Soothing diet for esophagitis, gastritis and duodenitis???

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 1714
   Posted 2/10/2012 8:48 AM (GMT -6)   
I have an esophagitis, gastritis and duodenitis flare up and can hardly swallow up anything. I had a similar flare up exactly last month but that was before the endoscopy. I was put then on iv fluids and injections for around 12 days. I don't want to repeat it this month. It was a torture going to the ER twice per day to take the medications. I decided to take Sucralfate in addition to Nexium as my doc won't prescribe anything new ( I did not call him but I know this about him) before he sees the results of the biopsies (he seems to think that these inflammations are caused by one thing, Crohn's, as he repeated it twice that he is going to change my meds). Even a sip of water hurts. All I care about is swallowing my Entocort as I don't want an intestinal flare up at the time being. So, should I stay on soft food or liquid diet? Even Ensure irritates my stomach. What suggestions are there for soothing diet?
Your replies are highly appreciated.

Sera
Regular Member


Date Joined Apr 2011
Total Posts : 57
   Posted 2/10/2012 9:21 AM (GMT -6)   
Is it possible to get an emergency referral to a dietician to get a supply of elemental diet? I would have thought your doctor would have at least arranged an enterel feed as a matter of urgency (perhaps a nasojejunal line feed?) for you in this situation. I frequently suffer from flaring inflammation in the same areas as you've mentioned and have never been left to fend on things like Ensure etc. In fact I recommend avoiding Ensure - it's very rich and even diluted it can cause people to feel more ill if there's upper GI issues rather than lower down. In regards to diet I would recommend avoiding milk and milk-containing products as it actually increases stomach acid secretion which will make things feel worse.
 
In the mean time rice is a good standby (possibly even pureed with a little hot water to a congee-like consistency) as is cream of rice cereal, avacado smoothies (room temperature though whilst things are sore!). I have a list somewhere of soft&bland foods that my dietician wrote up for me which I'll go hunt out for you.

Post Edited (Sera) : 2/10/2012 7:27:26 AM (GMT-7)


minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 1714
   Posted 2/10/2012 9:33 AM (GMT -6)   
Sera, thank you very much. I don't know why I freak out an NG tube. I can't blame my doc as I haven't contacted him. It's me who wants to be treated at home and not to go to either ER or hospital. I try to take the 4g of Sucralfate a day and drink half a cup of banana juice with just a few drops of skimmed milk to take the Entocort. I'll see if this works or if I suffer more, then I will call my GI. BTW, my experience with dieticians is awful. Lovely disease, isn't it.

Sera
Regular Member


Date Joined Apr 2011
Total Posts : 57
   Posted 2/10/2012 9:43 AM (GMT -6)   
Dieticians can be terrible, especially if they're not specialised in IBD. Once when I was hospitalised in England I had a ward dietician who kept telling me the reason I felt sick was because I wasn't eating and kept trying to get me to eat roast beef ;) Bannana juice sounds like a good choice - do you have rice milk easily available to you over there as that's a very soothing choice for diluting juice. If you're avoiding the medical route, possibly testing out an organic low-fibre baby food might be a good choice too? When progressing from oral liquid to oral soft diets I've had good success with babybio carrot and pear varieties, but they are a european brand and I don't know what is available where you are.

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 1714
   Posted 2/10/2012 12:43 PM (GMT -6)   
Thank you, Sera. Well, I haven't tried baby food yet as I have always thought that I can't eat any veggies or fruits as I decided to boycott them a year ago. However, since you said that there is a low-fiber type, I'll give it a try. I can't imagine myself just living on banana juice until next Tuesday when the biopsy results are out. I get bored easily and need to vary my food.

dany1982
Regular Member


Date Joined Jan 2012
Total Posts : 158
   Posted 3/14/2012 12:49 PM (GMT -6)   
Hi minnietoty, how are you feeling? I'm going through the same thing, but my doctor doesn't want to send me to the hospital for IVs or injections. What type of injections did you do? He just wants to treat me with carafate and ppis, but I'm having bad side effects from the medicine and I don't know how much longer I can stay on it. What type of foods are you eating? Also you mentioned about the NG tube, did it help with the healing?
thank you
dany

