Paid focus group for Crohns patients using injectable

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billo
Veteran Member


Date Joined Mar 2006
Total Posts : 535
   Posted 5/5/2017 8:55 AM (GMT -6)   
From time to time I participate in paid focus groups, usually $150 for 2 hours to discuss my opinion on products I use every day.

This morning I received an email about a $100 focus group for patients w/ Crohns who use an injectable medication. And depending on how it goes, I could be invited back for a follow up survey that pays $350.

Thats ALOT of money but I'm afraid about people knowing my health situation. I don't like to disclose my medical condition (even though I'm doing GREAT and in remission for the most part)

What would you guys do?

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3224
   Posted 5/5/2017 9:57 AM (GMT -6)   
I participate in these quite regularly through Rare Patient Voice (if anyone wants to sign up, shoot me an email). They are ALWAYS with strict confidentiality. A lot of the time, the people I am speaking with don't even know my name. I do probably 3-4 each year. Not only is the money nice, but usually these are to try to improve lives of patients, and I like to feel that I'm able to contribute to the discussion as to best practices for patients like me.

Would you mind sharing more details about this focus group in an email?
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor
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