1st dose of Entivio

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Gottogogirl
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/19/2017 2:49 PM (GMT -6)   
Having my fist treatment as i type this. Been on Remecade for almost a year. Im finally in remission after 15 years but the joint pain and swelling were unbearable. Doc switched me to Entivio on my request. Is there any side effects i should be looking out for?

gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 428
   Posted 9/19/2017 3:40 PM (GMT -6)   
uhhh... joint pain and swelling, I believe, are the most common complaints of Entyvio. o.O
Be kind, for everyone you meet is fighting a great battle. -Philo of Alexandria

Live as if you liked yourself, and it may happen. -Marge Piercey

Gottogogirl
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/19/2017 5:00 PM (GMT -6)   
Uggg....thats the main reason why i stopped taking Remecade. 😞

sparkleplenty
Veteran Member


Date Joined Nov 2010
Total Posts : 561
   Posted 9/19/2017 6:33 PM (GMT -6)   
I've been on entyvio for a year. I had some joint pain initially but it let up eventually. I've never had swelling. I experience fatigue for a day or so afterwards, and it's not every time. I had a scope in June and showed no active disease for the first time since I was diagnosed 12 years ago.

Good luck.
Diagnosed w/Crohn's in 2005. Meds: synthroid, allergy meds, B-12 (liquid), probiotics, fish oil, turmeric, migraine meds prn, and vicodin prn. Gall bladder removed 8/15. Started Entyvio 8/5/16.

Have tried: sulfasalazine, asacol, entocort, imuran(allergic), humira, remicade (serious joint pain/fatigue stopped after 2 doses), 6MP, cimzia, pentasa, MTX & Arava for joint pain

gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 428
   Posted 9/19/2017 9:19 PM (GMT -6)   
Yeah, I know, girl, that's why I had to say something smart***y.
I'm on a fb group called Entyvio Warriors.
It seems like everybody and their mother is suffering from joint pain, except me!
lolz
Be kind, for everyone you meet is fighting a great battle. -Philo of Alexandria

Live as if you liked yourself, and it may happen. -Marge Piercey

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 9921
   Posted 9/20/2017 8:19 AM (GMT -6)   
I'm on Entyvio and I'm not suffering from joint pain. But I am suffering from uveitis something chronic. And every eye doc I've seen has told me the same thing: it's the Crohn's.

I mean, technically Entyvio shouldn't have any extra-intestinal effects, as - unlike Remicade - it's supposed only to bind with a certain type of molecule that targets the gut. It's more likely that the Crohn's is playing up in people's joints, rather than Entyvio directly causing joint pain. Joint pain is fairly common in IBD - about 1 in 5 people with IBD are estimated to develop arthritis: www.spondylitis.org/Enteropathic-Arthritis

Remicade is a more systemic drug, thus has greater potential for systemic side-effects, e.g. joint pain (perhaps from a Remicade-induced lupus-like syndrome).
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1812
   Posted 9/20/2017 3:55 PM (GMT -6)   
The joint pain you had on Remicade was probably due to you having antibodies to the drug. I had this many years ago and almost as soon as I was off of it, my joint pain went away. I've been on Entyvio for almost 2 years with excellent results and no apparent side effects. I will also say that since being on it my joint pain is almost none existent except for my hands and lower back where I have arthritis.

Good luck and I hope you get some relief.
DX with CD Aug. 1982
Gerd secondary to crohns
Entyvio
Methotrexate
Monthly b-12 injections
40 mg Protonix / twice daily
Zoloft
xanax
folic acid
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