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 1714
   Posted 3/14/2012 3:12 PM (GMT -6)   
Hi Dany, sorry that you are suffering. I can relate and know how it feels. My flare up was 2 months ago and I'm doing fairly well now (keep your fingers crossed). I think there are a number of things you should consider:
1. Look for the trigger. In my case it was my weekly Methotrexate i m injection. All of a sudden I developed a severe reaction and stopped it. Aslo, I was still on pred and it can irritate any healthy stomach. Mine has been sick for 14 years now.
2. Push your doc to relieve your pain. At the beginning when I fell sick, I went to the ER, they gave me Saline and Ringer's and Nexium and Zanatac iv. This did not put my symptoms under control. When I called my GI the other day, he told me to repeat these iv injections and fluids. Things became worse and I fainted. So, my mum called him and he gave us two options: either to be hospitalized or to see him in his office at once. I was on a wheelchair as I was fainting and I chose to see him. When he saw how sick I was, he decided to give me Saline and Ringer's lactate every 12 hrs. As for the meds: Nexium 40 iv, Zantac iv, Zofran iv and Alizapride iv. This treatment was intended to be taken every 12 hrs for 10 days. After the 10 days, I didn't become that better and underwent an endoscopy and a colonoscopy. These showed I have esophagitis, gastritis and duodenitis. However, my doc did not prescribe any meds before he had seen the biopsy results. So, I decided to take Sucralfate in addition to my daily Nexium 80 mg dose and Zantac. By time, things became better.
3. I can't understand what side effects do you have from Crafate and PPIs? Change them. I used to take every possible PPI on market until I found relief on Nexium.
4. I stayed for around 4 or 5 days literally not able to sallow anything and used to spit it at once. Even water was horrible and I liked the idea of not eating and taking iv fluids. However, my GI warned me that PPIs and stomach meds in general do not work unless there is food in the stomach. So, he ordered me o just eat jello or custard (get away from milk as this could worsen your condition) until my condition became better.
5. No, I haven't tried the NG tube yet but do not jump to the last resorts. Try first to ask your doc and insist that he gives you relieving injections at the time being. Since day 1, my GI has told me that whenever I'm vomiting or am very nauseated, he won't ever prescribe me oral meds and will give me either injections or suppositories. Fight for relieving your pain.
Hope this information is of any help.
If you have any other queries, please don't hesitate to post.
Keep us posted of how you do.
Hope you feel better soon:)

dany1982
Regular Member


Date Joined Jan 2012
Total Posts : 158
   Posted 3/14/2012 4:21 PM (GMT -6)   
Thank you for replying. How long did you stay on the medicine? Are you still on it? That seems very high dose. You didn't have any problems?
The ppis and H2 blockers give me a lot of side effects, insomnia, vivid dreams, headaches, dry eyes, nose and mouth, joint pain, weakness, anxiety, stomach crams, nausea, cough. I've tried all. For me nexium was the worse. I'm trying them now again to see if there is something that I can tolerate better. The carafate gives me bone pain, but hopefully I can tolerate that for a few months.
What did you eat beside custard and jelo. I find that fresh fruits and green vegetables (cooked or raw are the worse for me). Milk also. I'm stuck with chix soup, baked potatoes, rice and bread. How long did it take you until you could eat normal again.
I would imagine that injection antibiotics would be fine for the stomach. That is how I was planing to take them from now on.
Since my problems came after antibiotics for a root canal and too much ibuprofin.
Did you have pain in the esophagus? is it gone after two months?

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 1714
   Posted 3/14/2012 4:59 PM (GMT -6)   
I have been a GERD (reflux) patient for 14 years now. Vomiting and nausea are normal for me. When they increase, then it is when I seek medical help. I have been on Nexium 80 for 5 years now and can't lower the dose. I was before Nexium on Pantaprazole (Controloc) but developed severe reactions.
I would advise you to avoid liquid foods (e.g., soups) at the time being. Now, stick to jelo and custard for a week and then try soft mashed potato ( I boil the potato very well until it is very loose and do not add anything to it). If you could swallow it, then introduce food step by step but avoid liquids and abrasive, harsh food.
Yes, I had pain in my esophagus and even water hurt and I couldn't swallow it. I started to feel better after taking Sucralfate. This was nearly a month after the flare up. However, it could differ from one person to the other.
Try to take Carfate as prescribed: 4 g/day. It used to cause constipation which in part treated the persistent D.
Always check with your GI before taking any med. My colorectal surgeon thought by prescribing Metronidazole suppositories he would avoid my vomiting this nasty drug. However, I took them and started to vomit but my GI backed him up as he wanted to treat a proctitis flare up and decided to give me a daily im Zofran injection throughout the course of Flagyl. Now, he tries to avoid prescribing this med as it irritates my stomach severely.
Take care that Sucralfate has to be taken two hours before or after certain meds. Check this with your doc.
Try to be medicated first, then it will kick in and allow you to eat.
Take care!

cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1051
   Posted 3/14/2012 9:19 PM (GMT -6)   
I was given carafate, nexium, and donnotol..I was given other antispasmotics before donnotol but did not tolerate them well and told to take them 30 minutes before I ate anything..I was taking phenegren as needed at the same time..I had to eat bland and easily digestible..

Cindy
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, October 22, 2014 8:38 PM (GMT -6)
There are a total of 2,248,863 posts in 250,158 threads.
View Active Threads


Who's Online
This forum has 157420 registered members. Please welcome our newest member, fighter77.
481 Guest(s), 27 Registered Member(s) are currently online.  Details
CrohnieCJ, MarieLS, rescuemomma, <3, super20dan, fighter77, timcebu, victoriagrace, jovana, compiler, Fit2Btied, Carolinpa, tom g., lesweet1971, Dreadsteel, marchcat31891, WAORGANY, soystud, nvrthesame98, Walton, Abdul, roger41, sueg, Von Awesome, 1039smooth, motherearth3, organic farmer


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer