Needing a bathroom nearby

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billo
Veteran Member


Date Joined Mar 2006
Total Posts : 539
   Posted 8/6/2017 10:55 PM (GMT -6)   
I've noticed that since my Crohns was active (formerly a UC patient), that I have to worry about having a bathroom nearby. Unless, I have a complete/normal bowel movement, I get REALLY nervous and shy away from using public transportation. Instead, I opt to use my car all the time.

Since I've been in remission w/ the aide of Humira and 6mp, its gotten a little better but I still have a fear of crapping my pants (sorry for the visual)

What is it about Crohns that causes this? Its almost as if the nerves inside the bowel are overly stimulated.

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 1001
   Posted 8/7/2017 10:09 AM (GMT -6)   
I have heard of that happening. maybe you need an antispasmodic or something? Have you mentioned it to your doctor?

JChristensen
Regular Member


Date Joined May 2016
Total Posts : 53
   Posted 8/7/2017 4:56 PM (GMT -6)   
I have this issue. I believe its actually common with Crohns. Dont feel alone. I always drive myself and always know first, where the bathroom is if going out. Never took anything for it as I think the Humira and all should help, sometimes the food you eat will make this worse. Try changing your diet slightly and I'm sure you'll notice a difference, I have.
33 year old female. Diagnosed with Crohns in 2002. First bowel resection 2006. Remission for 10 years. Recent: perianal abscess and fistulas with seton placement, had setons all removed and an Endorectal Advancement Flap Surgery performed Aug 2017
Meds: Humira only. Just switched from Remicade after developing antibodies and psoriasis. (past:colazal, pentasa, Remicade, Prednisone, flagyl, Humir

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1812
   Posted 8/7/2017 5:37 PM (GMT -6)   
I'm in remission according to my last scope and I still get like this. I don't know if it's the IBS I have on top of crohns or the fact that I had proctitis for so long that my sphincter is basically fried (my CRS' words). One of my biggest fears starting a new job last year was that there were limited restrooms on the way. I've never not made it there, but I have just made it on a couple of occasions.
DX with CD Aug. 1982
Gerd secondary to crohns
Entyvio
Methotrexate
Monthly b-12 injections
40 mg Protonix / twice daily
Zoloft
xanax
folic acid

billo
Veteran Member


Date Joined Mar 2006
Total Posts : 539
   Posted 8/7/2017 11:52 PM (GMT -6)   
My doctor have prescribed me something (I forget what it was called), but its basically something to keep me from having a bm.

Also what kind of diet do you recommend changing to help the situation? What foods have you eliminated and what foods have you stayed w/? Thanks

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3484
   Posted 8/8/2017 2:10 PM (GMT -6)   
Stay away from dairy, sugar, corn, tomatoes, red meat, all BREADS, no coffee.

billo
Veteran Member


Date Joined Mar 2006
Total Posts : 539
   Posted 8/11/2017 5:49 PM (GMT -6)   
thanks

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 330
   Posted 8/25/2017 11:30 PM (GMT -6)   
I have this problem too.

I ALWAYS look for where the bathroom is. And at my work I also know the more remote bathrooms where it might be more private in case there are embarrassing noises/smells.

And, when I notice "leaking" / my sphincter is "tired" my GI told me to attribute to IBS more than Crohn's because my CD has been pretty contained to my Ileum so we have a different action plan for those issues. It's the worst.

Coffee, diet cola, sugar, tomatoes - all affect it for me. Haven't seen it with bread, but haven't really tried cutting that out.

Some years ago I also decided I was tired of wearing slightly stained underwear - so I buy a fresh, inexpensive set every 6-8 months or so. Makes a huge difference to how I feel so thought I'd share. Hope it's not TMI.

Good luck.
Official dx in TI 2007 with with obstruction and 10 day hospitalization.
Mild to moderate since then - frequent colitis Also IBS.
2014/16 - rectocele repair, bladder sling, endometrial cyst attch'd to colon
2017 - 4th colonoscopy. Inflamm in ilieum ("red"), new diverticulitis
Current Meds: Asacol. B12 shots (Prev: Pentasa, 6mp, Cipro, Pred
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