Recto-Vag Fistula

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U B Tough
Veteran Member


Date Joined Aug 2015
Total Posts : 857
   Posted 8/18/2017 4:25 AM (GMT -6)   
How often do you talk to your GI about your gyne symptoms? Do they ask how this area is doing or do you have to initiate the conversation?

Who treats the gyne symptoms? Your GI or obgyn?

Has anyone had a botox or nerve block injection to help with the pain?

Do pain killers help with your gyne pain?

Thank you.

Plucky
Regular Member


Date Joined Jun 2013
Total Posts : 315
   Posted 8/18/2017 6:57 AM (GMT -6)   
When I mentioned that I was was concerned I might have a recto-vaginal fistula, my (female) GI encouraged me to see my GYN. My GI always asks if I have any new symptoms or if I am being treated for anything new at each visit, but does not specifically ask about anything. Sorry I can't be more helpful as I have not seen my GYN or been diagnosed with a RVF (and I expect that either I didn't have one or it has healed b/c my symptoms were always mild and have improved).
37yr female, dx UC '04, dx changed Crohn's Colitis '17
Currently: Stelara, Apriso, Prednisone *weaning*
Previously used: Remicade, Humira, Imuran, 6MP, Asacol, Lialda, Delzicol, Pentasa, Cortenema, Cortifoam, Rowasa, Canasa, Entocort, Uceris, Uceris foam
I'm Gluten-free. Supps: VSL#3, Cal/Mag, Vit D, Krill oil, EZFE

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 678
   Posted 8/18/2017 2:03 PM (GMT -6)   
UB,

I speak to my GI and CRS every visit- they bring it up.

My obgyn just told me they wouldn't seem anymore cause they don't treat fistulas. Currently my internalist
Is performing paps. I have not been able to locate gyn that will take me Crohns, fistulas and all. Jerks....Lol..

No botox or nerve block.

Yes strong pain killers knock me out but I no longer feel the pain.

Clo
06/12-07/14 symptoms start, no diagnosis.12/14 diagnosed UC & diverticulitis. 01/15 hosp- fistulas, DX changed to Crohns, 02/15 developed new skin rashes, eye problems and painful joints 06/15 Hosp.2x again.. new specialist.Said was worse case he's seen. 7/16 hosp 5mm Stricture stricturplasty to 15 mm.09/16 colostomy. Meds: Remicade, methtrexate, prednison,folic acid, vit D, calcium, pro biotic,

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1529
   Posted 8/18/2017 3:41 PM (GMT -6)   
I'm the opposite of Clo. My GI never asks, didn't treat it and even telling her all my symptoms she didn't diagnosis it. My obgyn diagnosed mine( or steered my CR in that direction) and he confirmed it. My CR surgeon and Ongyn handled all aspects of it.

I think I'm not the norm because my obgyn is pretty comfortable with my Crohns and has helped with post op questions after I wasn't seeing my CR surgeon anymore.

U B Tough
Veteran Member


Date Joined Aug 2015
Total Posts : 857
   Posted 8/19/2017 5:55 AM (GMT -6)   
Like Clo2014 I've had no help and I'm in much distress. I too cannot find and gyne that will take me on with fistulas......I'm desperate for botix or a nerve injection. My issue started last Wed and I've been itching ever since. I get very teary throughout the day as I'm trying to function but trying to keep it together is very difficult.

My GI never asks and my CRS does not believe that it could cause much distress. Truthfully, I've been doing very well with it, only minor irritation....until last Wed.

I fear there is a large abscess developing on my pelvic floor, like last year.

Aside from this, my bowel is doing very well on Stelara!! Why can't everything just go right for once??
female, Canada

IVIG (on hold)


UC/Crohns - tested positive for MAP antibodies & mycobacterium
PG- remission
chronic perianal abscess and fistulas. Failed setons...it was pure torture.
started Stelara May 24, 2017. 100mg imuran

Hoping to start Anti-MAP drugs soon
Had a 10 week reprieve, now flaring...again. 4 years of flaring is tiresome.
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