Highest CRP reading you've had?

New Topic Post Reply Printable Version
45 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

gleff
New Member


Date Joined Apr 2012
Total Posts : 3
   Posted 4/11/2012 3:28 AM (GMT -6)   
Hi All,

First post so be gentle ;)

As the title suggests, I'm just wondering what the highest CRP reading you've ever had.

In my case I had two very high readings.. Just prior to my first surgery and over the space of 1 year I had a CRP reading of 150. Then a couple of years ago I experienced another high reading. I started at 30 and within 3 weeks jumped to 192. I had an abscess caused by the disease. I didn't realise it could jump that high in such a short period of time so it kind of freaked me out.

So.. What's the highest you've ever had, and how quickly did it get there?

Geoff
My Crohn's Disease Experience - http://www.blog.gleff.com/2012/04/my-crohns-disease-experience/

Post Edited (gleff) : 4/11/2012 3:50:49 AM (GMT-6)


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 4/11/2012 3:36 AM (GMT -6)   
Son had one of 179 but for the life of me I can't remember the whys and where fors (and it happened in the last two years so shame on me!)

gleff
New Member


Date Joined Apr 2012
Total Posts : 3
   Posted 4/11/2012 3:58 AM (GMT -6)   
vixen said...
Son had one of 179 but for the life of me I can't remember the whys and where fors (and it happened in the last two years so shame on me!)


Was he hospitalised and in a lot of pain? I remember I was in pretty bad shape when I had 192 as a CRP. I spent most of my time in bed.

Geoff
My Crohn's Disease Experience - http://www.blog.gleff.com/2012/04/my-crohns-disease-experience/

Leebie3
Regular Member


Date Joined Mar 2012
Total Posts : 171
   Posted 4/11/2012 4:35 AM (GMT -6)   
well my CRP is currently 16.. yep. only sixteen! yet am in hospital on morphine because of the severe pain..

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 4/11/2012 4:44 AM (GMT -6)   
281 was my worst - needless to say as soon as the doctor saw that I was admitted straight to hospital, i was a bit of a celeb as it was one of their highest ever readings! But I can feel pretty rubbish when my CRP hits about 40, guess as I have other factors such as reactive arthritis to crohns that might be why mine shoots up so high when I flare!

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8382
   Posted 4/11/2012 9:47 AM (GMT -6)   
Mine was 4, taken at the peak of my allergy season (asthma flaring) and before I had good control of the Crohn's.
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

Leebie3
Regular Member


Date Joined Mar 2012
Total Posts : 171
   Posted 4/11/2012 10:28 AM (GMT -6)   
that's interesting Kazbern! The gastro registrar today told me that my level is only very slightly raised (should be 5 or under) so he has doubts that it's crohns :-s Wish they'd get it right!
diagnosed with IBS 2006.. docs querying IBD 2012.. undergoing testing.

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 4/11/2012 12:17 PM (GMT -6)   
Hi Geoff,
No he wasn't hospitalised, he has also run a temp of 40.2/40.3 and wasn't hospitalised then either, although they did say if his temp didn't go down he would be admitted(different occasions for these things) I am sure he must of been in pain and in bed but he really doesn't make a big deal out of it, just stays in bed and gets on with it so to speak.

I seriously can't remember exactly what was going on with him at the time though(I will have to trawl back through the posts because I can remember posting about it :) )

beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1615
   Posted 4/11/2012 4:03 PM (GMT -6)   
Just a note that CRP only loosely correlates with Crohn's activity.

And for some people, it never elevates no matter how bad their Crohn's gets. That's why CRP should only be considered a part of the whole picture and never as the whole picture itself.

gleff
New Member


Date Joined Apr 2012
Total Posts : 3
   Posted 4/11/2012 6:25 PM (GMT -6)   
True.. although they use it as a baseline on most people with Crohns to guage what's happening. In my case my baseline is actually 12 rather than below 5.. Anything above 12 and in my case it's believed something is happening related to crohn's (assuming of course I'm having crohn's symptoms) otherwise it could just be some other condition.

I realise it's not the be all end all but it must be significant enough for doctors to request the readings.
My Crohn's Disease Experience - www.blog.gleff.com/2012/04/my-crohns-disease-experience/

beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1615
   Posted 4/11/2012 6:50 PM (GMT -6)   
Some doctors use it; some don't.

Some probably rely too heavily on it.

It is informative for some patients but not for others.

