anyone here diagnosed with Crohn's even though their biopsy was indeterminate?

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Date Joined Aug 2017
Total Posts : 3
   Posted 8/22/2017 11:07 PM (GMT -6)   
Just curious if anyone in this forum has had a biopsy done that was indeterminate of either Crohn's or UC but their doctor diagnosed them with Crohn's? I recently transferred from pediatric to adult care (didn't have another flare until I was 19 so I didn't switch right away) and my current GI doctor was wondering why my peds doctor diagnosed me with Crohn's when I was showing more symptoms of UC and my inflammation was only in my colon. My peds doctor always said that it looks like Crohn's even though my biopsies were always indeterminate, and my last colonoscopy was also indeterminate and my now my new GI doctor said it looks like Crohn's too haha. Anyone else?
Hannah, 20 y/o college student
Crohn's - dx'd 2013 (biopsy indeterminate, but looks like Crohn's)

-1st flare was orig. diagnosis in Sept. 2013
-2nd flare in middle of 2017, currently working toward remission
-currently on 100mg of 6MP, tapering off 40mg of pred [30mg], vit D, iron, probiotic, & Zyrtec daily. Miralax, omeprazole, zofran as needed
-tried Azo, Apriso, Canasa
-currently dairy-free

Veteran Member

Date Joined Mar 2007
Total Posts : 1600
   Posted 8/23/2017 1:03 AM (GMT -6)   
Were in your colon is/was the inflammation located? Was it continuous, starting in the rectum? Or was it patchy? When you tried Apriso and Canasa, did you find they helped? They're much more likely to help if you have UC, and much less likely to help if it's Crohn's.

It's not terribly uncommon for the biopsies and pattern of the inflammation to lead to a diagnosis of 'indeterminate colitis.' It happens fairly often, something like 10% of people with colitis if I remember right (don't quote me on that! smile). Sometimes it becomes more obvious over time that it is or isn't Crohn's. But sometimes it stays 'indeterminate' indefinitely.
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