Crohns Colitis ? Different to Crohns / UC ?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Bulmanboi123
Regular Member


Date Joined Aug 2017
Total Posts : 48
   Posted 9/6/2017 2:10 PM (GMT -6)   
So the last few months I've been in a pickle , and now beginning to lose my mind !

Since October I've been in a flare of sorts , with what my GI called Crohns Colotis , not crohns or colitis but Crohns Colitis ...

Firstly I wanted to know if I'm going insane and if this is an actual thing ?

Secondly my symptoms changed about 2 months ago , I went from a lot of bowel movements a day to 2 or 3 normal like stools but the blood was wrapped around the stools and a bit darker , and in mucus !

Anyone else has this ?

The IBD nurse told me I had Colitis but the GI previously told me Crohns Colitis

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14812
   Posted 9/6/2017 4:49 PM (GMT -6)   
I know you have posted in the UC forum. I am guessing you had a colonoscopy with a biopsy done. If you don't have the report of the biopsy, ask for a copy. This will tell you what your dx is. UC & crohns are two different animals. It is aggravating when we get two different answers, but get a copy of your biopsy.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1600
   Posted 9/6/2017 6:11 PM (GMT -6)   
Colitis just means inflammation in the colon. It can come from Ulcerative Colitis, from Crohn's disease, or from many other causes.

Crohn's colitis simply means Crohn's disease that is affecting the colon, causing inflammation there.

The inflammation in the colon found in Crohn's colitis has some similarities but some key differences from the inflammation in the colon found in Ulcerative Colitis.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 9766
   Posted 9/6/2017 6:14 PM (GMT -6)   
Colitis is a general term for colon inflammation. Crohn's colitis is Crohn's of the colon, and is definitely a thing.

I've not had blood wrapped around the stools personally, but I can't remember the last time I had a solid BM either. But both blood and mucus are common in Crohn's colitis/UC. If your number of BMs have reduced but there's still blood, it sounds like there is still some lingering inflammation low down. You should talk to your IBD nurse or GI about it - you might need to up your meds, go on rectal meds, or whatever.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

Canada Mark
Veteran Member


Date Joined Jan 2013
Total Posts : 3466
   Posted 9/6/2017 9:08 PM (GMT -6)   
Just as NCOT & beave said. If you are searching around for information or literature I believe Crohn's-colits is sort of a quick term and most studies/literature refer to it as 'Crohn's Disease isolated to the colon' instead of Crohn's-Colitis.

I have Crohn's-Colitis as well. I have experienced bowel movements with blood and mucus wrapped around solid stool in the past. It always freaked me out, but it was actually a sign of improvement for me and usually occurred when I was coming out of a flare. For me (and I am sure it is different for everyone) the sign that things were getting worse and I needed to get into my GI immediately was pain developing during a bowel movement. Loose stool would come next and the pain level would increase further. If I ignored this (or put up with it) for a few days just to see where things where going I always ended up in emerg. in really bad shape.

Anyway - if you are like me in some way, solid stool with some blood and mucus wrapped around was an improvement but as NCOT also says it is probably a sign of lingering inflammation.

If it helps any Prednisone combined with Antibiotics always made me feel better virtually overnight. Imuran seems to work for me as well as a long term maintenance medication, and so did Remicade while I was on it. Though everyone is different in regards to their response to medications.

Also if it helps any, in hindsight - after some 10+ years now with IBD, when I first became ill years ago I would have tried to treat it more aggressively instead of being afraid to take medications. Wanting to 'fight it' and fear of meds probably made me worse off during those first few years.

-------------------

Diagnosed Crohns-Colitis 12-13 years ago - Past Meds: Antibiotics, Prednisone, Methotrexate, Imuran, Remicade - Current Meds: Imuran 150mg/daily, Natural: WOO/Thyme Oil, All organic food no additives as best as possible. I stopped taking probiotics as I felt they were not helping much.

