Pain medication?

Do you take pain meds to manage your Crohn's-related pain?
18
Yes. I take an opiate/narcotic drug to manage my Crohn's-related pain. - 62.1%
3
Yes. I take an anti-inflammatory drug to manage my pain. - 10.3%
2
Yes. I take a drug that is neither a narcotic or anti-inflammatory to manage my pain (eg. a tricyclic, Neurontin, Lyrica, etc.) - 6.9%
6
No. I do not take any drugs to manage my Crohn's-related pain. - 20.7%

 
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jenmach3
Regular Member


Date Joined Feb 2006
Total Posts : 34
   Posted 9/23/2011 9:01 PM (GMT -6)   
Hello again, everyone!

I was wondering how many of you use pain medication to manage Crohn's related pain. In Dec 2010 I began experiencing upper back pain that did not have any easy explanation. I was just recovering from endocarditis that resulted from the incision and drainage of an abscess (likely caused by Humira) and my doctors suspected the worst. After several MRIs, a nuclear study, and a CT, we discovered that I had a renal "abscess." I use the term "abscess" loosely because it wasn't actually purulent matter, but likely blood clots left over from the endocarditis. Sorry, if this is too technical! I'm an RN and thrive on details. To get to the point, after the "abscess" resolved, the back pain persisted and it appeared that my jejunum had become so dilated that it was causing referred pain to back. I have been taking Percocet or Oxycodone (Percocet minus the Tylenol) since December. I have never taken more then prescribed and I don't worry about becoming addicted, BUT my husband seems to worry about this.

How do you all deal with pain? Do you feel comfortable taking opiates/narcotics to manage your pain? If so, do your family members have concerns about this? As a healthcare professional I feel like I have a healthy respect for these drugs and their addictive potential, however, I also know that the risk of addiction is relatively low, and especially unlikely when taken for actual pain! I am having my first resection surgery this coming Monday, so I anticipate that I'll be able to taper off pain meds very soon and I look forward to it.

If you have any experiences with pain meds to share, I'd really appreciate hearing them!

Thank you!

-Jenna

lady1012
Regular Member


Date Joined Nov 2006
Total Posts : 304
   Posted 9/24/2011 12:16 AM (GMT -6)   
I take Toradol for pain...but my doctor will only give me two weeks at a time....that works for me for now as they usually last a month or more as I only take them when the pain is bad and I know tylonol will not help.
Official diagnosis of Crohns in the TI summer of 2006 via CT scan

The strongest oak of the forest is not the one that is protected from the storm and hidden from the sun. It's the one that stands in the open where it is compelled to struggle for its existence against the winds and rains and the scorching sun.
Napoleon Hill

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 9/24/2011 10:07 AM (GMT -6)   
I take Percoset 1/2 tab 3 times a day. I am not addicted, and actually not dependent. I found that out the other day, when I didn't take the mid day dose, and had no issues at all. I have been on this dose for years, and before that it was always 1/2 tab of Vicodin 3 times a day.

You are NOT going to become addicted to this med, dependent maybe, but not addicted. There is a big difference between the two. Addicts take the med to get high, and take more and more to get that high, I get no high, nothing except pain relief and never abuse it. Why should you have to suffer??? Thats why so many of us are on pain meds, it so we can maintain a life.

lady1012 you really should limit the Toradol. It is a NSAID and not good for us Crohnies. I have gotten Toradol via shot before, and I heard to use it that way on occasion is okay, but not something you should be using daily. And its even worse to take the oral as it goes thru the digestive system and cause problems with your Crohns.
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/24/2011 10:34 AM (GMT -6)   
I take Tylenol extra strength quite often. Doesn't always work very well, but I hate how the opiates or codeine make me feel like I can't breathe well, so I only take those after surgeries. Otherwise, I would probably take them occasionally.

Perhaps your hubby is concerned because you've been on them for a while. I'm not sure what duration is okay with those meds, but your doc should know, and if you are not abusing them and are being responsible with them, then I wouldn't worry about it. If you start to become dependent, but no longer need them, then you'll have to talk to your doc.
Co-Moderator for Crohn's Disease and Epilepsy forums.
Crohn's Disease since the 1990s.
Close family member has had epilepsy for more than 45 years.

lady1012
Regular Member


Date Joined Nov 2006
Total Posts : 304
   Posted 9/24/2011 11:28 AM (GMT -6)   
Thank you for letting me know about that Nanners!! I had no idea...all I know is that it takes away the pain. I will talk to my doctor next time I see him about a different pain med. Its just hard to get anything for pain here as they seem to think your a pusher or something if you need pain meds.
Official diagnosis of Crohns in the TI summer of 2006 via CT scan

