I think Remicade started working but ...

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minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2742
   Posted 4/6/2016 3:07 AM (GMT -6)   
The first thing that made me notice that Remicade has started to work was my proctitis. I used to exhaust every possible rectal med to put my proctitis at bay but in vain. After I had taken my third loading dose, I noticed that my proctitis calmed down. Def, I attributed this to remi.
Now, my proctitis is flaring up again. I'm only 5 weeks after the loading doses and the 4th dose is 3 weeks ahead. I know very well that the loading doses are not counted in, at least this is what my GI has told me. I'm trying to resume taking the steroid suppositories again until the proctitis symptoms subside.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Entocort 3 mg, Rifaximin, Nexium, Imuran, Baclofen, Zantac, Maalox, Calcium supplement, multivitamin, B shots, vit. D
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp., colifoam
Failed:Azathioprine (generic), Methotrexate

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1741
   Posted 4/6/2016 4:57 AM (GMT -6)   
Sounds promising. After your first infusion you should see some good results with the proctitis by the sounds of things.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.
Started Remicade in Feb. 2014, along with 100mgs. of Imuran.

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2742
   Posted 4/6/2016 5:25 AM (GMT -6)   
73monte, thank you very much. You made my day. Take care :)
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Entocort 3 mg, Rifaximin, Nexium, Imuran, Baclofen, Zantac, Maalox, Calcium supplement, multivitamin, B shots, vit. D
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp., colifoam
Failed:Azathioprine (generic), Methotrexate

Violette Rose
Regular Member


Date Joined Aug 2011
Total Posts : 69
   Posted 4/8/2016 12:11 PM (GMT -6)   
Maybe you just need to have it more frequently. I never made it to the 8th week without symptoms. We did a level before an infusion and I had no remicade in my body by that time! So I'm now doing it every 6 weeks and it's working wonderfully!

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2742
   Posted 4/8/2016 12:53 PM (GMT -6)   
I'll try to talk to my GI about increasing the frequency of the infusions. Raised this issue up w him before and he replied that this is only done with severer cases. Will see how things go on this time.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Entocort 3 mg, Rifaximin, Nexium, Imuran, Baclofen, Zantac, Maalox, Calcium supplement, multivitamin, B shots, vit. D
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp., colifoam
Failed:Azathioprine (generic), Methotrexate
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