Going in for testing for Crohn's Disease.

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Penny4urthoughts
New Member


Date Joined Aug 2017
Total Posts : 3
   Posted 8/29/2017 1:43 PM (GMT -6)   
Hello everyone I am getting nervous about my appointment tomorrow. A little back story here. So a couple weeks ago I go into the ER in horrendous pain. Now I suffer pain on a daily basis. Abdominal cramps that keep me firmly planted on my couch most days. They say that my appendix is inflamed and that I have to have an emergency appendectomy. After my surgery the doctors come in and said that my small intestine was also inflamed and that they want me to see a Gastroenterologist. That they suspect that I might have Crohn's disease and that I need further testing. Once I got home I looked up the symptoms of Crohn's disease (I don't say oh I have that or I don't have something as I know symptoms can overlap as many diseases or conditions have similar symptoms and you need testing to confirm) and I was like that could make a lot of sense as I have several of those symptoms. I will list all the symptoms I have. Abdominal pain sometimes so severe I can't even get out of bed much less move to the couch. Nausea, my nausea knows no bounds. Diarrhea, now about my diarrhea. In order to have soft stools like the consistency of pudding I have to take 3-4 anti diarrhea pills every other day and sometimes that isn't even enough. I also suffer from lack of appetite. Even when I feel hungry as all get out I can only manage a couple of bites. Normally what happens is I start to eat then the nausea kicks in, and then within minutes I have terrible cramps and off to the bathroom I go. I am so tired all the time. I don't even think fatigue would cover how tired I feel. Energy I forgot what that was its been so long since I have had any. For those of you that says I should of been to the doctor. I have and I have been misdiagnosed so many times its not even funny anymore. So what should I expect at the doctor tomorrow. At the hospital I had a CT with Contrast done. I also had a lot of blood work done and one special trip that the GI doctor ordered. When I called to set the appointment up the person making the appointment said "Alright we need to set you up an appointment for Crohn's testing" and then "Oh they want you in as soon as possible", So I don't know what to think. I am confused on so many levels. The part of me that is so tired of all the symptoms says I hope it is Crohn's just so I know what is wrong with me. The other part of me the rational part of me doesn't know what to feel or think. So what should I expect at this first appointment.

Stephanie

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 951
   Posted 8/29/2017 3:12 PM (GMT -6)   
Hi Stephanie,
Welcome to the forum! Many of us go through the cycle of misdiagnosis. I did and was in rough shape for quite a while before finding an answer so I understand what you are going through. Did you get the results of the CT? The first GI appointment is usually for meeting the doctor, discussing what is going on and a general exam. Make sure they have access to all of the results of the testing so far. The doctor should go over that. Based on the results the doctor will usually discuss scheduling other tests/procedures. The main procedure for diagnosing crohn's is a colonoscopy so they will probably discuss scheduling one and the preparation for that.
It's completely okay to feel relieved about getting the diagnosis, I know I did. Not that the disease is always easy to deal with but it allows you to put a name to what you have been going through and to get the treatment you need to get healthy. I hope the appointment goes well.

Penny4urthoughts
New Member


Date Joined Aug 2017
Total Posts : 3
   Posted 8/29/2017 3:19 PM (GMT -6)   
Labradorite thank you so much for your reply. The GI doctor did visit me in the hospital and already told me they are going to do a colonoscopy. They also said that my appendix wasn't as inflamed as they thought, but they took it out anyway. They did say that my small intestine was more inflamed than they originally thought. So right now it is just a wait test wait some more and hopefully a diagnosis as to what is going on with me.

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 951
   Posted 8/29/2017 3:50 PM (GMT -6)   
Is the appointment for the colonoscopy? I am glad they are getting you in quickly for the testing. In regards to the receptionist saying that they want you in as soon as possible, that's common when you are in the situation you are in as opposed to someone going for a routine check or screening. I hope you can get some answers quickly. For some people the diagnosis isn't clear right away and it requires waiting for the biopsies. For me the doctor knew right away and gave me the diagnosis while i was waking up from the colonoscopy. The colonoscopy is not as bad as it sounds and the prep is really the worst part

Penny4urthoughts
New Member


Date Joined Aug 2017
Total Posts : 3
   Posted 8/29/2017 3:54 PM (GMT -6)   
I don't think I am having the colonoscopy tomorrow as they don't have any prep to do. I think like you said it is a meet and greet appointment. Still nerve-wracking to wait.
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