The strongest oak of the forest is not the one that is protected from the storm and hidden from the sun. It's the one that stands in the open where it is compelled to struggle for its existence against the winds and rains and the scorching sun.
Napoleon Hill

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 9/24/2011 11:42 AM (GMT -6)   
There are some milder pain meds that might work well for you lady1012, like Ultram. Just a thought!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

tooth
Regular Member


Date Joined Jun 2010
Total Posts : 336
   Posted 9/24/2011 12:43 PM (GMT -6)   
I usually don't take any pain meds stronger then Tylenol. Before my surgery, when I had my abscess I would only take Vicodin (which makes me jittery) and Percocet (which makes me itchy) only at night/after work. I'm a dentist so anything that impairs my practicing ability is really, really bad. So I just dealt with the pain when I would be at work.

Maybe your husband might be concerned about how long you've been taking them because over time they'll lose their effectiveness and you'd need a higher dosage to combat the pain?

I wish you all the best with the resection on Monday. It was the best thing that's happened to me this year!!

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 2927
   Posted 9/24/2011 3:47 PM (GMT -6)   
I rarely need pain meds but I also hate the way vicodin makes me feel. I sometimes take xanax to help me sleep at night when I'm in pain. I know it's not a "pain med" but it relaxes me enough so I can usually fall asleep

potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 9/24/2011 8:02 PM (GMT -6)   
After my last surgery my surgeon was reluctant to have me discharged from the hospital while I still needed percocet around the clock for the severe pain I was having. (I had a very difficult recovery). He said he was concerned about my getting dependent or addicted to the drug. I told him that "when the pain was gone, I would stop taking them". There was no medical reason for staying in the hospital, so I was discharged with a prescription for the percocets.

In order to have any relief i needed to take them around the clock for about 2 weeks. I was able to gradually taper them off and stop when I didn't need them any longer. I don't know how I would have managed without them.

I'm not someone that pops a pill for every single discomfort or ailment. I take what I need for my Chrohns, an occasional tylenol for a bad headache, and any other necessary meds when needed. When it comes to pain from the Chrohn's I do have my percocets available. My GI understand the need for pain meds and has no hesitation in prescibing them for me. I always have them available: but, luckily, only need them occasionally.

No one should have to suffer with pain, and taken responsibly, pain meds can make a big difference in the ability to function.

Wishing you a speedy recovery from your surgery.

Potty Pooper

LordWood
Regular Member


Date Joined Aug 2011
Total Posts : 59
   Posted 9/25/2011 8:28 AM (GMT -6)   
I have multiple health issues but in terms of my Crohns I do not take any pain medications for it. I use Cimzia to basically keep my Crohns under control and for the intestinal pain that I do get I use Levsin(Hyoscyamine) which is perfect for Crohns related pain and other issues. The use of pain medications for crohns related pain is kinda a double negative as pain medications cause stomach problems by themselves if not other issues from there side effects (Which because of my RSD I have experienced every top pain medication there is as well as IV meds and meds put into the spinal fluid as well). Which pain meds simply do nothing but treat pain for people which if your not treating the cause of the pain then your just basically band-aiding the situation which is virtually useless overall. Levsin is an anticholinergic agent, which works by decreasing the motion of the stomach and intestines and the secretion of stomach fluids, including acid. Which helps to not only deal with pain but also those embarrassing stomach growls that are so loud and god awful sounding its impossible to hide and is noticeable to everyone as they turn to look at you which is not because your hungry nor because you have to go to the bathroom its simply just a part of having crohns. As well as any bloating, cramping or spasms. Thankfully I found this med to ease at least my crohns issues as I all ready have more then enough to deal with from my worse health issues.
I currently take: Cimzia 2-200mg injections, Adderall 5mg 1x daily, Vyvanse 70mg 1x daily, Dilaudid 8mg 4x daily
Health Issues: RSD, Crohns, Gastroparesis, Arthritis, Osteoporosis, Dysautonomia, & Remicade Induced Psoriasis.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 9/25/2011 9:08 AM (GMT -6)   
LordWood, I do NOT take my pain meds becuz of Crohns pain. I also suffer with osteoarthritis and fibromyalgia, so thats why I take the pain med. I think that is what most of us are taking our pain meds for. Many Crohnies (and I can see from your signature, you do too) suffer with other conditions related to their CD. Levsin works okay for when I got the crampies, but sometimes even that is not enough and I have to take the stronger meds. I have also had two resections, and because of the scar tissue and adhesions I now have, I have to use stronger pain meds too. I wish Levsin was all I needed, but thats not always the case. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 9/25/2011 10:56 AM (GMT -6)   
Well, i do take percocet for my crohn's. Darn tootin'! If not i would be depressed as heck and have no quality of life.

