I've had Chrohn's since I was in my early thirties, in the 1980's, but went undiagnosed until Sept 2000 and then was discovered by accident. I have since had two bowel resections and have tried every new drug that has come along with no help. I had high hopes for Cimzia as it was made for crohns, but I was allergic to it. I am currently taking Lialda free through the Shire Cares patient assistance program but I haven't seen any real change after about three months.
Just over a year ago I started losing weight slowly but steadily. I didn't understand this as I weighed 180 about ten years ago and have had chronic diarrhea since 1993. I am now down to 120 from 138 and no matter how much I eat I am still losing. I am 64 and maybe I've got one more birthday before I disappear. One of my daughters has Celiac disease and she is trying to be gluten free. Please support crohns research if you can.
I have tried Remicade, Humera, Celexa, Imuran, methotrexate, Cimzia, Entocort and now Lialda with no help.