Is this a symptom of Crohn's?

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zipdrive
New Member


Date Joined Mar 2017
Total Posts : 3
   Posted 3/29/2017 2:58 PM (GMT -6)   
Hi. I am new at this forum. I was diagnosed with Crohns about 30 years ago when I was 40. I have taken most of the medications normally prescribed without much success. Luckily my disease has not been bad enough that I cant manage from day to day. about a year ago I began getting diarrhea more frequently, and now it is constant. I have had all the stool samples and blood tests, colonoscopy and a magnetic resonance enteroscopy. about 30 cm of my terminal ilium is nonfunctional. I have been on Humira for about 8 months now and dont think it is working. I never have pain in my lower right quadrant.

Having said all that here is my question. What happens to me is that after I eat (not always) I feel as though my small intestine just below my stomach swells up and almost closes off the lumen. I actually know this is happening because I have stomach growling that can be heard on the other side of the room. Embarassing.
It also looks like I'm pregnant. My intestines have definitely swelled up. Do any of you have similar symptoms? I am lactose free and that doesn't change things, and I tested negative for celiac disease. Thanks for your help.

Post Edited (zipdrive) : 3/29/2017 3:15:11 PM (GMT-6)


scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3080
   Posted 3/29/2017 4:29 PM (GMT -6)   
Wow, thirty years. I can't even imagine. I have so much respect for you and others who have suffered for so long.

I swell up like that because of my gastroparesis. Basically, paralyzed stomach. It doesn't empty very quickly at all. The way to test that is with a stomach empty study. You drink and eat some foods that are radioactive and then after an hour or two, they do an x-ray to find out where the food is.

But having 30 cm not working might be the cause. Are they going to do a resection? If Humira isn't working, maybe you should give Remicade a try or another biologic.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1462
   Posted 3/29/2017 6:06 PM (GMT -6)   
When you say that about 30cm of the terminal ileum is nonfunctional, do you mean it is scarred/fibrosed? Has it narrowed significantly? The MRE should tell you. I would guess that is the cause of your symptoms. Your probably have a partial blockage, which can lead to backups in the 'stream,' so to speak.

If it is from inflammation, Humira should help. But if it's from scar tissue, Humira can't do much for that. So you'd either have to live with it or consult with surgeons about having a possible resection. It depends on what the MRE showed and how bad your symptoms are.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4242
   Posted 3/29/2017 7:42 PM (GMT -6)   
I agree with everything Beave just said. If it is scar tissue and you are having such bad symptoms, then I think you should see a colorectal surgeon to discuss surgery resection options.
58 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, 10/14, 11/15, 1/16. Fecal transplant on 2/24/16, and so far, no more c.diff!

5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
Not currently on any Crohn's meds and in remission, but struggling with bad IBS.

Hedgehogs6
Regular Member


Date Joined Mar 2017
Total Posts : 54
   Posted 3/30/2017 12:25 PM (GMT -6)   
The bloating and growling noises are associated with IBS. Sorry don't know too much about crohnes.

zipdrive
New Member


Date Joined Mar 2017
Total Posts : 3
   Posted 3/30/2017 2:32 PM (GMT -6)   
Wow. Thanks so much. I dont usually talk to anyone about my disease. Nobody asks. It is so refreshing to talk to people who can actually relate. Drs appointment soon I will mention your advice. Thanks again.
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