How long have you been in remission after first bowel resection?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

NY-Sooner
Regular Member


Date Joined Sep 2009
Total Posts : 417
   Posted 12/6/2012 9:41 AM (GMT -6)   
Does anyone know of a person who has had a bowel resection for CD, and then afterwards, has NEVER never had any type of reocuurence or symptom of  CD again or at least not for many many years?.  If so, do they take any meds?

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 7199
   Posted 12/6/2012 9:57 AM (GMT -6)   
My friend's son was diagnosed at age 16, had a resection a few months later and has not had any significant disease since then (about 10 years). He takes Pentasa, and maybe something else, I am not sure.
*******************
50 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (96 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11. Colonoscopy found no evidence of inflammation on 8/16/12.

clonehead
Veteran Member


Date Joined Jan 2011
Total Posts : 613
   Posted 12/6/2012 10:58 AM (GMT -6)   
I hope I can continue to answer this question affirmatively. It has now been 18 months since my resection, and I continue to have normal bloodwork and no symptoms. I have taken Humira bi-weekly since my surgery.
Diagnosed in Feb 1989 at age 14
Just diagnosed, worried about future?
Tips on recovery from 1st surgery

1 Resection: 4" at terminal ileum + 24" of jejunum - June 2011
Current med: Humira (since Mar 2011)
Also take: monthly B12 injection, Calcium, Multivitamin

Dingleeire
Regular Member


Date Joined Feb 2012
Total Posts : 155
   Posted 12/6/2012 10:59 AM (GMT -6)   
My son had a bowel resection just about a year ago, recent scope shows 3 small ulcers at resection site. Had been taking Asacol and 6mp for maintenance, just started Budesonide 9mg 2 days ago. So I guess remission has not been very long for him.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/6/2012 9:19 PM (GMT -6)   
I had a resection of 18" of the mid-ileum in early 1978 and was blessed w/a TWENTY YEAR REMISSION of symptoms.

What is your disease status now? Is your disease active and causing some serious problems? Are your symptoms in temporary remission due to prednisone?
My computer says I need to upgrade my brain to be compatible with its new software.

zoso73
Regular Member


Date Joined Jul 2005
Total Posts : 88
   Posted 12/6/2012 9:24 PM (GMT -6)   
Remission lasted about a year for me, (Resection at terminal Ileum 21" in July 2005) - Started having obstructive issues in 2006 - Started GI bleeds in late 2007 and had to get 3 inches removed at the terminal ileum in mid 2008 due to stricturing and Ulceration that was causing Significant GI bleeds.
Was good from 2008 until mid 2012 and GI bleeds started again... started 6MP 3 months ago, been on Prednisone for 4 months starting to ween off (started at 60MG down to 30MG)
I wish you guys the best of luck, hopefully it is minor and the budesonide will nip it early
Typically, after surgery, doctors will put you on Humira or some medication to delay the disease's return
Remember, Crohns is not curable, even with Surgery, the disease will come back, but you can significantly reduce the chance or effect of return with proper medicine even if you do not have symptoms after surgery

I hope this helps
Dx'd in 1997 at age 23
2 resections (2004 & 2008) 23 inches total
Currently on
Humira - 1 injection weekly, 2000mg of Pentasa Daily, 20mg Prednisone (tapering down), 100mg 6MP
Also gone gluten free, Sugar free, Lactose and Caffeine free
Also doing alternative treatment including - GI Encap, Boswellia,Curcumin (Curamed), live Saccromycis and Lactobacillis and Omegvia (Fish oil)

jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1069
   Posted 12/7/2012 12:05 AM (GMT -6)   
Had a resection in 2000, remission for 10 years. I decided to go meds free in 2003, maybe not the best choice, but I made it. I started having minor symptoms in 2010 and started Cimzia. Happy and still pain free.

huntsWcrohns
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 12/7/2012 9:13 AM (GMT -6)   
I was lucky, 10.75 years of 90% pain free remission, and on asacol 3X day. was able to work, hike every weekend, and hunt during the fall month`s, deer meat is very lean it baseicly fat free..only red meat I`ll eat.. Doc, said crohn`s is pretty bad and agressive, he said he did about 6 sticture opening`s and cut out what was just beyond hope.. and fixed 2 fistula`s.. to this day I`ve had my 3rd, opp. and run to the bathroom 5-10 times in the morning and then in the evening, only eat 2 times aday, then use my pain med`s when heating pad won`t get rid of scare tissue pain form digesting my low residue meal.. only have 10% colon left and half my rectum, all my doc`s say I`ll need ostomy down the road, till then who knows ???? watch my diet and hope for the best, and remind my self that there is alway`s some who is worst off than I am......! hope everybody has a Stress free & pain-free Merry Christmas...

