Crohns and Celiac???

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eurotyler
New Member


Date Joined Jun 2017
Total Posts : 2
   Posted 6/29/2017 10:02 AM (GMT -6)   
Hello, I am new here. I would have posted under Celiac but apparently it's a dead forum. My question overlaps anyways. I was diagnosed with Celiac in 2015. I have been strictly gluten free but still have massive diarrhea and abdominal pain. Upon a repeat EGD and blood work everything is normal, does not show Celiac. Shows lymphocytic colitis. My primary dr however tested for ASCA (both positive)and pANCA (negative). So, my primary wants a second GI opinion, he is concerned about Crohn's. Has anyone else been through anything like this, and how did it turn out? Thank you!

beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1614
   Posted 6/29/2017 7:33 PM (GMT -6)   
Can I assume your celiac diagnosis came from an upper endoscopy with biopsy of the duodenum?

When you say a repeat EGD does not show celiac but shows lymphocytic colitis, do you mean you had an upper endoscopy and a colonoscopy? What exactly was found in the colonoscopy biopsies? Do you have a copy of that report?

Being positive for ASCA IgG and IgA signals to me only a small concern for Crohn's. By themselves, those two markers aren't highly specific for Crohn's disease. The blood test done by Prometheus labs uses the two ASCAs plus two other antibodies to bacteria, plus a couple of inflammatory markers, plus a couple of genetic mutations, plus a couple of other autoantibodies - and with all that, it's still only maybe 90% accurate for determining whether or not a person has Crohn's.

eurotyler
New Member


Date Joined Jun 2017
Total Posts : 2
   Posted 6/29/2017 7:40 PM (GMT -6)   
Yes, the original diagnosis in 2015 was from an EGD. On the EGD from this year, it showed no villous atrophy. They performed a colonoscopy at the same time I guess because I have chronic diarrhea, even after being strictly gluten free. I am displeased with my report, because lymphocytic colitis is literally handwritten in and it does not say what was actually seen, other than that. I have an appointment with a different gastroenterologist tomorrow for a second opinion that my primary care doctor is insisting on. Thank you!

beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1614
   Posted 6/29/2017 7:52 PM (GMT -6)   
They can't diagnose lymphocytic colitis from the colonoscopy itself - they have to diagnose it from the biopsies taken during the colonoscopy, and that report usually comes in several days later.

The second opinion tomorrow will probably base their opinion off of the biopsy/pathology report, if they have access to it. If they have access, ask for a copy for yourself and tell us what it says.

If they don't have the biopsy report, contact the office of the doctor who did the colonoscopy and request a copy. It should tell in detail what the pathologist saw, and that should tell whether or not you have lymphocytic colitis.

abhiniri
Regular Member


Date Joined Jul 2017
Total Posts : 22
   Posted 7/3/2017 7:06 AM (GMT -6)   
What is acute inflammation can any body tell me
Is it means chron's disease
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