Crohns Disease and Ulcerative Colitis with back pain, abdominal seizures, and dermatitis supremativa

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Indian ginger
New Member


Date Joined Sep 2013
Total Posts : 1
   Posted 9/17/2013 10:48 PM (GMT -7)   
confused mad sad
I'm thirty nine. I was diagnosed with crohns at age eleven. I have one of those special cases where it morphed into also having uc and later developing diverticulitis along with crohns. For years now I've had seizures in my abdominal area, horrible lower back spasms, and a skin condition in the groin area causing painful abscesses. I've tried everything to alleviate the later symptoms with no avail. It has come to the point that I'm almost ashamed for my husband to see me naked with the lights on. I feel like I'm all alone here, does anyone else share these symptoms, or can anyone relate? I'm just so disgusted that an illness that robbed me of a normal childhood, is now trying to rob me of the happy place that took me 28 years to achieve. At wits end! Help!!!

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 7640
   Posted 9/18/2013 12:05 PM (GMT -7)   
Hi Indian ginger. Welcome to the forum. I'm sorry you're struggling with Crohn's. What are you doing to treat your illness at this point?
*******************
50 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)generic Colazal (96 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), psyllium (1/2T daily), mesalamine enema as needed. Gluten free as of 5/30/11. Colonoscopy found no evidence of inflammation on 8/16/1

girlzilla
Regular Member


Date Joined Oct 2010
Total Posts : 188
   Posted 9/18/2013 8:01 PM (GMT -7)   
Unfortunately, crohns+colitis is somewhat rare as far as I know, so I am not familiar at all with the treatments, etc..

I'm considered Crohns-colitis, I believe, but I have not been diagnosed with both at this time. I have a case of indeterminate colitis, really, where they can't decide what's what.

I would also love to know what treatment plan you're on, as per kazbern's question. Also, are you seeing a dermatologist for the skin condition? And also, have you had physical therapy for the back spasms?

And finally, have you recently been tested for a UTI or kidney issues?
24 years old
Dx: Colitis, 2008
Re-Dx: Crohn's, 2011
Currently taking: Lialda
Have taken: Prednisone
Tried and failed: Imuran, 6MP (allergic to both), Sulfasalazine (headaches, nausea, general ick feeling), Methotrexate

JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 1554
   Posted 9/19/2013 7:32 AM (GMT -7)   
Hi and welcome,

Has your dr. ruled out these abscesses being fistulas? That's what it makes me think of since it's in your groin area, but hopefully not. There are some pretty serious extra-intestinal skin manifestations that some patients have, but even non-IBD patients can have boils and such, especially when they're physically compromised from other ailments.

I have to take a muscle relaxer med 4 times a day due to a spinal chord injury, rotator cuff injuries, arthritis, and scoliosis so I know about those spasms. So I can relate. -Joy
54 yr. old. Ileocolitis since early teens. Hemicolectomy-left side in 2001. Severe chronic pain due to spinal chord injury, rotator cuff injuries, enteropathic arthritis. History of endometriosis. Depression.

gee2
New Member


Date Joined Oct 2013
Total Posts : 3
   Posted 10/8/2013 5:56 AM (GMT -7)   
@welcome..I'm new also. I'm just beginning to figure out thee is a connection with hidraenitus suppertiva an chrones. The abscesses in my groin area seem to respond to the hormones estracee. They are better..but not gone
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