fightUC, DDMom, Traveler, Angelic_Victory, XincBaez, dmlvt, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer