Crohns and constipation

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MDons
New Member


Date Joined Mar 2012
Total Posts : 3
   Posted 3/2/2012 1:50 AM (GMT -6)   
Hi all,
I have had crohns for about 11 years now, and I am just recently experiencing problems with constipation and boating. I am unable to go to the bathroom and almost look pregnant I am so bloated for 2-3 days and then I spend the following day in the bathroom. Anybody successfully use something other than a laxative? I tried that last weekend and it was really harsh and painful. O am being treated with Remicade infusions every 8 weeks. I would also like to hear thoughts on Remicade. I have not researched it a lot and it really concerns me. Anybody doing anything "natural" to alleviate symptoms? Also if anyone has any good ideas for boosting energy I am all ears. I have been unbearably exhausted for about a month now.
Thanks in advance, apologies for the multiple questions.
-M

MDons
New Member


Date Joined Mar 2012
Total Posts : 3
   Posted 3/2/2012 1:51 AM (GMT -6)   
Bloating** not boating.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 5638
   Posted 3/2/2012 7:29 AM (GMT -6)   
Constipation is a b****; I hate it. I don't know of any natural remedies apart from eating more fibre, drinking more water and exercising. (Note: too much insoluble fibre can make things worse. It's possible to go overboard on the fibre front.) If the state of your guts precludes eating more fruit and veggies, then about all you can do is take a laxative, I think. Some are gentler than others. Miralax (Movicol in the UK) is one of the more effective and gentler ones. Stimulant laxatives (eg Ducolax) are better avoided.

I don't have many strong thoughts about Remicade, except I feel certain that being on Remicade is a lot safer than having untreated Crohn's. The cancer risks are neglible, as far as I have been able to make out. The biggest risk of being on Remicade is developing an allergic reaction to it.

I'm on an elemental diet, if you count that as 'natural' :-/ ... Haven't been on it long enough to know if it's made any difference or not. Elemental diets aren't a very common treatment in Crohn's, probably because the drinks are so disgusting. Some folks follow the SCD (Specific Carbohydrate Diet) as a way of controlling/minimising their symptoms.

No ideas about boosting energy apart from the obvious ones, I'm afraid - get your iron and B12 levels tested to make sure you aren't anaemic. Reduce your workload if possible. And get some investigations done for the possible return of Crohn's: the recent constipation and fatigue may be signs of a flare-up.

conmire
Regular Member


Date Joined Jul 2011
Total Posts : 245
   Posted 3/2/2012 9:00 AM (GMT -6)   
I suffer from constipation from time to time though not as bad as yours, i find prune juice daily great and cooled boiled water first thing in the morning good also, hope you get some relief soon,Slainte
49 yr old female....Ireland
Married with 4 children

osteo-arthritis (both knees need re-placing) 3 arthoscopies
Taking zydol/---
Crohn's...colonoscopy and GA...

Asacolon 800mg x 3 times daily....Probiotics....Calcium 800mg daily...Vitamin D 5ug daily,cod liver oil 550mg

A few bacardis and diet cokes on saturday night with my lifelong friends and lots of love and laughter.....

Slainte.

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 6869
   Posted 3/2/2012 11:31 AM (GMT -6)   
Hi MDons.  Your question seems to come up a lot these days around here, I have no idea why!  But I have this same problem, as do several others, and I can tell you that I ultimately found relief with a mild laxative.  I agree with you - the first time I used a laxative it was not fun.  I ultimately played with the dosage until I found the right one for me - it keeps my bowels moving at an acceptable pace for me, and my stool is not so soft that it's a mess to clean myself.  I am using 1/4 dose of Miralax every other day.
 
I realize that sounds ridiculous, but if I don't use the laxative I will have a bm every 3 days or so, and it will end up being a pretty bad day of cramping and discomfort.  And the day before?  I will have had a whole day of achy, spasmodic pain on my right side.  So I was pretty motivated to find a solution.
 
I am eating a gluten-free diet these days, which has eliminated a significant source of whole grains.  So I am trying to keep my dietary fiber up with brown rice, and dried fruit (figs, raisins), and I do drink a lot of water.  I also try to stay physically active so I think I've covered all the natural ways to keep bowel motility up.  I just think that after years of chronic inflammation my colon motility isn't right anymore.  I'm due for a scope, and have no expectation of finding active inflammation because I'm feeling really good, but there's always the possibility that this issue is related to stricturing, right?  So talk to your DR about it, too.
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

Tess34
Regular Member


Date Joined Oct 2011
Total Posts : 29
   Posted 3/3/2012 8:36 AM (GMT -6)   
Hi DMons, I have to agree with the others. I too suffer from the constipation and bloating and it's not pretty, to put it mildly. I drink prune juice every morning and also use Miralax as needed and even mineral oil. I don't like putting all chemicals in my body either. I can't really eat the fruits and vegies unfortunately, and have stayed away from them for some time. I am having a scope on Tues to see what's up in there! Hopefully soon I will retry eating fruit and vegies as I miss them. And yes also exercise, walking I have found to be best. Good luck,
Tess

Meds: Apriso currently

bloated
Regular Member


Date Joined Jun 2003
Total Posts : 410
   Posted 3/3/2012 8:37 PM (GMT -6)   
I have this problem too! What sometimes works for me is drinking a tall glass of water first thing in the am and getting some exercise -30 mins- each day. If you find a somethng that works pleae let us know!

beca123
Regular Member


Date Joined Jan 2003
Total Posts : 223
   Posted 3/3/2012 10:55 PM (GMT -6)   
I started having horrible constipation issues after I started Remicade when I was younger and have had them ever since. I have also been on Biologics (rem then and now Humira); I wonder if the Biologics have anything to do with the constipation?

keepingfaith
Regular Member


Date Joined Nov 2011
Total Posts : 360
   Posted 3/3/2012 11:10 PM (GMT -6)   
i LOVE MIRALAX! It helps me so much! MMineral oil makes me go to the bathroom after about 18 hours and I feel cleaned out when I do go. Both miralax & mineral oil are easy on the intestines.

Biologics are healing inflammation so of course scar tissuee might form as paet of the healing process & cause 'constipation'.
Current medicine:Humira, Apriso,Zantac, Prilosec, Probiotics, Folic acid, B-12, Zinc supplements, miralax, Nortriptyline, tramadol, phenergan, zofran, lortab, flexeril.
Previous meds:
- Asacol
-Amitriptyline
- Flagyl
-Hydrocortisone suppositorys
-Prednisone(steroid refractory)
- Cantasa suppository
-Remicade( Had reactions/no benefits ):
In current flare since: Feb 2011
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