Is there any suggestion to rest my stomach?

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minnietoty
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Date Joined Dec 2010
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   Posted 8/31/2012 3:33 PM (GMT -6)   
I'm sufffering from a severe gastritis flare up. Though I take high doses of ppis and antacids, I can't see any slight improvement after a week. The reason def is 4g pentasa and 6mg entocort. I failed methotrexate injections as they caused me a severe gastritis flare up. I don't have naked eye ulcers in either my intestines or colon and so both my GI and the insurance company won't approve of a biologic.
I'm in a real dilemma. I need to rest my stomach by not taking pentasa and entocort. But if I don't take them, I will end up having a severe flare up. My GI warned me against reducing the dose of any. I did that the last couple of days in hope that gastritis gets better but all I got was D and cramps. So, I increased the doses again.
Does anyone know whether there are other immunosuppressants or 5ASAs in the form of injections. This is what I need at the time being to give my stomach a rest. I'll see my GI after a week and I need to have suggestions to negotiate w him.
Any advice will be highly appreciated.

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 9/1/2012 2:05 PM (GMT -6)   
Resting from meds sounds dangerous to me. How about talking to your doc about a soft diet or EN, supplements and the like--a nutritional way to rest your system?

minnietoty
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Date Joined Dec 2010
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   Posted 9/1/2012 4:00 PM (GMT -6)   
Sammies, thank you very much. It seems I was mistaken in my title. I didn't mean to go off medicines totally but to find a med, esp. an injection that would control my Crohn's symptoms and at the same time does not irritate my stomach. I like your suggestions regarding EN and supplements.

Djin
Regular Member


Date Joined Jan 2010
Total Posts : 262
   Posted 9/1/2012 6:48 PM (GMT -6)   
I dont know if it's the case, but my reflux only lessened, even with anti acids, when I cut the lactose.

Sour good new for me.

minnietoty
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Date Joined Dec 2010
Total Posts : 1669
   Posted 9/1/2012 7:22 PM (GMT -6)   
Djin, thank you very much for the advice. But I still insist that pentasa and entocort are the culprits. I only eat toast w very few cheese spread on top of it. I take in the morning half a cup of tea w half a teaspoon of skimmed powder milk. I do also drink banana w few drops of skimmed powder milk. I don't think that lactose is my problem.

CrohnieToo
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Date Joined May 2003
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   Posted 9/1/2012 11:29 PM (GMT -6)   
It may well be that you aren't feeding your tummy enough to protect it from the meds. There are very few meds that I can take w/o food. Ample food.
My computer says I need to upgrade my brain to be compatible with its new software.

minnietoty
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Date Joined Dec 2010
Total Posts : 1669
   Posted 9/2/2012 1:33 PM (GMT -6)   
ChronieToo, thank you very much. Well, I still can't eat properly and don't want to push myself to eat in order not to vomit.

CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 9/2/2012 9:57 PM (GMT -6)   
You can't give yourself some cream of potato soup, soda crackers and your meds? Or come cream of rice, toast and meds? Tuna noodle casserole and meds? Scrambled eggs and gluten-free toast and meds?

An empty tummy, even not taking any meds, tends to release stomach acid that has nothing to do but eat away at the empty tummy, i.e. at the tummy itself.
 
Think of it this way: you have gastritis. Gastritis is inflammation of the gi tract, right? Of the tummy? The tummy meds you are taking are to reduce the production of stomach acid, not stop its formation entirely. So there is still some tummy acid in that inflamed tummy w/nothing to do but cause more inflammation.
 
Try giving that tummy acid something to do by giving it a reasonable amount of something to work on, something bland and easy to digest. Tummy meds to reduce the amount of acid and something bland and easy to digest for the remaining stomach acid to work on rather than sitting there working on your tummy lining. That food also buffers your tummy against the Entocort and Pentasa but doesn't affect their effectiveness.
My computer says I need to upgrade my brain to be compatible with its new software.

