Thanks for your information. I still havent noticed any improvement, in fact the number of movements is a little more than usual. Maybe its just a clean out! LOL I have noticed my ankles are swollen, but that might be my P.A.D. Hopefully the next infusion will help more. As I said, I no longer expect a miracle.
I have been on sulfasalazine for a couple years, along with azathiaprine. It has worked pretty well. The best medication that worked for me was prednisone. I know, most people have bad reactions to it.
I am a side effects dream, and with the prednisone I had none, but I guess the long term effects are terrible so they will no longer give it to me.
The home infusions from walgreens were suggested by my doctors office because he is so far away and my husband would have to take the day off to get me there. That along with the expense of the drug was just too much for me. It is still expensive, but we save some and every little bit helps!
Thanks again for the info, and hope everyone is having a pain free day