“The only person you're destined to become, is the person you decide to be"

Post Edited (Canada Mark) : 9/6/2017 9:11:10 PM (GMT-6)


Bulmanboi123
Regular Member


Date Joined Aug 2017
Total Posts : 48
   Posted 9/6/2017 11:48 PM (GMT -6)   
Good morning guys , thanks for the replies

I'm on a pentasa suppository and a salfolak sachet / granule thing which I swallow.

It's hard enough getting a GI appointment in Wales so I can only imagine getting a copy of the results from a scope would be incredibly difficult !

Sounds pretty similar to your sympstoms Canada Mark , pretty solid bowel movements but then the mucus and the blood , ta not even much really but it's just completely different to how it was before.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 9766
   Posted 9/7/2017 7:46 AM (GMT -6)   
Ask your IBD nurse for a copy of the results. If you don't any contact details for her, ring the hospital and get some. Tell her about the blood and mucus as well, and hopefully she can arrange for you to see her or the GI.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

Canada Mark
Veteran Member


Date Joined Jan 2013
Total Posts : 3466
   Posted 9/7/2017 8:34 PM (GMT -6)   
NCOT brings up a very good point. Thinking back, the very first time I became sick enough that I knew I needed to go to the doctor I went to my family physician. I did not tell him about the blood and mucus with each bowel movement. Just that I had diarrhea all the time as I was embarrassed about the symptoms. He gave me a prescription for Pentessa. I went home, took Pantessa and just got sicker. I should have told him there is blood and mucus with every bowel movement and I really needed to see a GI, but I didn't know any better and had no one to go to for advise.

From here things got worse. Aside from pain during a bowel movement, my stool became grey and horribly putrid over a short time, I developed a mild fever and my ankles also began to swell. I went to the Hospital was admitted and the GI came to see me. She said that the swollen ankles, combined with the symptoms where a give-away that indicated Crohn's Disease. I went in for a colonoscopy that day and was told the inflammation was so bad she could not complete it.

I think both NCOT and I have very aggressive disease - rapid progressing. So just be mindful of any of these symptoms that might occur and report them to the nurse/GI.

Anyway, not to freak you out or anything, I just mention these things as no one told me what to keep an eye out for when I first became ill. So in the interim, while you are waiting to see a GI should any of these things occur just call your IBD nurse I guess it is in London. Otherwise I hope that what you are experiencing is a actually an improvement versus a negative.
Diagnosed Crohns-Colitis 12-13 years ago - Past Meds: Antibiotics, Prednisone, Methotrexate, Imuran, Remicade - Current Meds: Imuran 150mg/daily, Natural: WOO/Thyme Oil, All organic food no additives as best as possible. I stopped taking probiotics as I felt they were not helping much.

“The only person you're destined to become, is the person you decide to be"

Bulmanboi123
Regular Member


Date Joined Aug 2017
Total Posts : 48
   Posted 9/11/2017 2:16 PM (GMT -6)   
I'm in South Wales , Cardiff ....

It was all playing on my mind so I called the IBD nurse and explained my concerns to her , only thing really bothering me right now is the darker blood left in my stool and urgent , but only going around 2-3 times a day

Whilst on the phone she said that my stool showed high inflammation and the bloods came back ok apart from a possible liver issue , but I had bloods run 1 month before which seemed ok

Think she could tell I was worried and that pentasta and salofalk sachets have probably done as much as they are going to do

Thanks all for helping
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 19, 2017 6:30 PM (GMT -6)
There are a total of 2,870,551 posts in 315,014 threads.
View Active Threads


Who's Online
This forum has 156514 registered members. Please welcome our newest member, HavingFunYet?.
455 Guest(s), 16 Registered Member(s) are currently online.  Details
Tim G, sparkleplenty, mattamx, RickTrin, Evolution52984, dacarte3, JNF, HavingFunYet?, Girlie, Sherrine, Oldskol_d, AZ Guy, ddyss, Aerose91, Stewvlle12, nonalisa


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer