fecal transplant

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mtgman
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Date Joined Mar 2005
Total Posts : 1285
   Posted 11/1/2011 1:03 AM (GMT -6)   
going mainstream...Mayo in Scottsdale is doing it now apparently.
I have an appt there tomorrow.  I'm going to inquire.
 

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 11/1/2011 1:19 AM (GMT -6)   
Wow, that's really exciting. Please do let us know how it goes!
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Levi
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Date Joined Nov 2009
Total Posts : 1552
   Posted 11/1/2011 7:35 AM (GMT -6)   
I just posted about this on the UC board. Everything I see about FT is for UC (or C-diff) I hardly ever see anything about it being tried on people with Crohn's, not to mention it's hardly ever talked about on this board, at least compared to how it's always a topic on the UC board.

Does it not look like it is as helpful to Crohn's sufferers?

Anyway, I find it amazing there doing this at a place like that! It's great. I don't see what this guy had, does it say in the video clip? (I'm at work...)
Diagnosed 10.2009 w/ proctosigmoiditis, probably pANCA+ Crohn's colitis
Symptoms since 10.2007
Pentasa, four grams/day
Rowasa enema, 3 grams every other night
VSL#3 DS four packet/day
Turmeric, digestive enzymes, boswellia, propolis, cat's claw, l-glutamine, fish oil, vitamin D, kefir, blueberries
Liver-Milk Thistle; Heart-Hawthorn, sometimes

IamCurious
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Date Joined Jan 2010
Total Posts : 2206
   Posted 11/1/2011 8:20 AM (GMT -6)   
Nicotine supposedly helps with UC and smoking is detrimental for Crohn's. But PB4 says that smoking is helpful for her Crohn's colitis. So perhaps a fecal transplant can be especially effective for Crohn's colitis, as well as UC and C-Diff.

Hopefully it will effective for your Crohn's too.
Male/59 DX ulcerative colitis Feb08, possible Crohn's colitis DX Mar10.
No Meds, allergic to Mesalamine. Remission since Mar10. Psyllium seed mixed with VSL3 especially helpful. Food journal instead of SCD.

Watch gluten, lots of fruit & vegetables (but no plums or kale), no soda, no HFCS, no trans fat, tea instead of coffee, no shellfish, few processed foods, no carrageenan.
Probiotics, fish oil, multivitamin, extra D3, K2, high gamma E, glutamine, magnesium, phos choline, resveratrol, S. Boulardii, boswellia, curcumin.
Nature created all of the locks, therefore Nature has all of the keys

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17876
   Posted 11/1/2011 4:57 PM (GMT -6)   
Babe is correct, smoking does aid with my crohn's affecting my colon, but I may very well be in the minority of crohn's colitis sufferers that find benefit (actually from the carbon monoxide from smoking that can benefit inflammation in the colon be it CD or UC) and for as long as I've smoked I've only had CD affect my small intestine when I first became sick with CD (at the same time affecting my colon and rectom and anus with perianal crohn's skin tags, showing the CD can affect more than one area of the GI tract at one time). I got really sick with my CD when I quit smoking for 3 yrs but since I started again, I only smoke 6/day...I am in NO WAY advocating smoking, I'm also WELL AWARE of the risks of smoking...my small intestines have not been affected by my CD since after the first 2 yrs of getting sick which was 20 yrs ago now.

I would consider shooting probiotics up into my anus to see if it would aid with my crohn's colitis, just don't have the balls to do it, need more info, don't want to waste probiotics, plus having the perianal crohn's skin tags always makes me leary when my proctitis acts up (inflammation in the rectom) when having to use rectal meds, those bumps/lumps on my anus make it quite painful when administering enemas for when my proctitis acts up (which luckily hasn't since I started taking probiotics orally daily).
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17876
   Posted 11/1/2011 6:40 PM (GMT -6)   
Hey tsitodawg,

yes I would quit smoking, I'd probably only have my colon removed as a last resort considering having it removed would just mean it would start affecting my small intestines.

Researchers say they are working on a med to mimic what carbon monoxide from smoking does for the colon, but only a "safer" med that wouldn't include all the harmfull effects from smoking....hoping this is around the corner, cuz I'd give up smoking if this med exsisted and actually worked.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Post Edited (pb4) : 11/1/2011 5:46:12 PM (GMT-6)


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 11/1/2011 7:56 PM (GMT -6)   
Oh dawg, you crack me up. I think you should go for it, and then let us know if it helps with the CD too.
Co-Moderator for Crohn's Disease and Epilepsy forums.
Crohn's Disease since the 1990s.
Close family member has had epilepsy for more than 45 years.

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 11/1/2011 8:23 PM (GMT -6)   
I actually was just reading an article the other morning on MSN's website about the couple that did the fecal transplant and had the option of via NG tube or enema to transfer it and how after a year or 2 suffering from C Diff it was the only thing that got rid of it for that person (I forget if the husband or the wide was the recipient)
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 11/1/2011 10:43 PM (GMT -6)   
my doc at Mayo dismissed it outright for crohn's today. oh well.
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

Levi
Veteran Member


Date Joined Nov 2009
Total Posts : 1552
   Posted 11/2/2011 6:43 AM (GMT -6)   
mtgman said...
my doc at Mayo dismissed it outright for crohn's today. oh well.
 
 
%$#&@. What was his reasoning?

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 11/2/2011 8:28 AM (GMT -6)   
Dawg , the nicotine is added in the form of drops to the smokeless device . I have a friend that uses one . Before I quit smoking I tried it and it made my head swim . I think you get more nicotine with it than with a cigarette . I think smoking helped my crohns but made a lot more of me feel like crap . Glad I quit .
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.
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