gumby and scifigal - cdiff study FYI

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HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3141
   Posted 8/29/2017 8:39 AM (GMT -6)   
I saw this yesterday and thought the two of you might be interested. It is just a small local study for a vaccine, but to see it being studied locally gave me a little hope. http://www.rcrclinical.com/study/c-diff-vaccine/

Take Care

scifigal2k
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Date Joined May 2012
Total Posts : 3256
   Posted 8/29/2017 11:58 AM (GMT -6)   
Oh that is so awesome!!!
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

gumby44
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Date Joined Nov 2007
Total Posts : 4334
   Posted 8/29/2017 4:43 PM (GMT -6)   
Thanks Erin! I hope you are doing well. I actually responded to get more info about the study. I have had negative stool tests since my fecal transplant but still bouts of severe diarrhea that seems to respond to antibiotics. We aren't really sure why....IBS-D, recurrence of Crohn's, SIBO, c.diff not testing positive, etc. So this study is kind of interesting to me. I also have a really high deductible on my insurance, so the opportunity to get regular stool tests appeals to me. I just want to know more about what is in the vaccine! Thanks for the info
58 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, 10/14, 11/15, 1/16. Fecal transplant on 2/24/16, and so far, no more c.diff!

5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
Not currently on any Crohn's meds and in remission, but struggling with bad IBS.

gumby44
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Date Joined Nov 2007
Total Posts : 4334
   Posted 8/30/2017 1:46 PM (GMT -6)   
Well, it's only a local study, so I can't participate! Hope it works though.....that would be awesome

Catspeaks
New Member


Date Joined Sep 2017
Total Posts : 1
   Posted 9/19/2017 6:04 PM (GMT -6)   
Hi everyone,
Hi everyone,
I'm new here, and new to this horrible c-diff. I live in Arizona and 3 weeks ago I flew back to NJ to visit family. On the night I arrived in NJ, I awoke at my sister's house around `11:30 at night doubled over in pain. I just about passed out. My sister and her husband called the ambulance and by the time I was in the hospital I had diarrhea and bloody stools. They did a CT scan and thought it was colitis and I was admitted to the hospital. 2 days later I found out I had c-diff. I didn't really know what it was. I spent 8 days in the hospital on IV Levaquin and Flagyl plus Bentyl for pain. I don't know how I made it back home to AZ, but I did. First thing my GI doctor said was why was I on Levaquin. I had no idea! He put me on Vanomycin 125mg 4 times a day. I'm now on my 9th day and while I don't have diarrhea, I have loose stools..they look formed until you flush and they fall apart into nothing!! I have some discomfort but nothing like that night. I have been reading so many threads and research until I stumbled upon this site, which I found informative. My question is this..I'm on Florastor twice a day and Vancomycin, stools are loose but not watery -and I usually go 2 or 3 times a day. Is this the normal pattern? I have no fever, I have an appetite but find if I eat too much, I'll suffer for it. I have no other health issues, am not overweight, and eat healthy. This is miserable, I feel like my life has really been impacted. I'm afraid to go out for too long in case I need the bathroom. We have bought hospital grade bleach wipes that kill the c-diff spores and have totally disinfected the home short of wiping my dog down smile I even change my sheets every other day. Unless someone has gone through this, they don't know the misery. Oh, I do have IBS and diverticulitis, so maybe that is also contributing to why this seems to be taking so long. Thanks for listening, I wish you all well.

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3256
   Posted 9/19/2017 6:18 PM (GMT -6)   
I think that you're doing just fine, honestly. Vanco (or any antibiotic) tends to also kind of cause diarrhea, so you're doing great. C. diff., even in otherwise healthy people, takes literally months to recover from. It sounds like you're doing great to me.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4334
   Posted 9/19/2017 7:50 PM (GMT -6)   
Yeah, while you are on the Vancomycin many people continue to have diarrhea. Fore me it took a couple of weeks after I was done with the prescription that I started to have formed stools. You are correct to wipe things down with bleach when you clean and use your own towels, and your own toilet if your family has more than one bathroom. That being said, I've had c.diff multiple times, and no one in my family ever caught it from me. I hope you feel better soon. I found the c.diff forum site below to be full of useful information. I hope you feel better soon!
http://cdiffdiscuss.org/PHPBB3/index.php
58 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, 10/14, 11/15, 1/16. Fecal transplant on 2/24/16, and so far, no more c.diff!

5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
Not currently on any Crohn's meds and in remission, but struggling with bad IBS.
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