Considering Humira

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Gerry R.
New Member


Date Joined Mar 2017
Total Posts : 4
   Posted 8/25/2017 8:02 AM (GMT -6)   
I have had Crohn's since early 1960's and no longer have large intestines and only half of small. I am 64 year old male. The Crohn's has been treated by surgeries and prednisone. I did try pentasa and imuran but I could not tolerate either. Being on prednisone is very hard on me now. Causes many other problems. I am thinking of Humira. Would like thoughts of this. Thank you.






Gave your post a heading so more members will see your post.

Post Edited By Moderator (straydog) : 8/25/2017 8:42:58 AM (GMT-6)


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 9921
   Posted 8/25/2017 8:26 AM (GMT -6)   
Pentasa would be useless for disease as severe as yours and Imuran probably not much better. Definitely give the Humira a go and get help in tapering off the pred - if you've been on it for years, a standard taper will be way too fast for you. What dose of pred are you on now?
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14980
   Posted 8/25/2017 8:41 AM (GMT -6)   
Hi Gerry, welcome to Healing Well. I am assuming your dr has proposed Humira to you. Medications for treatment have come a very long way since you started your journey. I, for one would urge you to give Humira a try. I was on Remicade for three & a half years, then went to Humira. Convenience wise it was great, no more infusions, lol. I had very good success with both of these meds. Humira stings a little, has to be kept refrigerated. I would let my pen sit on the counter for a bit to warm up & that helped. I know many people are scared of the newer meds when they read about potential side effects, or see the commercials on tv. You just have to keep in mind not everyone has side effects. These side effects occurred during the trials with these meds & must be listed as a potential side effect. By law they have to be listed & this is a CYA for the drug makers. With all meds just keep in mind it takes time for them to be completely effective. Prednisone long term is just not good for anyone. My days of Prednisone are over.

There are a lot of great members in this forum that will come along & offer up their experiences. You can also use the search feature above & type in Humira & can read old threads about it.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 1001
   Posted 8/25/2017 9:16 AM (GMT -6)   
I too think its worth trying. I was on and off prednisone for several years before finally taking Humira. I was afraid of the side effects but the Humira worked nearly immediately and I felt amazing. I did eventually end up with side effects that caused me to have to stop it after 9 months. They all went away within a month of being off of it. However, the humira made so much progress with the crohns. It healed the fistula I had and relieved all of my symptoms. I eventually flared after I stopped it and am now on remicade. The key is to stay on top of any symptoms of side effects you think you may have, get regular blood work as needed and speak to your doctor if you are concerned.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10540
   Posted 8/25/2017 2:15 PM (GMT -6)   
I've been on Remicade, a sister medication to Humira, for 3+ years and achieved a good remission (that is, an absence of IBD symptoms) thanks to it. Have yet to experience a side effect on it.

We're all a little nervous when going to a new class of medications and the possibility of serious side effects can scare us spitless. What really helped me when initially considering going on these medications was weighing the actual odds of risks versus benefits. Let's start with the odds of benefits, what are the odds that Humira will help improve your Crohn's symptoms? about 63% of patients see an improvement within their symptoms thanks to Humira. How about those scary side effects we see on the label? The most concerning one occurs in 6 in 10,000 patients (or 0.06 percent odds). It's very, very long odds. The Crohn's and Colitis Foundation of America is the source for these statistics and has a very good risks versus benefits explaination:
Webcast: programs.rmei.com/CCFA139VL/presentation/player.html
Transcript: http://www.ccfa.org/assets/pdfs/risk-and-benefits-transcript.pdf
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g Lialda, and 2X rowasa

I suffer from heinous anus
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