Did you ever think about changing your diet? I was dianosed with CD in the lower colon and I had two massive rectal fistulas that surfaced about an inch from my anos and tracked back to my lower colon. I had surgery and had two setons installed to keep them open so they would drain.
GI insisted that I go on remicade as he said this is the ONLY way to heal fistulas as large as I had, and nothing else will work. I did some research and I decided that before turning off my immune system, I would try a more natural approach first, and if that did not work, then I could always revert back to remicade. So I decided to try the SCD diet .
I went all out and I followed the diet with fanatical dedication and and without any cheating. After 3 months on the diet, both fistulas started healing up. By 5 months, both had healed so much, the surgeon actually had to remove the setons so they would heal more. By 7 months on the diet, both fistulas were completely gone, completely healed and I had no other symptoms from my CD. The only drug I was taking with the diet was pentassa.
That was in 2007 and I have not had a symptom or a problem from fistulas or my CD ever since. Surgeon said he had never ever in all his career seen fistulas as large as I had heal without remicade. He said just keep doing what ever you are doing because it is working for you.
I had a colonoscopy two years ago and there was no sign of any active CD in my colon. The only thing they found was some scar tissue where the fistulas had healed, but nothing more, no CD.
Maybe changing your diet will work for you as it worked for me. I suggest reading the book "breaking the vicious cycle" which is about the scd diet. You have nothing to loose by tring, and all to gain if it works for you. There are many people on this site that have had great success just as I had.