My Crohn's and Entyvio

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Crohn's @ 15
New Member


Date Joined Mar 2017
Total Posts : 2
   Posted 3/28/2017 8:44 AM (GMT -6)   
I was diagnosed with Ulcerative Colitis at age 15. At 33 I had my first resection where my colon was removed; and just before that when the surgeon took a look at my xrays diagnosed me with Crohn's and NOT UC. Symptoms similar, but surgical outcomes different. 64 staples later I still considered myself very lucky when I discovered in recovery room that there was no colostomy!

I plugged along for another 6 years until my 2nd surgery. After that I went into remission for 20 years. On that 20 year anniversary I was diagnosed with rectal cancer, and active Crohn's. I'm blessed and grateful to report that I am now cancer free and my port has been removed. Now we are dealing with the active Crohn's which if they hadn't told me I had active Crohn's I would have thought it was just another day. I've not had any abdominal pain at all, and dysentery has become a way of life, but the tags, fissures were definitely making their presence known, hence a trip to the MD's office... fast forward

I've had two doses of Entyvio thus far and am scheduled for my next treatment in two weeks. So far I can't say I have noticed any difference whatsoever for Crohn's; but I have experienced headaches after treatment and pretty much it wipes me out the following day. The headache's don't last but for a few hours, and sleep is an issue; but I'm not sure if it's related since I've had poor sleep patterns in the past.

My GI thought Entyvio would be best for my system after dealing with cancer, and explained that Entyvio would take longer to take effect than Humira or Remicade (which are considered faster acting) so I'm wondering if and when I will notice any positive changes; and hope that Entyvio will put me back into remission. Other than feeling tired I feel pretty good...

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1812
   Posted 3/28/2017 1:48 PM (GMT -6)   
Hi and welcome to HW!
It took me until my 4th dose to start noticing any changes. I think that is considered the last loading dose then I went to every 8 weeks for the last year. And according to my scope in December I'm in endoscopic remission. Which meant everything looked awesome for as far as the scope would go. That said I'm on entocort now for a stricture. But otherwise I've been doing well in Entyvio and hoping it doesn't stop working anytime soon.
Good luck and be patient, it's definitely not as fast acting as the other two meds.
DX with CD Aug. 1982
Gerd secondary to crohns
Entyvio
Methotrexate
Monthly b-12 injections
40 mg Protonix / twice daily
Zoloft
xanax
folic acid
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