My gastro says im the most severe case he's ever seen..and my butt is a mess. I have practically no skin on my butt, 4 fistulas c onstantly draining, 3 setons..open sores, tons of pyoderma gangrenosum.. If i do not take my percocet in the morning, i feel as though theres a sword inserted up my butt, and every little movement hurts like heck. On top of that, i have lots of stiffness and joint pain in the morning.

So, i take my biggest dose when i wake up (1.5 pills of 5/325's and 2 buscopan for intestinal spasms)...then afternoon i'll take 1 perc and a naproxen ( yeah, i know).. In the evening i try to get by with 2 tylenol but if im out running errands i will have nother perc as required. I try to use them as sparingly as possible.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 9/25/2011 11:26 AM (GMT -6)   
Tara28 I am the same way. I take the largest dose in the morning. I usually only take 1/2 tab of Percoset 3 times a day. But in the morning I use 3/4 to 1 just to get my day started. I am surprised with you having PG too, that thats all you take. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 9/25/2011 12:22 PM (GMT -6)   
hi there. i've been on percocets (now oxycodone) for over a year now. started at 5/325 x 4 now at 15 mg x 6.
my dose has increased substantially i think due to both my condition worsening and the fact that i have become slightly dependent on the meds. that scares me a bit but i'm 100% honest with my pain mgmt doc and he said that's to be expected with a narcotic. we just have to stay on top of it and manage it. For me it's a quality of life thing. i don't take it to get high, in fact i rarely if ever feel any "narcotic" effects from the pills. They help with the pain but do not resolve that 100% either...BUT they do allow me to make it through the day at work, play with my daughter and not sit on the can for 45 minutes doubled over in pain. They have truly made my life better over the past year.
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

LordWood
Regular Member


Date Joined Aug 2011
Total Posts : 59
   Posted 9/25/2011 1:24 PM (GMT -6)   
Nanners- No where in my post does it say that you took pain meds for your crohns solely or any other person directly for that matter. I was responding to the original posters question regarding the use of medications specifically for crohns directly. Which as my post focused on the issue of pain meds that are used for crohns only! I also noted in my post my use of pain meds which were because of other health issues.

I do not appreciate your out lash. Also my pain medications are because of my RSD which is not related to my CD, only the osteoporosis and arthritis are.
I currently take: Cimzia 2-200mg injections, Adderall 5mg 1x daily, Vyvanse 70mg 1x daily, Dilaudid 8mg 4x daily
Health Issues: RSD, Crohns, Gastroparesis, Arthritis, Osteoporosis, Dysautonomia, & Remicade Induced Psoriasis.

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 9/25/2011 2:20 PM (GMT -6)   
This is a question that comes up a lot...sometimes I go over to the "Chronic Pain" side of Healing Well and they help out...My Honest opinion...there is a lot of fear of narcotics right now...and like Nanners said, a difference between addiction and dependence...kinda like using prednisone...after awhile you have to taper slowly to come down...but do you say "I'm addicted to prednisone"...

Me I take narcotics for a number of reasons...yes, I have other diseases which is why I had to go up to the big boys, but also the narcotics, while constipating in some, bring me to a somewhat "normal" level (ie only 1-3 BM's/day). I've been on the pain meds for over 3 years and have not had to change my dose...

Jenna, it seems as if you have a good understanding of the meds you take...maybe even a consultation with a Pain Management doctor might help...Oh, if you ask on the chronic page forum(one of the forum moderators there also has crohn's), they may also have resources to help your DH understand the meds a bit better too...Good luck

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 9/25/2011 4:57 PM (GMT -6)   
Lordwood- perhaps i misconstrued your post. I got the vibe that being on narcotics for CD was not a good idea and it 'd be advisable to "suck it up".
My post was to illustrate that some people do need stronger pain management and shouldnt be judged for that. Sorry if thats not what you meant...but we get that a lot and it gets frustating as everyone with CD has their own reality, their own pain threshold, etc.

Nanners, PG sucks so bad! Sometimes the pain is crazy..and with 2 peeps it seems like someone's always bumping into a sore spot. Then it leaves these gross deep purple craters in my skin. Im going on vacay in two weeks and people will be staring at my legs.. Oh well, comfort first. I remember pre- CD whn it was fashion first. Those were the days.

Post Edited (Tara28) : 9/25/2011 4:01:08 PM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 9/26/2011 9:47 AM (GMT -6)   
Lordwood I was no way attacking you personally. I was "responding" that not all of us take pain meds for Crohns. I have been in a 3 month battle with Crohns, and Levsin has not touched my pain this time, other than to slow the d down some. But the Percoset has given me some relief. Although I am one who doesn't usually use my pain meds for CD, they are nice to have around in these bad times.