Kimerz7
Regular Member


Date Joined Feb 2012
Total Posts : 25
   Posted 4/11/2012 7:51 PM (GMT -6)   
Those are some HIGH CRPs! I work in a hospital laboratory and you've shocked me! (My highest has been 8.)
Crohn's diagnosed in Jan. 2002. Currently on Humira, Asacol, and probiotic Megaflora.

Linn
Regular Member


Date Joined Jul 2008
Total Posts : 118
   Posted 4/11/2012 8:29 PM (GMT -6)   
my highest was 88. It comes down when you aren't flaring. Haven't had the pleasure of hitting triple digits yet...yeesh you guys ;-)
28-year old crohn-y almost done with 3rd year of medical school!

Currently take:
MTX 25mg IM qwk
Cimzia 400mg q2wk
Cipro 500 mg bid
Flagyl 500 mg bid
Prednisone 35 mg, always trying to taper
Culturelle bid
VSL #3 QD
LDN 4.5 mg qHS
Lichi superfruit QD
Pentasa 1 g tid
feraheme
turmeric caps
glutamine powder

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2739
   Posted 4/13/2012 11:44 AM (GMT -6)   
My GI cares mostly about Calprotectin in stool, ESR and then CRP. 5 years ago before I was diagnosed, my Calprotectin was 237 but this did not bother my GI. Now, I can have worse flare ups and the calprotectin is just 150 or even 45. As for the CRP, it never hit more than 13. Now, it is 5 and ESR is 34 and 72 and I'm in the middle of a flare up. IMO, they cannot to be considered the only markers of Crohn's.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 9928
   Posted 4/13/2012 5:40 PM (GMT -6)   

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/25/2012 9:43 AM (GMT -6)   
MinnieToty, I was using the fecal calprotectin test when it was first used in the USA - by Great Smokey Labs and exchanged quite a bit of correspondence w/the fecal calprotectin "inventor", Magne Fagerhol. Seems to me he was Norwegian but its been a long time now .... 2003 or earlier.

It took some cajoling to get my gastro to order it for me and she ordered it only to humor me and used it only for me .... until she finally became a believer. BUT ... we have come to the conclusion that the fecal calprotectin test is just what Magne had first intended ... an easy on the patient test to determine which way the patient's disease activity was trending - into remission, responding to mediction - or - increasing disease activity.

Magne had invisioned the fecal calprotectin test as a "kit" the patient had on hand to check any time he/she felt it was indicated and thus know when or when not to have to contact their gastro for improved treatment or treatment assistance.
My computer says I need to upgrade my brain to be compatible with its new software.

Post Edited (CrohnieToo) : 11/25/2012 8:47:05 AM (GMT-7)


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 9928
   Posted 11/25/2012 9:47 AM (GMT -6)   
I know I've had a faecal calprotectin test done. Never got the result back, unfortunately :-/

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/25/2012 11:34 AM (GMT -6)   
Heck! Didn't you ask?? Curiosity killed the cat. I would have HAD to bug them till they gave me the results or burst!!!

I was just looking at my script: the reference range for the caprotection now is <= 162.9 mcg/g and they instruct that it be frozen during transport now. Never used to. Just send at is to Great Smokies. But then this is WARDE. 6-9 days for results.
My computer says I need to upgrade my brain to be compatible with its new software.

pmedic
Veteran Member


Date Joined Nov 2009
Total Posts : 1679
   Posted 11/25/2012 3:00 PM (GMT -6)   
My CRP is never high even at my sickest. My highest was maybe 5 and that was when I was nearly bleeding to death from a long hard flare. Anemia is my indicator. The lower my hemoglobin, the worse my disease.
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008
Avascular necrosis bilateral knees from Prednisone. Surgery on left knee was Oct 2011,
No colon surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions.
Currently on Lialda, Ambien, xanax(prn) D3, probiotic, Rowasa, B12, fish oi

dinkley
Regular Member


Date Joined Feb 2010
Total Posts : 108
   Posted 11/26/2012 12:33 PM (GMT -6)   
My highest was "only" 97: unbeknownst to me, I was developing an abscess/fistula. When that baby popped and fistulized, my CRP went back to around normal and stayed there. My CRP was around this range for 6 years, and I'd feel sicker than a dog for weeks at a time, until the abscess popped out.

Aside: "they" are still not sure if I have Crohn's. Had UC and a colectomy/jpouch 20 years ago.

