Polyp in Terminal Ileum

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gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 127
   Posted 11/19/2012 12:21 PM (GMT -7)   
Hi guys!
Just had my colonoscopy this morning.
Feeling tired, but ok.
Doc said there's no real sign of active crohns throughout all my guts, but he found a polyp in my terminal ileum which he cut out.
Does this sound normal to you guys???
I didn't know you could get polyps in the ileum.
I just tried to do a google search but no luck.
Even though I have a rectum to skin fistula, my rectum looks good!?
So how come I still have a fistula?
My doc even suggested that I might not need to stay on remicade!
Is he serious? How do you think I got this good?
argh
Also, since my scope came up mostly clean, I'm worried he might push for surgery to repair the fistula.
sigh
This is all good news, I guess, but it doesn't really match with how I feel.
I'm almost disappointed.
Be kind, for everyone you meet is fighting a great battle. -Philo of Alexandria

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/19/2012 1:14 PM (GMT -7)   
Well, a colonoscopy can't tell anyone a dibblety-dang bit about what is going on in the other 17 or so feet of small intestine (ileum) so there "could" be Crohn's disease activity going on elsewhere in the small intestine beyond where the scope can reach.

You've got a fistula you stay on Remicade - at least until it is totally healed and gone. And, frankly, probably better off staying on it for an extended period of time.

And what does he mean by no "real" signs of active Crohn's??? Especially "thru out all your guts" since the scope can't reach most of the small intestine which is where Crohn's is most likely to reside. Crohn's tends to skip areas rather than spread evenly like ulcerative colitis and it usually skips upwards rather than downwards so would be more likely to skip further up the ileum rather than further down the cecum and colon.

This doctor is a gastroenterologist?? Does he have many Crohn's patients? Or is he learning on you???
My computer says I need to upgrade my brain to be compatible with its new software.

gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 127
   Posted 11/19/2012 5:01 PM (GMT -7)   
It's all very wierd!
When I was diagnosed as a kid, it was all in my ileum.
Fast forward 10 years and it's mostly in my rectum with a couple of pockets of trouble in the colon.
3 years later I have a clean scope, even in the rectum where a fistula is supposed to have sprung out, and polyp in the terminal ileum.
So what does this all mean???
I'm not going off my remicade, no way!
I don't care what he says!
Yeah, he's a GI, and pretty experienced, but kinda douchey.
I'm just so surprised that my guts are this good.
In fact, I almost feel like it's a mistake.
:(
Be kind, for everyone you meet is fighting a great battle. -Philo of Alexandria

gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 127
   Posted 11/19/2012 8:20 PM (GMT -7)   
I've got a 99.59 degree fever 9 hours later.
Should I freak out now or later?
Be kind, for everyone you meet is fighting a great battle. -Philo of Alexandria
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