Does anyone feel like they have to pee ALL the time????

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Stef17
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Date Joined Feb 2003
Total Posts : 1743
   Posted 4/25/2012 9:43 AM (GMT -7)   
I feel like I have to pee ALL the time. So much so that I went and got checked for a UTI, but I am fine.  I have NO idea what this is and I'm wondering if it might be connected to the CD.  I have Crohn's colitis, so I'm wondering if all of that is linked some how.  I have a friend with crohn's colitis (also a woman) who said she is experiencing the same thing, but not as "severe" as I am.  It's good to know I'm not alone, but are we the only two with this problem?
 
Have any of you has this? Or HAVE this? What do you do about it???  I'm not too keen on seeing a urologist.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18186
   Posted 4/25/2012 9:56 AM (GMT -7)   
I pee alot, but I figure that aging is contributing to that....I pee everytime I poop (which some days is more than 7 times but averages at about 6/day) and on top of the poop times, I find that I seem to pee more often throughout the day and evening these days. I don't really "do" anything about it...I figure it might be because I drink a lot of water to keep myself hydrated like we're suppose to with having an IBD.

If you feel something isn't right though, you should see your doc about it.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 7786
   Posted 4/25/2012 11:18 AM (GMT -7)   
could bowel inflammation be pressing against the bladder?
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1743
   Posted 4/25/2012 11:39 AM (GMT -7)   
Yeah - Kazbern - that's what I was wondering. I don't know if that's even possible. BUT... it's been like this for years and recently it's worse. So... I wondered...

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 7786
   Posted 4/25/2012 11:42 AM (GMT -7)   
I once had a bacterial infection in the vagina that made me feel like I had a UTI. It was weird. I had no vaginal discomfort, just bladder "awareness" and some pelvic pain. This was years before my Crohn's diagnosis. It was diagnosed via pelvic exam. My OB/Gyn treated me with oral antibiotics and it all went away, never to be repeated.
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 3100
   Posted 4/25/2012 3:31 PM (GMT -7)   
Hi Stef,
I go through times when I have that bladder pressure and need to pee all the time, and then at other times I seem to be ok. I am in the beginning of menopause, so it may be related to that for me, or possibly when I am constipated it puts pressure on my bladder. I drove to pick my daughter up from college a few days ago, and for a 5 hour car trip, I had to stop 4 times! Luckily I was alone, so I wasn't annoying anyone but myself! On the way home with my daughter I was fine...only stopped once. I know I don't have an infection, it's just how I am sometimes, and yes, it does drive me nuts!
53 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Also have IBS. Disease spread 12/11 to distal ileum. Dx. with c.difficile and gastroparesis 1/12.
MEDS: Pentasa- 6 500mg pills per day, Omeprazole, Metamucil, colace, miralax as needed, Florastor probiotics

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/25/2012 8:39 PM (GMT -7)   
Why the concern about seeing a urologist? Its the most logical idea at this point.

He might well suggest a cystoscopy and/or an IVP neither of which is any big deal except that sometimes they will script a bowel prep as for a colonoscopy so that a full intestine doesn't interfere w/images of the kidneys and ureters. The intestines don't have to be as squeaky clean as for a colonoscopy. The cystoscopy can actually be rather interesting. My urologist turns the monitor so I can watch and explains what we are seeing. There is no discomfort w/it and no more "embarrassing" than a vaginal exam and PAP smear, etc.
My computer says I need to upgrade my brain to be compatible with its new software.

OhCr@p!
Regular Member


Date Joined Feb 2011
Total Posts : 72
   Posted 4/26/2012 1:21 PM (GMT -7)   
I happen to be blessed with IBD and a bladder disease called interstitial cystitis (IC). IC's common symptoms are bladder urgency, frequency and pain. If you have urgency or pain, along with your frequency, you might want to look into this disease. Let me know if I can be of any help.
Finally diagnosed with UC 3/2012. Constant diarrhea and incontinence since 12/2010. I think I actually have Crohns since I get mouth ulcers and was hospitalized with ileitis for 1 week in 2005.

Current meds: Lialda 4xday, tums, immodium
Past meds: prednisone, rifaximin, entocort

I take meds for other health conditions: Interstitial Cystitis, Fibromyalgia, Asthma and Occipital Neuralgia

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1883
   Posted 4/26/2012 2:04 PM (GMT -7)   
My daughter had that symptom only when on Predisone.

livingwell249
Regular Member


Date Joined Oct 2011
Total Posts : 127
   Posted 4/26/2012 7:16 PM (GMT -7)   
It could be caused be a fungal infection which might also be causing the intestinal inflamation.

