First Impressions with Draining Seton (10 days)

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Dimitri71
Regular Member


Date Joined Jul 2017
Total Posts : 33
   Posted 8/12/2017 6:05 AM (GMT -6)   
Hi everyone!!!
I have a draining seton and wanted to let everyone know in regards to first impressions.
To be honest I hardly notice the seton in my activities & sports which I started the following day of the surgery. It's just mostly psychological (but we should never let it get us down!!!), plus the draining which is rather decreasing especially compared to the first days).
Now I am on the 12th day and I believe the draining it is the same or slightly less than it used to be prior to wearing the seton...
I have a meeting with my CRS in 7 weeks to determine next steps.
My fistula is mid/high transphicteric. Anybody else have that here? Did the draining seton "lower" the fistula over time?
The CRS aims at performing a FiLac surgery (non-invasive laser, used extensively in Germany).
I look forward to any comments/questions from anyone.
Best Dimitri

gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 428
   Posted 8/12/2017 9:08 AM (GMT -6)   
I've got my 1st surgery on the 15th for a simple inter/transphinteric and I'm very nervous!
I won't have a lot of help till the 18th. :/
How were you on days 1 and 2? Did you really do sports the next day???
It's possible I might get a fistulotimy instead of a partial with seton. He needs to look first.
Be kind, for everyone you meet is fighting a great battle. -Philo of Alexandria

Live as if you liked yourself, and it may happen. -Marge Piercey

Dimitri71
Regular Member


Date Joined Jul 2017
Total Posts : 33
   Posted 8/12/2017 9:45 AM (GMT -6)   
Hi Gypsyfp,
i really did have no major problems...it was easier than what I thought / expected from the blogs..and more or less what my CRS told me prior to the surgery...Some minor ache during the first two days. Just for precautionary purposes I got a depon prior to sleep during the the first three post op days.

I did not have any fistulotomy at all though (no partial fist/tomy either). Only draining seton. The next day I went for a soft jog, and the day after for half and hour basketball with my kids (half an hour but intense!)

After 10 days it's really no problem at all. I am on holidays and I have been exercising every day (like I did prior to the surgery). I've been swimming on the beach as wellsmile.

Good luck with your surgery! So far the surgery aspect was quite easy for me (especially with the aneasthesia: it relaxes you and you have a great sleep!).

Dimitri71
Regular Member


Date Joined Jul 2017
Total Posts : 33
   Posted 8/12/2017 9:51 AM (GMT -6)   
I should add though that - as far as I know - I don't have Crohn's (I have not tested). So I don' know if this really makes a difference (I don't think it does in terms of the seton).

gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 428
   Posted 8/17/2017 9:32 PM (GMT -6)   
I had so much puking the first night (Tuesday), but I'm actually doing pretty good!
I barely had any pain yesterday and none today, plus hardly any bleeding or drainage.
I haven't touched the good drugs.
Is the real pain coming???
Be kind, for everyone you meet is fighting a great battle. -Philo of Alexandria

Live as if you liked yourself, and it may happen. -Marge Piercey

U B Tough
Veteran Member


Date Joined Aug 2015
Total Posts : 857
   Posted 8/18/2017 4:20 AM (GMT -6)   
I'm glad you're doing so well and don't have CD. Your seton and future surgeries will likely be a success!

Dimitri71
Regular Member


Date Joined Jul 2017
Total Posts : 33
   Posted 8/18/2017 7:02 AM (GMT -6)   
Well done gypsyfp! I told you it's not that bad.
I continue to do very well (on holidays swimming and playing golf everyday)- now less drainage than before.
Thanks UB Tough. The cure is not immediate, but I have been reading a lot about fistulas and it seems to me that in most (if not all) cases the fistula loses in the end. You just have to never-ever give up.
I read this paper by some researchers in Chester and Exeter NHS Hospitals titled "The role of loose seton in the management of anal fistula: a multicenter study of 200 patients" and it shows the benefits of the draining seton as well as the rest of the good results CRS deliver. Google it up. It includes crohn's patients too.
Keep the spirits up!
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