Prednisone and lack of sleep

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cannynancy
Regular Member


Date Joined Apr 2010
Total Posts : 217
   Posted 9/19/2012 5:27 AM (GMT -7)   
Any suggestions on how to get some sleep?
 
I am on a pred taper--currently at 25mg, going down 5mg a week.  For a week now, I have not gotten more than 4 hours of sleep.  I fall asleep at 10pm and am wide awake by 2am.  I was taking 2 benadryl before bed, but it has stopped working.  The only caffeine I have is at 7am in the morning.  I eat supper at 5pm.  I don't watch tv in bed, just read a few pages until my eyes get heavy.  I don't know what else I can try.
 
Many thanks for reading and responding.

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 2885
   Posted 9/19/2012 5:35 AM (GMT -7)   
Hi...can you do some light exercise? It sounds like you are doing everything else right.
Age 45-50, female. Still holding on with just Pentasa and cholestyramine! Doc says most of my problems are side effects of my resection ('90) and my disease is doing GREAT and no sign of a repeat fistula. Meds now to control the lack of TI and gallbladder....happy to be out and about.

cannynancy
Regular Member


Date Joined Apr 2010
Total Posts : 217
   Posted 9/19/2012 5:39 AM (GMT -7)   
Thanks for the reply HabsHockeyFan. I have fallen off my exercise since the start of this flare. I'll start again now that I'm feeling better. I certainly have the time to do it :))

Datawraith
Regular Member


Date Joined Aug 2011
Total Posts : 263
   Posted 9/19/2012 9:34 AM (GMT -7)   
Hi nancy,

I suffer from insomnia when on Prednisone, the last blast I had of it @60 mgs, I would easily stay up for 2 days straight. It was kind of funny that last time too, the GI was surprised and I asked him, "you really weren't aware it could affect someone like that?" I chuckle to myself knowing I've had the disease longer than he's been alive. smilewinkgrin

As Habs said, sounds like you're doing the right things. I do the same, exercise early in the AM, meditate before going to bed and read in bed. If I do manage to sleep, it's brief, 3 to 4 hours.
Taking the Prednisone I already know the drill and how it's going to affect me, I bear with it for those few weeks the best I can and once at the lower end of the taper, I manage to sleep.

Djin
Regular Member


Date Joined Jan 2010
Total Posts : 262
   Posted 9/19/2012 3:06 PM (GMT -7)   
Hello,
 
How about some patience  :).
I just tappered to 15mg and started sleeping well again.
 
Or stop the benadril then start over after a week...
 
Then you can avoid slleping pills.
 
Luck,
Daniel
 

Noulls
Regular Member


Date Joined Jun 2005
Total Posts : 94
   Posted 9/19/2012 4:35 PM (GMT -7)   
After my first couple of sleepless experiences on prednisone, I now request an Ambien prescription if I have to use steroids - including in the hospital. Benadryl works when you are just exhausted and need a few hours of sleep. I am usually able to get by with fewer hours of sleep while on steroids.

cannynancy
Regular Member


Date Joined Apr 2010
Total Posts : 217
   Posted 9/19/2012 4:37 PM (GMT -7)   
Hi Datawraith,
Thanks for sharing. I was on prednisone once before but started at 20mg and didn't have any insomnia. I guess I'll just wait it out. Good thing I like to read.

Hi Djin,
Thanks for responding. I don't want to take sleeping pills. I'll work on the patience, though :)

Myrne
Regular Member


Date Joined Jun 2009
Total Posts : 452
   Posted 9/19/2012 6:20 PM (GMT -7)   
Hi cannynancy - Are you taking the Prednisone first thing in the morning.  I would take is as soon as you wake up, like 5 or 6 in the morning.  That always helped me sleep better at night.

cannynancy
Regular Member


Date Joined Apr 2010
Total Posts : 217
   Posted 9/19/2012 7:44 PM (GMT -7)   
Hi Noulls,
I'm hoping to avoid prescription sleeping pills. I don't want to add another med to the list. I hope when I get tired enough I will sleep.

Hi Myrne,
I am taking the prednisone at around 7am after I have breakfast. I don't like to take it without food in my stomach. Since I'm up anyway, I try having breakfast earlier and see if taking the prednisone earlier helps.

Thanks for all the helpful suggestions.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 3059
   Posted 9/19/2012 7:52 PM (GMT -7)   
Hi cannynancy,
I won't let my GI prescribe Prednisone without xanax to go with it. I take .25 mg at bedtime and it counteracts the pred insomnia for me. I don't take it during the day...exercise helps with the daytime jitters.
53 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Also have IBS. Disease spread 12/11 to distal ileum. Dx. with c.difficile and gastroparesis 1/12.
MEDS: Pentasa- 6 500mg pills per day, Omeprazole, Metamucil, colace, miralax as needed, Florastor probiotics

cannynancy
Regular Member


Date Joined Apr 2010
Total Posts : 217
   Posted 9/20/2012 5:25 AM (GMT -7)   
Thanks Gumby44,
I have some Xanax. I'll give it a try if the insomnia gets too bad. Slept from 11:00pm til 5:00am today. If I can keep doing that, I'll be happy.

Datawraith
Regular Member


Date Joined Aug 2011
Total Posts : 263
   Posted 9/20/2012 9:00 AM (GMT -7)   
You're welcome nancy, I also avoid prescription sleeping pills. If my sleep schedule is off, I'm not on Prednisone, I may use Melatonin since it's all natural.
Glad to see you were able to get some sleep last evening. :-)
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