I have been trying anything and everything I can find to give myself some relief, and haven't had much luck. Even my doc is perplexed in how to treat it. I have heat marks on my stomach because the one thing that helps the most is my heating pad.

I have lived 36 yrs with this disease and honestly have not had to take pain meds for the first many years of having this disease. Its been the last 20 or so that the pain meds have entered my life. At first it was always Motrin 800 mg (before I knew we shouldn't take that) and that was for back/neck pain I suffered from due to a herniated disc. Now I require pain meds daily just to make it thru my day becuz of the osteoarthritis and fibro. By the way I need two knee replacements, that I am trying to hold off as long as I can with cortisone shots every 3 mos.

I am sorry you felt I was attacking you, but I wasn't. Just trying to say that not all use their pain meds for CD pain, but for other issues related/or not to the disease. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

Thesearemyfaults
New Member


Date Joined Aug 2006
Total Posts : 10
   Posted 4/18/2012 3:52 PM (GMT -6)   
I had a small bowel resection and appendix removal in 2009 and I have basically been on pain meds ever since. Recently I had 3 vaginal infections in a row including PID right after being taken off of fentanyl 25 mcg patch, (which I had been on for about 4 months). I was also decreasing Effexor from 150 mg/day to 112.5/day at the same time. During a month period I was probably taking on average about 60 mg/oxycodone (with/without tylenol).

Well, I also tried to switch pain management clinics at this time at the advice of my NEW GI Dr. She wanted me to switch so that my pain management was at the same hospital as her practice. Well, I got discharged from my old pain management clinic because they said I saw the new one and the new one said I was discharged for taking my pills to quickly and getting some from the emergency room. I was in a lot of pain. I have never taken the pills that rapidly before, but there was a lot going on during this time (still is) and it was really over the course of a month.

I was told by my new pain management that they will prescribe me non-narcotic medication now because I have basically abused the narcotic medication and broke their contract. I have been off the pain pills since Sunday (today is Wed) and ended on Sunday at 20mg of percoset. All week I have felt like crap (nauseous, aching, headache, body chills and feeling hot). I don't know if this is withdrawal (there were days I was ok too like yesterday I felt a lot better than today). Basically I am scared as hell to be without the pain medication because I have been taking it since my resection and it has allowed me to work and live a normal life and now they are taking it away from me. I don't know if i go to the Dr tomorrow and plead my case to get back on the narcotics and have a second chance given the circumstances, or if I just succumb to a non-narcotic med and hope it works, and if so, which one? I tried Ultram before being on the narcotics years ago and it did NOTHING for me. I have been off work 3 weeks now (went in 1 day each week) and I need to get back. I need some advice on an effective non narcotic medicine or if I should try to get back on the percoset and basically beg and plead. I feel like they think I am a drug addict now.

All advice appreciated! Any non-narcotic meds that work for others please let me know!

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 6801
   Posted 4/18/2012 5:32 PM (GMT -6)   
Been a long time since you last posted. Unfortunately, I don't think many are going to catch your new post because this is such an old thread. You might want to pose your story/question in a new thread so more will read it.

Soun ds like you are going through withdrawal. Frankly, I don't know why you have had such pain after having a resection. Normally people once they get through the surgical recovery period find that their symptoms are gone. I'm surprised your GI has investigated what is causing you such pain.

I have been taking Tramadol for about 8 years. Perhaps the dosage of the Ultram they gave you was too low if it didn't bring you any relief.

Sorry you are suffering so.....
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

bmorgil
New Member


Date Joined Oct 2013
Total Posts : 15
   Posted 10/27/2013 11:11 PM (GMT -6)   
Been on 1 10/325 Vicoden in the AM and in the PM 1 more. If I am having a particularly bad time 1 more in the afternoon. That's the way I have been doing it 10 years. If you are of an addictive personality just stay away. I am very weary of those they are my salvation. I am on Hysiclo and Dycsiclomine for those 10 years also. I have been through 8 surgeries In 4 years for fistulas. In 2004 after the surgeries I began to notice the Chron's disappeared when I was getting opiate based pain reliever. My Doctor had the faith in me to try it and we did. First if you’re insured you will be questioned on any large quantity. I count my Vicoden. I NEVER take more than one every six hours. If you can’t do this it’s a shame. You lose the vertigo after a few weeks and that will be that. If you like the feeling I don't understand you. Ruin your ability to get this much Vicoden by "getting' High" and you just burned the only bridge I know to stop the madness of this awful disease. 1 Vicoden and have a nice meal or plane ride or whatever you would like to do. Don't ruin it for yourself. For a high that feels like your motion sick.
Bob

bmorgil
New Member


Date Joined Oct 2013
Total Posts : 15
   Posted 1/27/2014 11:17 PM (GMT -6)   
3 10/325 Vicodin daily max for over 10 years.
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