Post Edited (CrohnieToo) : 9/2/2012 9:08:38 PM (GMT-6)


cindywchrones
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Date Joined Mar 2005
Total Posts : 1051
   Posted 9/3/2012 12:23 PM (GMT -6)   
I do feel your pain as a severe CD gastritis sufferer in my past..My stomach hurt and I felt like vomiting whether I ate or I did not eat..I was given liquids by my dr to rest my stomach..It still felt like my stomach was trying to eat itself..It is hard to put food on your stomach when it is inflamed..I continually had a inflamed lining with bleeding every scope in my lower stomach going into my upper small intestines no H-Pylori, no cancer..I was given donnatol and liquid carafate before eating..I was also on phenegren and nexium..It seemed like nothing was helping..Till I was given something to suppress my immune response it was just a vicious cycle..I was stuck it seemed like on meal replacement shakes and baby food..I had my own selves in the pantry..I have inflammation and am flaring right now but my stomach is not affected currently..but I do remember full tummy and empty tummy it was all pain..I remember my weight was in the toilet then to..I do not like the predi weight gain of three years but would have I done it again to get out of the vicious cycle..probably unless I was given a better alternative which I was told there was none for me..I wold get some relief from flagyl for some strange reason??
DX Crohns Disease 2004- one resection--Current medications Predisone 10mg, Atenolol 25mg, and Synthyroid 75mcg--Prior Medications Antibiotic combos, antispasmodics, sulfazine,anticholergenics, and antacids--don't tolerate most drugs well--Currently doing Gluten Free since Sept 2011!--D3 & B Complex w/ C..

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 1669
   Posted 9/3/2012 4:43 PM (GMT -6)   
ChronieToo and CindywCrohnes, thank you very much. I really appreciate it. @CrohnieToo. I def like the recipes though I can't tolerate eggs at all. It causes me severe d. I know that acid is really harming my stomach but I still can't eat anything more than toast. I think it will take some time.
@ CindywCrohnes. Me too whenever I have a scope there is chronic antral gastritis and duodenitis but I was never told it is coz of Crohn's. My stomach is very sensitive. Early in August I had a similar flare up and my GI prescribed then reluctantly nexium and zofran iv injections. Since the safety of nexium iv has not been established for more than 10 days, so I can't take it this time and have to wait till meds kick in though my stomach has always been a pain in the neck.

CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 9/4/2012 9:19 AM (GMT -6)   
Minnietoty, I'm so sorry you are going thru this. Only you truly know what you are suffering and what response if any you get from the things you try.

Yup, I've had good luck w/an immune modulator too. Unfortunately, Imuran can take up to 6 months to take full effect and it needs something else to help it along during those 3 to 6 months or so.

Flagyl was a miracle drug for my Crohn's - but I encountered peripheral neuropathy w/it and could only take a half-dose. Fortunately, even the half dose worked for me leaving me w/a tolerable PN.

Maybe peanut butter and soda crackers??? (Couldn't pass up one more idea *wicked grin*)
My computer says I need to upgrade my brain to be compatible with its new software.

dfdavedf
Veteran Member


Date Joined Jan 2010
Total Posts : 995
   Posted 9/4/2012 9:33 AM (GMT -6)   
I fall back to bone broth cooked for 24 hours to get all the gelatin. If I do not have this then I buy organic gelatin and have it with very simple foods. Perhaps you might try gelatin with diluted grape juice.
If the bone broth is ok on your guts then you might add some very well cooked carrots and some plain baked meat. You can pureee this, add a bit of herbs, and you will have a savory smoothy. Very simple and healing foods for those folks that can take it.
 
I would eat small meals as often as I can stand it. Can you take fats, like avacado, maybe yogurt made with 1/2 and 1/2 (high calorie and low lactose).
Have you tried activated charcoal?
 
I could not take high doses of pentasa either, but I was lucky as I am able to get by with a low dose. I was also lucky as pred was making me crazy but entocort had virtually no side efects for me.
 
I know this is not an answer to your question but just trying to throw some suggestions your way
 
Dave

minnietoty
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Date Joined Dec 2010
Total Posts : 1669
   Posted 9/5/2012 11:41 AM (GMT -6)   
Chronie and Dave, I'm very thankful to you. I like your suggestions very much but it seems my Crohn's will let me fall back to just ensure. I'm flaring up:(

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 9/5/2012 3:39 PM (GMT -6)   
Do I remember correctly that you had a problem w/your veins w/PICC lines, etc.? TPN did wonders for me.
My computer says I need to upgrade my brain to be compatible with its new software.
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