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73monte
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Date Joined Mar 2007
Total Posts : 1056
   Posted 3/22/2013 8:21 PM (GMT -6)   
There was another post about this new biologic, but I found some more information from study results for those interested.
 

PV
Veteran Member


Date Joined May 2006
Total Posts : 1135
   Posted 3/23/2013 2:20 PM (GMT -6)   
Thanks. I hope it gets FDA approval this spring (may is what I think I read). Another med to help, especially one that doesn't have as many side effects will be wonderful.

My husband has been having trouble with remicade causing eczema. If we are unable to manage it, I'm hoping vedolizumab will be available for him to switch to.

PV
Husband with Crohn's
Meds: Canasa (1gm), Lialda (4.8 gms), Remicade (10mg/kg every 8 weeks)
Supplements: VSL3 (2 packets), florastor (4 caps), bee propolis and lots of Greek yogurt
Currently In Remission

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1056
   Posted 3/23/2013 4:27 PM (GMT -6)   

I've heard a couple of times now that Remicade can aggravate eczema. My Daughter will likely be starting Remicade very soon. She has had small patches of eczema on occassion since she was a child.

Is this something to be concerned about? Don't mean to threadjack my own post. Perhaps I'll start another post on this topic.


PV
Veteran Member


Date Joined May 2006
Total Posts : 1135
   Posted 3/23/2013 5:11 PM (GMT -6)   
I don't think it is anything to be overly concerned about. In most cases, remicade helps eczema; only sometimes does it cause skin problems. If it happens, you can worry about it then. I can truthfully say that remicade saved my husband and our quality of life. It made us feel like we could live with this disease; normalcy is possible.

Even though he is having problems with eczema, I would rather he continue to stay on remicade because crohns is so much worse than a few spots of eczema.

We've been using a tacrolimus cream called protopic to treat the eczema, and it is helping my husband a lot. Occasionally we have to use a steroid cream to get the eczema back under control. From what I've read, protopic is pretty safe to use even long term (though FDA says to not use it for longer than 6 weeks because of possible cancer risk).

Our dermatologist said that this is how they try to manage eczema/psoriasis in patients who have those adverse reactions to remicade. So, for now, that is just part of our daily routine - I check him for eczema spots and treat if it looks necessary. We can live with that - we couldn't live with how bad the crohns was before remicade.

Our other alternative is to stop the remicade and try other TNF agents like humira, but there is no guarantee that it will work as well as the remicade has to control crohns. Also, he may not be able to resume remicade if he stops it. So, we are going to keep with the remicade as long as we are able to.

He's been on remicade now for 5 years, with 1 flare up of crohns in those 5 years (and none since he went to a higher dose). He is healthy, able to work, eat normally, and have a good life so far because of remicade. I hope remicade does wonders for your daughter.

If we have to stop remicade, I'd like for my hubby to try vedolizumab instead of another anti-TNF agent, since I've read that it has a better safety profile and fewer side effects. But we won't stop something that is still working unless it gets unmanageable.

PV

audsmo
New Member


Date Joined Mar 2013
Total Posts : 5
   Posted 3/24/2013 12:47 AM (GMT -6)   
I'm currently on Humira and so far, so good. I don't seem to get sick more often (I started it in August) and it is so much easier than going in for Remicade. Ten years ago I got three doses of Remicade before they kept you on it as a maintenance drug, and when we tried it again last spring I had a severe allergic reaction - they are not kidding about people developing allergies to it, so if it works, stick to it. Switching to Humira was the best thing that happened, though... I am only paying $5 a month for it as the company has better financial aid programs than does Remicade. And I agree that the benefits of controlling Crohn's would be worth the issue of eczema.
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