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 12/8/2012 11:30 AM (GMT -6)   
Hi, I had my first resection in 93 and fortunately went into remmision for 15 wonderful years I was under no consultants or on any meds for that time and even questioned if i had crohns, but in 2008 I hasd a massive flare up and ended up having major surgery with a temp ileostomy looking back although I had a long remmision if i had stayed on meds and being kept an eye on maybe the flare up in 08would not of been as bad as it was, or I would of still been in remmision I wouldnt do it again inow stick with the meds and have regular check ups Bev x
Diagnosed with crohns at 13, right Hemicolectomy in 93, remmision till sept 08, small bowel resections & fistula excised, along with temp stoma in 09 stoma reversed Apr 2010
Meds: Azathioprine 50mg, Having Remicade re-introduced on 24th june 11, Lomotil, citalopram 20mg, questran 4mg & VSL#3.

“I may not be where I need to be but,
I thank God I’m not where I use to be “

elexis
Regular Member


Date Joined Feb 2003
Total Posts : 98
   Posted 12/9/2012 12:49 AM (GMT -6)   
1st bowel resection 11/2008-remission lasted 9 months before flaring
2nd bowel resection 6/2012- never got any remission active crohns in July 2012...
Luckily we are all different...

Miss_82
Regular Member


Date Joined Jul 2006
Total Posts : 73
   Posted 12/9/2012 10:35 AM (GMT -6)   
One resection so far of terminal ileum and ascending colon 6 years ago.

Signs of inflammation shown in colonoscopy a year later. Mostly symptom free all these years. Did take some iron and entocort for short periods of time. No pain but short-bowel syndrome causing D.

Other than that been only on Pentasa to maintain my disease although Dr. has been pushing me to put me on 6 mp as a precaution which i've declined all this time.

So i guess i consider myself pretty lucky compared to others.
29 years old
CD for 23 years

Bowel resection in Dec. 2006

Pentasa 4000mg

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 2859
   Posted 12/10/2012 7:27 AM (GMT -6)   
I had ruptured ileum and 18" resected in 1990....22 years ago.  In those 22 years was mostly just pentasa (and bad at taking it like I was supposed to)...with two rounds of pred for short runs.  I just had a new major flare and doc is talking surgery again as the 6 weeks fast taper of pred has not stopped the pain and I just started eating again this weekend.  I am considering asking for another round of pred for longer....but I won't hesitate to go the surgery route again if it is needed.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/23/2012 11:44 PM (GMT -6)   
I had 1 resection surgery 2009? 18" Removed. Waited 1 year being treated with Asacol and scope found imflammation at site. Started Humira and waited another year and was scoped again. Scope comfirmed no disease present. Currently not feeling the greatest and was trying to get scoped before end of year but no openings so I will have to try next year. I'm really hoping that the disease has not returned.. Not sure what next drug would be.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Datawraith
Regular Member


Date Joined Aug 2011
Total Posts : 263
   Posted 12/24/2012 3:08 PM (GMT -6)   
17" of the ileum removed gave me roughly 15 years of much needed relief. I took Questran for a year after the surgery to aid in the absorption of bile. After that, I ignored the recommendation of maintenance meds and didn't see a doctor for a very long time.

dancergirl572004
New Member


Date Joined Jan 2013
Total Posts : 4
   Posted 1/6/2013 2:24 AM (GMT -6)   
I went 9 years after my first resectioning. I was on medication, but I can't remember exactly which one. I just had my second resectioning in 2009 and I can't seem to go 6 months without having some sort of flare up. Right after my second resectioning, my dr. took me off of all my meds except for an over the counter probiotic. I think this has a little to do with why I did not have a long remission like the first time.

sickagain
New Member


Date Joined Nov 2006
Total Posts : 12
   Posted 1/8/2013 12:35 AM (GMT -6)   
After my resection surgery I went almost 17 yrs of keeping my Crohn's in remission by diet, I still don't eat redmeat, I stay away from all foods that are hard to digest. Sadly to say I am in a flare right now and it is kikn my butt. The diet is not working anymore I think this flare was brought on by a pain mgmt doc who just didn't care and was putting me on all types of medication.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 16, 2014 2:21 AM (GMT -6)
There are a total of 2,219,018 posts in 246,942 threads.
View Active Threads


Who's Online
This forum has 156307 registered members. Please welcome our newest member, Tammy:(.
207 Guest(s), 5 Registered Member(s) are currently online.  Details
StarGirl10, Lynn1980, getting by, AML94, Loucath


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer