What do you take for pain?

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misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 9/7/2012 8:03 AM (GMT -7)   
I am currently on Apriso for maintenance and taking all of my vitamins. Over the last few months I have been in a flare that seems to have pain that comes and goes, but when it hurts, I am in a lot of pain!

I am still trying to work through the pain and strong pain meds like Loritab tend to make me sick. Tylenol isn't touching the pain, so I'm wondering what do all of you take?

Or do you have pain? Mine is sharp down the right side of my abdomen. It's horrible!

Thanks for your help! I've called my dr to talk to him about it, but just wanted to get y'alls opinion too

RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 145
   Posted 9/7/2012 8:54 AM (GMT -7)   
Sounds like it may be your terminal ileum. Mine was always sharp pain on my right side until I had my surgery. If hydrocodone/apap which is lortab, vicodin, norco just different doses is makes you sick. There are alternatives. I take vicodine which is the 5/500 but I can't take it without an anti-nausea med like Zofran or procloroperazine (compazine). Promethazine is for when you want to sleep all day. If this is not a solution, then try tramadol (ultram) which is a step down from hydrocodone but unfortunately want touch me anymore. It is a non-narcotic so MD's usually don't mind prescribing it. Also, try the heat pad when you are home because this really helps better than the meds for me and many of patients. Certain hot teas also help lower pain and bloating. Don't wear tight fighting clothes too. Hope this helps. Also, no nsaids like ibuprofen.
38 yo-Crohns since '00, Ileocecectomy in 09 with post surgical wound infection. Surgery in '10 to correct wound inf., found MRSA and staples which never dissolved from 3/09, removed a few in. of colon. Also, MRSA infections since 08. Granuloma cysts in mouth-oral surgery X2 in '00, Fistula colon 2006, Rectovaginal Fistula '08, 2 Ulcers Rectum, Joint pain, Kidney Stones, IC, Fibromyalgia, migraines

misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 9/7/2012 9:04 AM (GMT -7)   
Thanks RXCrohnie!

Yes, I had a ct scan in July and they said I had inflammation in my terminal ileum. I had been on prednisone and felt better, but last week the pain started again. Last night was horrible, waking up at 2am in a lot of pain.

All I had for dinner was plain spaghetti noodles and like 4 shrimp, so I know it wasn't anything I ate.

I haven't tried a heating pad, but I will! My stomach feels slightly bloated, but I haven't had any trouble going to the bathroom.

I have had loritab before and was given morphine at the hospital a few months ago, but they gave me Zofran with it to help keep me from getting sick and I was fine.

I have Promethazine and it works great at night, but it puts me to sleep!! haha

Hoping the dr will call me back soon so I can talk to him about what to do next. Is this just a part of my Crohn's or do I need to go see him for testing.
30y/o F, diagnosed with Crohn's Disease at 25 y/o. Previously on 6mp

Myrne
Regular Member


Date Joined Jun 2009
Total Posts : 452
   Posted 9/8/2012 9:32 PM (GMT -7)   
My GI will prescribe Tramadol for pain when I need it. It is mild, but better than Tylenol, and takes the edge off for me. Plus it has the added benefit of bulking up my stool a little too! I only take the Tramadol when I am in a flare and in the process of tweaking my meds or getting additional testing to see what is causing the pain. I think this is important, because the inflammation should really be what is addressed first and foremost. Being on pain meds long term does not seem ideal for Crohn's Disease (although I know there are some rare situations where this is the only option for comfortable living), especially since they can be constipating and may cause additional gastro issues.

stinky634
Regular Member


Date Joined May 2012
Total Posts : 157
   Posted 9/9/2012 1:01 AM (GMT -7)   
Tramadol won't even phase me. The first time I took it, it didn't feel like it did anything.

I told my Dr this and he gave me Vicodin. This has been a life saver for those nights when I cramp up severely. As mentioned, Zophran is great for nausea if thats what it does to you. I have only needed the Z a few times, unrelated to the pain meds.

In the hospital they gave me dilauded in the ER and morphine in the med/surg floor, both are awesome but probably too much for home use, haha.

Talk with your Dr, I felt very awkward asking for pain meds even though I know I am not an abuser, but its still awkward, but I am glad that I got something that works.

allbluezoo
Regular Member


Date Joined Feb 2012
Total Posts : 446
   Posted 9/9/2012 8:33 AM (GMT -7)   
Dilaudid and done! I've stepped down to Vicodin at home now but post-op dilaudid was the only thing that even got close.
Melissa
Dx Crohn's disease 2003
Hospitalizations to numerous to list
Prednisone, Rowasa, Pentasa, 6MP, Remicade, Asacol, Humira, Imuran, Flagyl, Cipro
Total proctocolectomy with end ileostomy 12/15/2012
Currently battling peristomal Pyoderma Gangrenosum, tx topical steroid ointment, silver powder, aquacel AG dressing and back on Humira

misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 9/9/2012 11:48 AM (GMT -7)   
Thanks everyone!! The pain has subsided. My dr has put me on Entocort to help with the flare and hopefully it will keep the pain away. I am usually pretty good at pushing through during the day, it's at night when it gets really bad. My Dr. mentioned that if this round of steroids doesn't help that I'll most likely be starting on Humira, which really worries me, but if it will make me feel better, i'm willing to try it!
30y/o F, diagnosed with Crohn's Disease at 25 y/o. Previously on 6mp

Deakin
Regular Member


Date Joined Mar 2011
Total Posts : 138
   Posted 9/11/2012 6:30 PM (GMT -7)   
I dont know if this is similar - when Im not on Entocort I get a lot of pain *** Especially in the middle of the night... but also I had pain when peeing.

On entocort I didnt get any of this pain. My GI wouldnt consider this pain to have anything to do with my Crohns. So i was sent to a uriniolgist. He scoped me (into my bladder) and found a fistula.

Entocort reduces my crohns i guess so that so fistula isnt draining as much into my bladder. but when Im not on steriods or when im flaring - wow - the pain comes right back.

I also have crohns in the ilem.... the scope into my bladder showed the small intestine was pushing into my bladder. and right beside that was air bubbles which was the fistula.
God Answers Prayer!
Male 36
Dx - Jan 2011.
Used Prednizone, - now on Imuran/Entocort.
Dairy Free
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