Devondumpling
New Member


Date Joined Oct 2014
Total Posts : 1
   Posted 10/4/2014 7:21 AM (GMT -6)   
Managed to get CRP up to 395 18 months ago, hospitalised straight away. Felt terrible pain for a week before they put me on steroids. Now the reading has got down to 2 this month. Doctors put it down to an unknown virus as all blood tests (even the ones sent to Porton Down) could not give them the answer (they thought it was West Nile disease or Dengue fever) Eventually their best guess was I was bitten by something when I was in Las Vegas for a stag weekend! (A critter that is!)

starreyedgyrl
Regular Member


Date Joined May 2013
Total Posts : 97
   Posted 10/4/2014 12:13 PM (GMT -6)   
217, when 6MP tried to kill me. My GI ordered an abdominal X-ray to make sure everything was okay, and put me on Humira immediately.

Penfolduk01
New Member


Date Joined Oct 2014
Total Posts : 2
   Posted 10/20/2014 6:27 PM (GMT -6)   
pmedic said...
My CRP is never high even at my sickest. My highest was maybe 5 and that was when I was nearly bleeding to death from a long hard flare. Anemia is my indicator. The lower my hemoglobin, the worse my disease.


Came across this thread whilst Googling for CRP levels info for my Crohn's Disease.

Pmedic hits the nail on the head. Blood serum CRP is a RELATIVE indicator of inflammation.

My last CRP reading was 16. Which is pathetic by the standards of some of the posts on this thread. But for me indicates high inflammatory activity in my guts. And I've just been started on Humira after inflammation was confirmed by a scan.

In fact, my CRP is normally so low the hospital failed to diagnose my Crohn's during my first investigations because my Serum CRP was in the "normal" range (0-5). I got fobbed off with it being a "stress/anxiety" reaction. Only after 3 years of progressively more agonising flare-ups did I show elevated serum CRP and got properly tested, diagnosed and treated.

Of course, now they know I present with low serum CRP, they know to look for relative shifts. Not the absolute number.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 9928
   Posted Yesterday 8:24 AM (GMT -6)   
It's interesting how some people's CRP never really rises or not by very much if it does.

I'd like to get copies of blood test results from the first 5 years of my disease before I became systemically ill (fevers, anaemia, malabsorption). I really, really would like to know if my CRP was elevated back then. Ever since surgery, it's been knocking around at 6-8. That's a result which is classed as normal and, compared to my pre-surgery results, it's certainly vastly lower.

My faecal calprotectin test a few weeks ago proved similarly borderline. However, I'm not satisfied everything is hunky dory. I'm not having fevers, but my iron dropped sharply for no apparent reason and I'm having a lot more adominal discomfort compared to last year. My IBD nurse tried to fob me off with reassuring me there was no sign my Crohn's was active, but I'd spent over 10 years being fobbed off and wasn't having any of it. To be fair to her, once I presented all my concerns in an email, she was excellent after that. Got me a fasttrack appointment with the surgeon, who (or rather her registrar) also tried to fob me off at first, but then agreed that it may be time to have an MRI scan. So I'm waiting on that and a flex sig.

I guess I'll soon find out whether I can have active Crohn's without an elevated CRP. My Crohn's affected my entire colon before; that's all gone, so even if it has come back in the small bowel, it's likely to be in a limited area; a few inches behind the stoma, or something.
Dx Crohn's in summer of 2000. (Yay skull)
Tried and failed: 5-ASAs, Azathioprine, 6MP, Remicade, Methotrexate, Humira.
Diet didn't make any difference either.
Became steroid-dependent.

Had surgery 2/13 - subtotal colectomy with end ileostomy. Currently on no meds and in remission. Also prone to depression and anxiety. Ask me anything >_>

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4347
   Posted Yesterday 3:22 PM (GMT -6)   
My CRP never raises, even when I had the bowel obstruction.
55 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, and again 10/14.

5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
New Topic Post Reply Printable Version
45 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, October 22, 2017 10:23 PM (GMT -6)
There are a total of 2,885,874 posts in 316,649 threads.
View Active Threads


Who's Online
This forum has 157752 registered members. Please welcome our newest member, CM..
348 Guest(s), 9 Registered Member(s) are currently online.  Details
AndLo, mattamx, mikeb2308, island time, Michael_T, The Dude Abides, gabybee, lucy147, Redpill


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer