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Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 1001
   Posted 9/23/2017 12:13 PM (GMT -6)   
Hi all!
I'm trying to figure out if I should be concerned. The number of times I go to the bathroom increased before my last remicade which is normal but hasn't gotten better. I switched my diet around the last few days to try to help with GERD which helped with that but has only seemed to make this worse. I went 5 times yesterday including one emergency run to a store's restroom (gotta love Target). I feel so confused. Is it my diet changes (more whole grains and plant based foods) these things never did this to me before this while in remission.

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 678
   Posted 9/23/2017 12:41 PM (GMT -6)   
Lab,

I have issues whenever I try to add more vegetables or grains to my diet. I have to cook my veges for at least a half hour to an hour---depends on if I am cooking fresh, canned or frozen. Oatmeal....I try to stay away from. I use grits instead.

I think that I would try cutting back on the grains, experiment with if the veges need to be cooked and for how long. Finally...when was your last trough/antibody test? Maybe it is time to have it checked if possible.

Hope you figure it out and feel better soon!

Clo

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 1001
   Posted 9/23/2017 2:25 PM (GMT -6)   
Thanks Clo, which veggies work best for you? I feel so lost now with the GERD restrictions on top of the IBD ones. the whole grains helped the throats and chest pains but made everything else no good I guess. I had been fine with raw and cooked veggies for months before this but now suddenly it doesn't seem the case unless I over did it. I'm not sure. I feel like if I eliminate everything that I think is bothering me I'll be down to plain salmon, tuna and maybe carrots lol. Even pasta messes with the GERD. Sorry I'm so grumpy I am thankful I had a few months of happily unrestricted eating but now it's an adjustment. I've already lost about 10 pounds or so since this started at the beginning of the summer. My blood work is good though and I had my trough levels checked about 2 months ago so all should be fine with that.

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2739
   Posted 9/24/2017 4:23 AM (GMT -6)   
Sorry Lab for this. I too have a GERD and gastritis flare up but I have long-standing GERD. My GI told me that my current flare up has been expected in the course of my treatment.

Why would pasta mess things up? Eat everything plain w/o any sauces. At the time being, eat baked or boiled potatoes w/o skin, tuna w/o oil, no spices, marination or flavors. Decrease dairy intake.Banana and toast are gentle on stomach, too.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 1001
   Posted 9/24/2017 4:23 PM (GMT -6)   
Thanks Minnie! I'm not sure with the pasta. I fix it myself and only put a tiny tiny bit of butter on it. But in general basically all foods have been bothering me and I eat as bland as it gets. It's finally gotten a bit better though so I'm hoping it continues that way.

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2739
   Posted 9/24/2017 4:40 PM (GMT -6)   
What meds are you on? When I saw my GI two weeks ago, he increased some stomach and GERD meds x3 instead of once per day.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 1001
   Posted 9/24/2017 4:52 PM (GMT -6)   
Im on protonix for the GERD once a day. my GI wants me off of it as soon as possible. Not sure how that's going to work but I guess only time will tell.
I'm on remicade, 6mp(25mg), toprol, plaquenil and a bunch of supplements I'm wondering if the plaquenil or the toprol is making it worse because the first signs of it came about two months into the plaquenil. It also got worse the around the same time the toprol was increased.

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 678
   Posted 9/26/2017 11:16 AM (GMT -6)   
Lab,

Sorry for delay. I tried shake n bake and have been sick since! I guess it is back to plain bread crumbs.

I eat a lot of summer squash and zuchinni. I do not peal them. Just wash, slice thin, and grill with a little butter and salt. I grill til they are mushy. I eat them at least every other day. Carrots and green beans cooked for a long time are my next veges. I eat iceberg lettuce with carrots.(finely shredded) and tomatoes (peeled and small amounts) for a salad once or twice a week. I eat zuchinni omelets with a little salt pork. ( rinsed soaked and grilled) Bacon messes with me but for some reason I can eat salt pork. If I eat cheeses...they are usually aged and hard cheeses...and I just eat a little.

On your supplements....I had to cut down on my turmeric and omega3... I was taking two doses daily but after two weeks I did not feel well after taking them.. Together they caused acid reflex after the second daily dose. We actually cut them out all together for a week then started the turmeric for a few weeks then added the omega3...we are trying to gradually increase the amounts. We will probably start playing with the timing next. The omega and turmeric are taken to help with my joints...and yes it does help. My GI and rhummy are trying to keep me off the plaquenil as some patients have developed more food intolerances while on it....but we will go there if we need to.

Oh and they told me to eat cashews for nuts. Soft nuts. Avoid the hardnuts and to chew 50 times...(but that's probably because of the colostomy??)

This is all so surreal. One day you can tolerate something and the next you can't.

I hope you find something that helps.

Clo

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 1001
   Posted 9/29/2017 8:30 AM (GMT -6)   
thanks Clo!
squash has always been a good one for me too. I don't know whats going on. The other day I went back to my usual diet that works well for my gut but not as good for reflux to try to eliminate causes. I'd rather deal with the reflux than running to the bathroom. I woke up this morning discomfort and had to rush to the bathroom with a loose BM. I hope this passes soon because I'm not ready for flare. Hoping I'm just over reacting but don't think I've had this issue in a long time:/
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