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1743
   Posted 4/28/2012 5:22 PM (GMT -7)   
I talked to my mom today - a nurse - and she told me that it could be from dehydration. I know for a fact I don't drink as much as I should, so I'm going to start with that. I'm going to start drinking more and see if that helps. If not, I guess I'll move on to a urologist....

Thanks for all of your ideas/suggestions. I really DO appreciate it!

firecracker1
Regular Member


Date Joined Apr 2007
Total Posts : 208
   Posted 4/29/2012 6:45 AM (GMT -7)   
I have had the same problem for years. Then I went to a Uro-Gyno. They specialize in gyno and urology issues. She diagnosed me with pelvic floor dysfunction. It is muscle spasms in the pelvic muscles that you don't necessarily feel, but it keeps you from being able to empty your bladder. So, you feel like you constantly have to pee. There is some therapy for it, but my insurance didn't cover it. The dr felt that years of alternately trying to hold in my poo until I could get to a bathroom and then at times have horrible constipation contributed to this. The pelvic muscles then, over time, become extremely tense and start to spasm. It has caused me a lot of rectal pain as well. Gentle yoga and relaxation helps me.
Meds: zoloft, gabapenten, lisinopril, zyrtec

Crohn's Disease with a failed seton placement for fistula, 2 perforations, 1 small bowel resection. Technically in remission, but still feel sick. Have joint pain, muscle pain, fatigue, nausea, D, and abdominal pain & cramping; recently diagnosed with Crohn's arthritis and gastritis.

OhCr@p!
Regular Member


Date Joined Feb 2011
Total Posts : 72
   Posted 4/30/2012 8:35 AM (GMT -7)   
NJmom - Prednisone seriously irritates my bladder as well.

Firecracker - I also have pelvic floor dysfunction, and did have pelvic floor therapy. It helped me quite a bit.

Stef - hopefully you get some relief soon!
Finally diagnosed with UC 3/2012. Constant diarrhea and incontinence since 12/2010. Suspect Crohns since I get mouth ulcers and was hospitalized with ileitis for 1 week in 2005.

Current meds: Lialda 4xday, tums, immodium, back on pred 4/26/12
Past: prednisone, rifaximin, entocort

I take meds for other health conditions: Interstitial Cystitis, Fibromyalgia, Asthma and Occipital Neuralgia

OhCr@p!
Regular Member


Date Joined Feb 2011
Total Posts : 72
   Posted 4/30/2012 9:10 AM (GMT -7)   
NJmom - Prednisone seriously irritates my bladder as well.

Firecracker - I also have pelvic floor dysfunction, and did have pelvic floor therapy. It helped me quite a bit.

Stef - hopefully you get some relief soon!
Finally diagnosed with UC 3/2012. Constant diarrhea and incontinence since 12/2010. Suspect Crohns since I get mouth ulcers and was hospitalized with ileitis for 1 week in 2005.

Current meds: Lialda 4xday, tums, immodium, back on pred 4/26/12
Past: prednisone, rifaximin, entocort

I take meds for other health conditions: Interstitial Cystitis, Fibromyalgia, Asthma and Occipital Neuralgia

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1928
   Posted 4/30/2012 9:10 AM (GMT -7)   
I had this prior to diagnosis. Pain, urgency to pee and urine discoloration. When I took tests a few times throughout last summer, I was marked with NO UTI's, no infections, just that I always dehydrated and that my pH balance was a little off.

What I found through research is that the cells are not absorbing the water, so even if you drink a ton of water (like I always have) and still remained thirsty, with tests showing up that you are dehydrated, the cells have been damaged in some respect.

I used to get pain when urinating a few times before diagnosis and it felt like I had to keep going when I stopped going. Today I supplement with things I've probably been deficient in for a while, and I feel like things are mostly normal down there, but that I do get some tiny 'pinch' feelings once and a while. I'm not thirsty all the time anymore thank God, but when I visit my naturopath I'm going to ask him about this.
College Senior, diagnosed severe Chrons/UC - Sept. 2011

Meds: 800mg asacol 3xdaily, NO more prednisone!
Dietary: Aloe Vera Juice, Multivitamin, L-Glutamine, Omega3 Fish Oil, Gluten-Free, VSL Probiotic
Amazing Herbs: Slippery Elm, Licorice & Marshmallow Root / Peppermint & Chamomile

Remission achieved in february by the SCD!
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