From the Crohn's prison to feeling good

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NateCW
New Member


Date Joined Feb 2017
Total Posts : 3
   Posted 3/27/2017 9:06 AM (GMT -6)   
Hey all,

I made a short video on my story. It's be a decade journey, but I've finally found long term remission.

I've started a Youtube channel to share my story and tips/tricks I've learned along the way. I hope it helps.

Here's to remission.

/www.youtube.com/watch?v=MTou9BqkqwY

Post Edited (NateCW) : 3/27/2017 9:14:27 AM (GMT-6)


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 9921
   Posted 3/27/2017 11:19 AM (GMT -6)   
I watched a few of your videos but still don't know how you achieved a med-free remission. Are you sure you're really in remission?
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

mirowpl
Regular Member


Date Joined Nov 2009
Total Posts : 456
   Posted 3/28/2017 5:38 AM (GMT -6)   
I second what NCOT says. I didn't see or hear what you did to achieve your remission, but if it worked then that is great! However, symptom remission and clinical remission are two very different things. I might feel good for a while, but the disease is is active doing damage to my small intestines. All proven with colonoscopy. Just keep this in mind.

NateCW
New Member


Date Joined Feb 2017
Total Posts : 3
   Posted 3/28/2017 8:39 AM (GMT -6)   
Hey hey, thanks for taking a look.

All of us are different, I don't pretend to have the perfect answer, honestly I don't think their is one. The channel is something I just recently started to try and create videos on different areas that have helped me get to where I am now. I've seen alot of other people who've done similar things to exercise, change your diet and mindset, regulate stress, ect, but if you don't share practically how to do that, it doesn't really help anyone. I'm trying to create a resource for people to learn how to actually, practically, do all those things.

I understand the skepticism, honestly I'm a little skeptical of myself, haha. I'm due to a colonoscopy here soon, so no, I have not yet been certified by a doctor to be in clinical remission. The results do somewhat speak for themselves though. If I can feel this amazing, I just thought it'd be awesome to share because I know so many have it really rough, as I once did.

If you notice as well I'm very careful not to make any claims of healing in any of my videos. I'm not here to spread false hope or pretend like I have a cure. Just trying to do what I can to make this world a better and healthier place. smile

mirowpl
Regular Member


Date Joined Nov 2009
Total Posts : 456
   Posted 3/28/2017 8:15 PM (GMT -6)   
Good luck with the scope. I hope all is good with the results
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