crohn's disease bloating

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Gugibear225
New Member


Date Joined Oct 2011
Total Posts : 8
   Posted 10/21/2011 9:09 PM (GMT -6)   
Hello,
I am 17 years old and I have recently been diagnosed with Crohn's disease.
The worse symptoms for me are bloating and fatigue. Every night I go to sleep looking
like I am 6 months pregnant. No matter what I eat my stomach gets bigger and bigger and
bigger through out the day. lately it has gotten to the point where am bloated all day long. Its horrible.
I am a dancer and I have to wear tight leotards to dance every evening, It is very uncomfortable going
to dance class with a big belly. I am absolutely DESPERATE to get rid of this bloating. I will do ANYTHING!
Usually I eat very healthy. I eat oatmeal for breakfast every morning, I eat a lot of soup, plain baked potatoes,
chicken, and veggies. I also chew a lot of gum regularly, is this something that is adding to the problem? are there
certain foods that I should be avoiding? I have also started a new medication called Pentasa. will that help with my bloating at all?
Please HELP!!!!!! I am in complete misery about this!

Post Edited (Gugibear225) : 10/21/2011 8:22:52 PM (GMT-6)


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 5639
   Posted 10/21/2011 9:33 PM (GMT -6)   
Gum could make it worse, because you swallow air when you chew gum. I'd try giving up the gum for the time being.

Next step would be to keep a food diary and try to pinpoint any food intolerances. That could be a lengthy process, though, given you have no idea of what, if any, foods might be causing your bloating. A faster approach would be to try cutting out entire food groups at a time, eg gluten-free diet, dairy-free diet... even a very strict diet for IBD known as the SCD. (Specific Carbohydrate Diet.) If you search for it on here or google, you'll find loads of info about it.

Probiotics are another possibility. Think you have to take them daily for a few weeks or months to get an effect from them, but there is some scientific evidence available that they do reduce bloating.

The Pentasa might help through reducing the inflammation. It takes a few weeks to kick in, if you want to wait and see.

Sure some other folks will be along soon to give you better dietary advice than I. Good luck; I get a lot of bloating myself and hate it, but put up with it rather than modify my diet drastically :/

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 10/21/2011 9:46 PM (GMT -6)   
I used to bloat alot more than I do now. In fact I had certain sets of clothes that were bigger that I used during the bad times. I would be more hopeful about the Pentasa in combination with diet to help you. When the Pentasa starts working it should help the bloating. Stay up to date with your doctor and discuss the bloating with her too.

Post Edited (FunGuy) : 10/22/2011 8:17:39 PM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 10/22/2011 9:44 AM (GMT -6)   
Another thing to discuss with your docs is the possibility of a bacterial overgrowth. I had one and was getting really bloated and gassy especially after a meal. Turns out I had bacterial overgrowth. Was treated with a 10 day course of Cipro and a better/stronger probiotic and I was much better.

The gum could be causing some issues too as NCOT stated as you swallow alot of air when you chew gum. But definetely be sure to get on a good probiotic. You can find them in your local healthfood store. I use Primadolphilus Fortify by Natures Way. You can find it in the refrigerated section at your local health food store. Others use Culturelle, Align, or VSL#3 to name a few. Hugs~
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

Gugibear225
New Member


Date Joined Oct 2011
Total Posts : 8
   Posted 10/22/2011 4:18 PM (GMT -6)   
Thank you all so much for the help full tips! they are much appreciated!!!

Sultan
Regular Member


Date Joined Jan 2006
Total Posts : 182
   Posted 10/22/2011 10:00 PM (GMT -6)   
Well Well Well

I have simillar problem, I practice Muay Thai and I practice it sincerely every day but this year because of the bloating I do not practice it every day maybe twice a week.

To make long story short, the best thing I discover is to eat less and less if you eat less fat food, you will not have a many blooting

TakillRa
Regular Member


Date Joined Nov 2010
Total Posts : 489
   Posted 10/23/2011 2:28 AM (GMT -6)   
i find when i get like that ( like last week) I just stick to liquids until it mellows out.. ( tea, soups, shakes..that kind of stuff) And for the most part it calms down in a couple of days..
7 years with crohn's
remicade/benadryl/steroids( all at my infusions ever 2 months)
married for 13 years(been together for 20 this march)
39 years old with a lovely 9 year old daughter
"Bellydancer, Snakecharmer...Bellydance Snakecharmer!"...Beats Antique

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 5639
   Posted 10/23/2011 8:30 AM (GMT -6)   
I wish my liquid diet was calming down my bloating! =/

@Sultan - Eating less and less is what I did. It helped, otherwise I wouldn't have done it, but undereating has its own dangers. You shouldn't have to go on a drastically calorie-reduced diet to deal with Crohn's. Maintaining enough calories is even more important if you are young and/or highly active.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 10/23/2011 9:15 AM (GMT -6)   
Likani oatmeal is a very good thing even for Crohnies. And no it is not like corn flakes, which aren't bad for Crohns either. Not sure where you get that idea.

Oatmeal is a soluble fiber that is good for us, its kinda like a porridge. And corn flakes are not like the other sugary cereals. I know you are anti milk, but some (not me) are able to tolerate it just fine.
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 10/23/2011 11:24 AM (GMT -6)   
Well with diet being so individual, I find I have no issues with corn flakes. No need to search for articles, I go by what my body accepts and what it does not.
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

Gugibear225
New Member


Date Joined Oct 2011
Total Posts : 8
   Posted 10/23/2011 11:53 AM (GMT -6)   
Do you guys know of certain food groups that I should avoid all together? i know that Apples make me really bad, and I stay away from foods high in fat and sugar. I eat oatmeal every morning for breakfast so that is really good to hear! Any other foods that you would reccomend?

TakillRa
Regular Member


Date Joined Nov 2010
Total Posts : 489
   Posted 10/23/2011 12:14 PM (GMT -6)   
it's the peel on the apple that is hard to digest..carrots too unless you cook the snot out of them...for me its milk,beef,cheese,pork,beans,ice cream(anything dairy really)pop corn..anything that gives me alot of gas,high fat foods....i eat mainly chicken,fish,salads(which i am lucky..cause alot of ppl can't eat salad)
7 years with crohn's
remicade/benadryl/steroids( all at my infusions ever 2 months)
married for 13 years(been together for 20 this march)
39 years old with a lovely 9 year old daughter
"Bellydancer, Snakecharmer...Bellydance Snakecharmer!"...Beats Antique

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 10/23/2011 12:28 PM (GMT -6)   
You have to find what agrees with you and what doesn't. Diet it seems is very individual to each of us. What one can eat, another may have to stay far away from.

You might want to try to keep a food diary and keep track of those that bother you and those that don't. Remember also, that it may not bother you right after you eat it, but instead zap you the next day. That happens to me frequently.

I have alot of issues with fiber becuz I have the stricturing type of Crohns. So for me I stay away from raw veggies, popcorn, seeds/nuts, and peels. I follow a modified low residue diet all the time. This diet is what works best for "me". For me its easy to chew and easy to digest. Others have success with either SCD or Makers Diet. These diets are more restrictive, and must be followed to the letter to work properly, but we do have members doing well on these diets. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, Folic Acid and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

yohimbe
Regular Member


Date Joined Aug 2010
Total Posts : 109
   Posted 10/24/2011 11:50 AM (GMT -6)   
Even though bloating can be caused by gas creating foods and bacterial overgrowth, my main cause of bloating are spasms throughout the intestines. Think of a garden hose with a kink in it: Pressure builds up at the kink just like gas will build up.
 
I take Donnatal or Hyoscyamine to relax the intestines, I also lie on one side and gently massage and reposition the intestines, then to the other side.
 
A useful Yoga position is to lie down, face up, bring the knee up.
With your hand and arm, bring the knee across the abdomen all the way to the other side, even go with the spine in that direction a little bit. This major movement will cause the abdomen to relax and "push gas" downward. Do it gently a few times. Then do it with the other knee in the other direction.
 
The other position is to clasp the knee with both hands and press it into your abdomen, gently.
 
Walking, or if you have a stationary bike will make the bowels active and move, those thighs going up and down really signal to the abdomen: get moving ! 

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 10/24/2011 12:14 PM (GMT -6)   
Not sure if anyone mentioned it above, but I saw you eat veggies, so some gassy veggies are broccoli, cabbage, cauliflower, etc. which can cause bloating. Also dairy can cause bloating.
I get quite a lot of bloating and find chamomile tea with honey helpful.
Co-Moderator for Crohn's Disease and Epilepsy forums.
Crohn's Disease since the 1990s.
Close family member has had epilepsy for more than 45 years.

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1008
   Posted 10/24/2011 5:37 PM (GMT -6)   
You may also try eating a low residue diet as this makes it easier for the body to digest the foods. Things like eggs, cheese, chicken, fish, white bread, non wholemeal pasta and white rice. In other words no fruit, fibre, veggies or wholemeal stuff. It's not something recommended for long term but what they tend to advise if they want bowels relatively clear for scans etc without having to use a bowel prep. As foods are low residue they are easier to digest and so should reduce bloating. May be worth a go and if it settles down then reintroduce foods back in one at a time for a few days and see what triggers the bloating. No quick and easy answer as everyone is different.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.

mlee
New Member


Date Joined Oct 2011
Total Posts : 1
   Posted 10/25/2011 4:25 PM (GMT -6)   
For years I blamed my bloating and gassy bowel movements on my Crohn's.  Then 3 years ago my new GI doc ran a blood test for Celiac disease (an autoimmune disease triggered by the gluten protein (found in wheat, barley, rye and oats that are not certified gluten free)).  It turns out that folks with Crohn's are at a significantly higher risk of celicac.  I'm now gluten free and the bloating feeling is gone - I still deal with routine crohn's issues - going GF is not a cure-all, but it was a definite improvement.  But don't just go gluten free - talk to your doc about it and get tested first.  You have to take the test while still on a "normal" diet that includes wheat products.  
 
Really going GF requires alot to label reading as it is hidden in everything from soy sauce to corn flakes.  So, I wouldn't recommend it unless you knew you had celiac or a gluten intolerence. 
 
And of course as others have mentioned here lactose intolerence can also cause these symptoms and Crohnies are also at an increased risk for that.
 
Good luck

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17825
   Posted 10/25/2011 6:52 PM (GMT -6)   
Having IBS can also cause increase gas and bloating (happened to me), fibre supplements and probiotics daily and indefinitely has kept the gas at a minimal and bloating is completely gone.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~
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