Pain doc taking meds away said no more for gi patients

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Veteran Member

Date Joined Jun 2010
Total Posts : 1529
   Posted 9/20/2017 6:34 PM (GMT -6)   
Barbz - I think we may have had our surgeries at the same hospital, if I'm remembering correctly maybe I'm wrong. Were you at Barnes? Is this doctor there?

I haven't been at the hospital since my surgery but this thread is disturbing. All my ER visits, hospital stays, and surgeries pain meds were never an issue. Of all the things I had to worry about at the ER or hospital this was never one. Wonder what would happen if I needed to go to that ER now?!
Diagnosed with Crohn's 1998 and PSC 2015

Surgery 10/15 - colon resection with loop ileostomy
Surgery 12/15 - ostomy closure-disease came right back
Surgery 3/16 - total proctocolectomy - so happy to have my stoma back!

Post Edited (cupcakespinkgal) : 9/20/2017 7:46:23 PM (GMT-6)

Veteran Member

Date Joined Jun 2009
Total Posts : 585
   Posted 9/20/2017 7:02 PM (GMT -6)   
Hey Barbz - How are you feeling? It's hard to say if the Stelara is working, I've had 2 doses so far. My mouth and throat ulcers did clear up, so that's a definite positive. I most likely have 2 fistulas between my small and large bowel causing excessive diarrhea and weight loss (on TPN now and have already gained 10 pounds) and I don't know that the Stelara will be able to fix those. Probably looking at surgery unfortunately - can't live on TPN and Fentanyl forever.
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