Paresthesia with Crohn's Disease

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rebecca1987
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 6/16/2017 9:06 AM (GMT -6)   
I was started on Humira back in 2009. about a year and a half ago I was told I built up antibodies to it and was switch to Cimzia which did not help. This past fall I was switched to Remicade which has helped a considerable amount, but I’m definitely not where I would like to be. Two week ago I started having tingling and numbess in my hands and lower arms with no other symptoms. I’m being referred to a neurologist for paresthesia. I was told it could be a side effect of the remicade, or a long term effect of being on TNF Blockers.

Has anyone else had a similar experience????

Thanks!

Rebecca

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1738
   Posted 6/16/2017 6:52 PM (GMT -6)   
No similar experience here, but have heard of some reactions to anti-TNF's that range for nuisance side effects to medical conditions. Best to see a neuro or rhuematologist.

You should also be on combination therapy. Adding another immuno greatly reduces the likelihood of developing anti-bodies.

SweetGAPeach36
New Member


Date Joined Jun 2017
Total Posts : 4
   Posted 6/22/2017 8:03 PM (GMT -6)   
Are you on prednisone as well? Also where is the numbness and tingling located specifically? Have you bumped your elbow recently?

I ask because I developed numbness and tingling in my pinky and ring finger and it ran up my arm. They never decided if it was due to prednisone like most of my other issues, or azathioprine, an accidental blow to the elbow, or Humira. I ended up having to have surgery because my ulnar nerve had profound damage. The actual diagnosis that I had was cubital tunnel syndrome and I had to have decompression at 7 sites including scraping it off the bone and intramuscular transposition of the ulnar nerve. Basically they relocated it into a tunnel made out of my muscle in order to protect it. The surgery helped and 9 months later I have had almost all feeling restored.

I also had issues with my other three fingers cramping and seizing up while on Humira. I would have to physically straighten out my fingers and massage my palm to get it to stop. That had stopped for a while like three months after being taken off Humira. Since starting Entyvio though it's started happening again.
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