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tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 2/11/2012 1:32 AM (GMT -6)   
deleted by me

Post Edited (tsitodawg) : 2/20/2012 1:44:21 AM (GMT-7)


Crohnswifey
Regular Member


Date Joined Jan 2012
Total Posts : 70
   Posted 2/11/2012 10:11 AM (GMT -6)   
Bummer, but hopefully it will help! My husband just complained of sore throat, that throat spray helped, cepacol I think. They will tuck it behind your ear and tape so if it gets sore after a while just carefully re-tape it and move it, just make sure the length isn't affected. Im sure your wife will know, and be able to help. If its stuck in the same spot for a long time it can cause some skin breakdown, especially if you haven't been getting good nutrition. And about your MRSA infections, has anyone ever suggested hibiclens wash?

I think the NJ tube will help, you're in my thoughts! Stay positive, this WILL pass, it WILL get better!!! It's just a bump in the road, as you know all about!

sparkleplenty
Regular Member


Date Joined Nov 2010
Total Posts : 368
   Posted 2/11/2012 10:48 AM (GMT -6)   
No advice. Just wanted to chime in with a [[hug]] and good wishes. Hope the NJ tube gives you some relief!
Diagnosed w/Crohn's in 2005. Meds: Cimzia, Pentasa (2pill, 2xday), synthroid, allergy meds, B-12 (liquid), multi-vitamin, probiotics, verapamil (daily) and other migraine meds prn, and xanax, ambien and vicodin prn. No surgeries.

Have tried: sulfasalazine, Asacol, entocort, imuran, humira, remicade (serious joint pain/fatigue stopped after 2 doses), 6MP

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 2919
   Posted 2/11/2012 4:42 PM (GMT -6)   
Hi T'Dawg,
I'm glad that they are trying something different and not just leaving you to suffer! You certainly need a break from endless nausea and vomiting, and maybe with the NJ tube, you won't be in pain and can cut back on the pain meds too. Do you have any idea how long you will need to have it, or does it just go by symptoms? I'm sorry you have to go to this level of care, but I really hope it helps you to feel better. Keep us updated. I'll be thinking of you!
53 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Also have IBS. Disease spread 12/11 to distal ileum Dx. with c.difficile and gastroparesis 1/12.
MEDS: Pentasa- 6 500mg pills per day, Omeprazole, Xanax for sleep, Phenergan, Domperidone, probiotics

potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 2/11/2012 5:03 PM (GMT -6)   
Sorry you are going through this. Want to wish you well and send healing thoughts your way. (((HUGS)))

Potty Pooper

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/12/2012 5:31 PM (GMT -6)   
I'm not familiar with the NJ tube, other than through diagrams in old textbooks, but wanted to send you my very best wishes, Dawg.

Will you have to be in hospital while the tube is in place, or will you be able to stay at home and move around normally?

I hope it helps you, and gives you a break from the nausea and other horrible symptoms.

Ivy.
Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

llama_gal
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 2/13/2012 2:13 PM (GMT -6)   
Hi T"dawg,
Just a note to say hello. I hope you get some relief soon. I have never had the NJ tube you described, only the NG tube. I must say...I hated it, BUT it gave me much needed relief from the pain due to an obstruction. I was on TPN for about 3wks and loved that too. I hope you feel better soon. (((hugs))) kathy
Crohn's since '03

have used: Prednizone, Pentasa, Entocort, Asacol, to NO avail.

Resection of the small bowel 10/'11
75mg imuran daily
synthroid

still looking for right maintenance medicine to achieve some type of remission

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 2919
   Posted 2/13/2012 3:27 PM (GMT -6)   
Hey Dawg,
You are amazingly brave! I hope they hurry up and place the tube so you can start to feel better!!!!!
53 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Also have IBS. Disease spread 12/11 to distal ileum Dx. with c.difficile and gastroparesis 1/12.
MEDS: Pentasa- 6 500mg pills per day, Omeprazole, Xanax for sleep, Phenergan, Domperidone, probiotics

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 5958
   Posted 2/14/2012 12:55 AM (GMT -6)   
im wondering though if even if its going out the stomach, that you wont vomit it up? just from the spams. it wouldnt take much.. have they had any thought to just a "j" yube. despite your infections? just poking in through the skin into the jujenum? my G tube way back when was similar. and i could vent stomach pressure out of it. for relief. there is asite for gastroparesis support if you didnt know about it a "www.oleyfriends.com." .

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1540
   Posted 2/14/2012 6:44 AM (GMT -6)   
Hoping this will give your body the strength to fight some of those "demons" you're dealing with. Hang in there.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/14/2012 10:22 AM (GMT -6)   
Dawg, I haven't had any experience w/the "J" tube, but did have an NG tube for 6 weeks. I sure hope it works for you. I loved being on TPN but sure can understand the reasoning for NOT going w/TPN and a PICC line for now. Any type of "entrance" into you body via the skin has got to be risky and scarey w/MRSA. (((hugs))) Secure the "J" tube as securely as possible. The less it is allowed to move the less it is likely to irritate the "pathway".
My computer says I need to upgrade my brain to be compatible with its new software.
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