What you should expect varies and it is hard to advise you without knowing the first thing about
your Crohn's or your treatment history.
Scopes are normally done routinely once every 3-5 years. But if you are flaring you can expect them to be done more frequently - how often, it's impossible to say. When was your last scope and how have things changed since then?
A complete blood checkup usually consists of FBC (Full Blood Count), liver function test, urea & electrolytes (this is the kidney function test), and CRP & ESR (inflammatory markers). Iron and B12 levels ought to be tested regularly as well, but this isn't standard where I am.
Routine visits are once or twice a year, if things are going well. But if you start flaring, you ought to have a means of seeing your GI quickly. You should have somebody you can contact: an IBD nurse or the GI's secretary, if not the GI himself.
GIs won't typically give you all the medication options unless you ask. Don't be scared to ask what other medications there are and if they are suitable for you. I would do some research of your own though (try only to stick with reputable websites and avoid websites with something to sell like the plague). Even the best GIs can miss things out, and the worst ones are bloody useless.
What did the 2 GIs do wrong? We can try to help you get better treatment, but need to know more about
your Crohn's and the treatments you have tried so far.
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)